Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enlarged Spleen In Celiac Disease?


sharonLmiracle

Recommended Posts

sharonLmiracle Newbie

I feel like I'm fighting for my mother-in-law's life. She has so many health problems, it would take forever to list them all, but here's a partial list:

* digestive problems (constant gas, diarrhea)

* heart problems (3 stents)

* hemolytic anemia

* low platelets

* diabetes II

* enlarged spleen

* angular cheilitis

* SEVERE GERD--to the point where it's burned her esophagus and she's had to have the scar tissue stretched several times and she has to eat tiny bites of food or she chokes

* extremely bad teeth--lost her front teeth when she was a teenager, and has had dental work her whole life

* horrific swelling in her feet

She sees a hematologist and a GP, both of whom I have faxed and asked to run a celiac panel. Like most doctors, they are arrogance personified--no celiac panel. They'd rather see her die than admit that celiac disease might be a remote possibility.

Have any of you heard of celiac disease causing an enlarged spleen? I've read that it can cause the spleen to ATROPHY, but I haven't seen anything on it causing the spleen to enlarge.

They just did a liver biopsy on her this week, looking (again) for a symptom, but not the cause of all this. If the liver biopsy comes back with bad results, they may take out her spleen, which means she'll be on antibiotics for the rest of her life. But if celiac disease is causing all of this, why take out her spleen?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I don't know if celiac disease can cause an enlarged spleen. But a lot of her symptoms could be caused by celiac disease, especially the gastrointestinal problems, the GERD, anemia and the awful teeth. Others here have also inflammation of the corners of the mouth, so it could be a celiac disease symptom.

You are right in asking for celiac disease tests to be performed. If the GP you are dealing with is too arrogant (and ignorant) to order a celiac panel, maybe you will have to find a new doctor for your mother-in-law who is willing to look for causes, not just symptoms.

  • 4 months later...
rsm Newbie

I just found your post, bad timimg i know. These symptoms could be Myeloma. I'm being checked right now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,776
    • Most Online (within 30 mins)
      7,748

    peskywabbit
    Newest Member
    peskywabbit
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.