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The Gluten Nightmare

FoxersArtist

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FoxersArtist Contributor
FoxersArtist
Posted

My while family has been gluten free for 3 1/2 months after being shocked to learn that both hubby and I as well as at least one of our 2 kids has celiac. I could not feel more happy about being gluten free and can't imagine going back - though going into walmart where their Subway Restaurant is baking bread still makes me want to cry. (Why couldn't they have put a McDonald's or some other gross restaurant in there, why a SUBway?!)

Anyway, we have been really proud of our efforts to go gluten free and to keep it out of our house and wont even touch an item that we are unsure about. Unfortunately it seems like we are still suffering as casualties of the gluten nightmare. Something no one here has known about me until now is that my husband and I run a rescue for parrots. We care for between 20-30 parrots at any given time and work to improve their diets, overall health, and any behavioral issues before adopting them out to responsible homes. Unfortunately all of the food we use for our birds staple diets contain gluten. We feed mostly pellets and fresh foods but even most bird seed mixes have gluten in them! We have gotten really good about spraying down newspapers before changing bird cages (this keeps any of the food dust from becoming airborne) and have not seemed to have many problems, but my goodness - mixing the food every month has KILLED me. I have been sure to use protection such as a chemical grade respirator and have showered promptly after mixing food, but I still seem to get glutened every time. We also have several birds with special diets. These birds, called lories, eat a powdered nectar (all of which are just swimming with little gluten monsters) instead of solid foods. The birds like to spring out of their cages and onto my shoulder before I can react and on multiple occasions they have quickly leaned down to give me a kiss with their nectar covered beaks. Glutened! Ack! I have done as much research as I could find on switching these guys to an all fruit and veggie diet but finding a balanced diet for them is very complex and I'm afriad of not providing them with the balanced diet that their bodies need.

My husband, who has managed mostly to keep himself from being exposed to the birds food, seems to be running to the bathroom more frequently than I have ever seen. The gluten free diet has taken away so many of his other health issues but he has found himself to be extremely sensitive to most other foods now. He cut out dairy after going gluten free thinking this was probably the source of his troubles but still seems to get sick randomly with no clear pattern as to what the offending food was. Sometimes it's meat, sometimes it's a salad, sometimes from drinking a beverage. We are stumped. It's hard to watch him feeling so sick, especially since he didn't have too many symptoms before going gluten free. When I get glutened I seem to have an instant colitis flare up and lots of troubles breathing, symptoms that seem to be getting more intense each passing month, so I dred any possible exposure to gluten anywhere. Our birds are an irreplacable part of our lives so I am really just at a loss for what to do and feeling a little frustrated. Thoughts?

-Anna

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Ursa Major Collaborator
Ursa Major
Posted

I am really wondering why in the world all the bird food has gluten in it. In the wild parrots absolutely do NOT eat gluten grains! They live in the jungle, where they live on fruits, nuts, seeds etc.

Here is a good website with ideas on how to feed your parrots without any of the gluten stuff you have been feeding them (which is probably not even good for them).

Open Original Shared Link

Here is another good site: Open Original Shared Link

I know they say to feed the parrots pellets. But I don't think that is necessary. When I was a kid we had an amazone, and I don't think we fed him pellets. He got seeds, nuts, fruits and vegetables, and he demanded to get a dish of our supper every night (which often included meat, and he loved it). He lived to be about 50 years old (we got him when he was 30), and eventually died of pneumonia because of a draft.

Natural Diet:

Their diet typical consists of seeds from eucalyptus and acacia, as well as nuts, fruits (including berries), nectar, flowers, and insects and larvae.

In order for you and your husband to be healthy, you really need to stop feeding that gluteny food to the parrots. Even that nectar should be replaced with gluten-free nectar (even if you have to make it yourself).

It sounds like you could end up with life threatening symptoms if you don't stop exposing yourself to airborne gluten, and being glutened by 'bird kisses'.

YoloGx Rookie
YoloGx
Posted

Seems like if you make your own gluten free bird feed others might want to buy it too.

Bea

Jestgar Rising Star
Jestgar
Posted

No advice. Just want to mention that you are AWESOME for rescuing parrots. I could never keep one myself as I don't have the time to give such an intelligent animal the attention it needs, but thank you for doing it.

Jestgar Rising Star
Jestgar
Posted

I was curious about what parrots eat so I did a quick google search and found Open Original Shared Link which seems awful pricey to me, but if you decide to make your own mix it might give you an idea of where to start.

Ginsou Explorer
Ginsou
Posted

I'm also a Subway fan. I've solved the problem.....I buy a Subway sub and put the "fixings" between 2 corn tortillas. Usually bring the sub home, so I can warm the tortillas and use my special mayonnaise. Another time I purchased some corn tortillas in Walmart and went into the Subway area of the store and simply sat there and transferred the fixings to cold tortillas. It was heaven.

I've recently discovered via blood tests, that I'm also allergic to corn, potatoes,yeast,eggs,peanuts,soy,carrots,peas,and much more. All of this in addition to being lactose and gluten intolerant. Don't quite believe the blood tests....food scratch tests will be next.

Adelle Enthusiast
Adelle
Posted

Ginsou, do you mean that you buy the fixings FROM subway? If so you are definitely getting cross contaminated!! Those places NEVER keep things even close to safe!!

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dally099 Contributor
dally099
Posted
Ginsou, do you mean that you buy the fixings FROM subway? If so you are definitely getting cross contaminated!! Those places NEVER keep things even close to safe!!

holy cow i dont even get a salad there, as it is one big crumb factory there and crumbs are the enemy!

Ursa Major Collaborator
Ursa Major
Posted
I'm also a Subway fan. I've solved the problem.....I buy a Subway sub and put the "fixings" between 2 corn tortillas. Usually bring the sub home, so I can warm the tortillas and use my special mayonnaise. Another time I purchased some corn tortillas in Walmart and went into the Subway area of the store and simply sat there and transferred the fixings to cold tortillas. It was heaven.

I've recently discovered via blood tests, that I'm also allergic to corn, potatoes,yeast,eggs,peanuts,soy,carrots,peas,and much more. All of this in addition to being lactose and gluten intolerant. Don't quite believe the blood tests....food scratch tests will be next.

Oh, goodness, you should NEVER take the fixings off any sandwich or pizza (or the croutons off a salad), and then eat them! They are cross-contaminated and NOT safe at all.

You have too many intolerances, meaning that there must be another underlying problem besides gluten intolerance. I am in the same boat, and I am working on finding out what is causing me to have leaky gut.

I do believe I am truly gluten intolerant, but there is something else wrong. It could be heavy metal toxicity or Lyme Disease for instance.

FoxersArtist Contributor
FoxersArtist
Posted
  • Author

Jestgar,

Thank you SOO much for the help. The unfortunate problem is that each species of parrot requires a different diet...something that a lot of people don't understand and something I had perfected with their old diet, but I am now exploring the option of making my own mixes using quinoa or buckwheat, which would be better for them anyway. We'll see how it goes...oh and I did find a nectar that was safe for my lories, though it's extremely pricey. Did you know that wheat grass is actually gluten free unless it contains some of the "berry" or wheat grain (which is the part that contains gluten). I had no idea until I started doing research on wheat grass because it's listed in some of these bird foods.

As far as the Subway goes - I have dreamed many times about going to subway and just asking for their meat and cheese...heck, I would be in heaven just to have some of their mayo again BUT I know better and won't go anywhere near there. If you have ever seen what happens to the bread when they cut it open (crumbs pouring out everywhere) and then they touch the meat and cheese and lettuce and everything with the same gloves. Nooooo way! No thanks! I'll just keep on suffering those baked bread smells.

-Anna

FoxersArtist Contributor
FoxersArtist
Posted
  • Author

Parrots are sooooo hard! In my opinion second only to adopting or having a human child. Very, very smart, very loud, very messy, frequently bite and command a lot of respect and attention from their people. They are not the right pet for the majority of the population and yet they are the 3rd most popular companion animal in the USA. Very sad. Amazingly, we have large parrots like macaws surrendered to us every few weeks and usually have about 30 at a time. I must say though, there is nothing like watching a malnourished, depressed, fearful parrot do a total 180 in your care! Sorry for the OT...just had to share. :D

-Anna

No advice. Just want to mention that you are AWESOME for rescuing parrots. I could never keep one myself as I don't have the time to give such an intelligent animal the attention it needs, but thank you for doing it.
ShayFL Enthusiast
ShayFL
Posted

We rescue Great Danes. Rescue work is very rewarding once you get past the anger and sadness. Great Danes are the worlds cutest puppies and people buy them because of this. Then that cute "little" puppy weighs 100 pounds in 6 months and has completely destroyed your hardwood floors, broken grandmas 100 year old vase and knocked the baby over too many times. Off to the pound/rescue they go. It is so sad. If you want a Great Dane, please consider rescue. You can get an older puppy that has been pre-screened.

PEOPLE SHOULD DO A LOT OF RESEARCH BEFORE THEY BUY A PET!!!

This is our Bacchus at 6 months:

http://www.terracegallery.com/bacchus2.webp

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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