Test Results Help

[jiggly]

Hi everyone,

I was wondring if you could give your opinion on my results?

I had these taken a couple of years ago, The dr diagnosed me with IBS but ordered some blood tests just to make sure I wasn't coeliac. When I went back for the results I was told they were negative, and off I went on my merry way. For the past couple of years I've played around with eating less wheat (not necessarilly gluten though) and always feel better for not eating it.

I was eating gluten/wheat at the time of the tests, but not an awful lot of it. I'm wondering whether I'm just sensitive to it? I've got no idea what the results show other than negative!

IgA Endomysial - Negative

IgG Endomysial - Negative

IgG - 12 g/L (6 - 16)

IgA - 2.7g/L (0.8 - 2.8)

IgM - 1.1 g/L (0.5 - 1.8)

No idea what these ones are for!

Globulin - 35 g/L (20 - 35)

Serum total protein - 81 (62 - 82)

Albumin - 46 (35 - 50)

Electrophoresis - No abnormality seen

[jiggly]

No ideas?

I've decided to do a gluten free diet anyway. I was at a function all day saturday wearing a tightly laced corset/dress. I'd been trying to cut down on wheat etc for a couple of days and I didn't each much all day (eggs for breakfast, jelly babies to snack on) and was starving by the time food came at 8pm. Ate some sausage rolls, chicken sanwiches and mini doughnuts as that's all they had.

30-45 mins later I felt so ill. I seriously thought I was coming down with 'flu or tonsilitis. I had a hedache, my face felt so hot (although I didn't feel hot to anyone else), my throat hurt, my inner ear hurt (which is what made me think tonsilitis), my eyes ached. Plus I bloated so much that I split a side seam in the corset and it had to be re-laced 4 inches looser! I had some serious cramps going on too.

2 hours later I was fine. If not celiac, could I just be intolerant?

[samcarter]

It looks like your numbers are in the normal range, meaning there's no evidence of anti-gliadin or villi damage. But if that IgA "negative" means that you don't produce IgA, then you are IgA deficient and could still have celiac disease.

That said...there are often negative blood test results. I read that blood tests can miss 30% of celiacs. My doctor only ran the EMA test, which was negative, but I dont' count that for much because without the other tests on the panel, it's pretty much meaningless to me.

some people have negative blood test for celiac and then have a positive biopsy, because often you only get any positives on the blood test when the villi are completely flat. And any level of villi damage (blunted villi) can indicate celiac.

Then, too, biopsies can be negative if not done properly, or if the samples are taken from nondamaged sections of the intestine.

As I've learned on here, the best test is positive dietary response. Go gluten free for a week, strictly gluten-free, and see how you feel. You may want to test yourself, as you did with the doughnuts.

When I eat gluten, I get the following symptoms (in order):

1) Headache (which lingers for days and feels like a sinus/tension headache)

2) Fatigue

3) Hot flashes--like you said, you feel hot but nobody else thinks you feel hot. I've even taken my temperature during my hot flashes and I dont' have a fever, I just feel like the room temperature has been raised by about 5-10 degrees

4) Stomach pain (dull or sharp)

5) Next-day diarrhea OR constipation