Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take To Have A Dh Reaction?

lobita

By lobita
in Dermatitis Herpetiformis

Recommended Posts

lobita Apprentice
lobita
Posted

I'm trying to figure out how long it takes for a possible gluten-ingestion to turn into a DH outbreak. Does anyone have a specific time they know of when they react to gluten through DH?

I've been having trouble with my DH spot (on my fingers and palms), and I don't know what's causing it. I cut out iodine salt last year, which (I think) made the outbreaks go away for several months. But it's back now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RoseTapper Newbie
RoseTapper
Posted

I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.

lobita Apprentice
lobita
Posted
  • Author
I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.

I don't take thyroid meds, but I think I identified what happened...I drank some Rice Dream last Fri. and Sat. and the topic of that having barley traces in it just came up in the forum (coincidentally, since I've never had the stuff before). So I think that did it, but the DH troubles continued into yesterday, so I didn't know if it was something else too.

snaparella Newbie
snaparella
Posted
I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.

Can i ask a nieve question? what does iodine and thyroid medication have to do with DH? i'm new to the forum, i definitely have a gluten intolerance. i was tested for celiac sprue and was negative, but all signs show a sensitivity to gluten including DH.

lovegrov Collaborator
lovegrov
Posted

Generally speaking it takes days for blisters to form. On average, it's slower than other celiac disease reactions. Of course everybody's different.

As for the iodine question, iodine can aggravate or trigger DH even though there's no gluten, but once you're completely gluten-free, it shouldn't cause problems. It never did cause any problems for me, but it has for others. If you're eating high-iodine items now and there's no problem, you don't need to worry.

richard

carolyn s Newbie
carolyn s
Posted

:huh:

I'm trying to figure out how long it takes for a possible gluten-ingestion to turn into a DH outbreak. Does anyone have a specific time they know of when they react to gluten through DH?

I've been having trouble with my DH spot (on my fingers and palms), and I don't know what's causing it. I cut out iodine salt last year, which (I think) made the outbreaks go away for several months. But it's back now.

I can flare up within 24 to 48 hrs. if I don't take my medication, Dapsone. I have a thyroid issue, which goes along with having DH. I also have celiac disease and just diagnosed with lymphocytic colitis. I have had DH for 40 yrs. and have been studied at Stanford & Univ of Utah. Gluten seems to be the enemy.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.