Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Initionally Feel Worse?

glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast
glutenfreegirl
Posted

Good day

I would never post this any where but here and I am only doing this because I am scared and confussed today..

Is it possible to feel worse before you feel better?

yesterday was my first complete gluten-free day as I was just diagnosed after a year long struggle of suddenly feeling awfull however when I look back now it has been years just very subtle that i never put it all together or knew what celiac was for that matter and I have to say energy wise and bloating I felt much better than before however I had a lot of mucus spitting up from my throat and my nose was draining a fair amount. Could it have been stuck there from the inflammation from the Gluten and now just breaking lose now this AM i am spitting more up and my ears and nose feel fluidy I have been drinking lots of water to try to flush it all out.

Also prediagnosis I was suffering C but yesterday and this AM WOW lots of rumbling and moving down there not D thought is that normal or is somehting else wrong now? I gues I htought I would just start to feel better and better not like this has this happened to anyone else.

I guess I just did not think things would feel worse or have weird things like this happen and I am very scared also noticing my moods off a little feel more sad than yesterday and pressure in my ankles alittle fluidy.

thank you for any advice or help i hate this feeling of fear i thought i would be releaved not scared..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

YES!! I felt worse before better. Think of it this way....anytime you injure your body.....healing can be painful. You stub your toe and it is more sensitive an sore 2 days later. You cut yourself and it hurts while it is healing. Burns are very painful while healing. Your body is healing. So this isnt a bad sign and try not to let yourself think it is. Give it some time....you will feel better!

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Hi Shayfl thank you for responding so quickly would it be rude of me to ask what you where feeling when you went throught recovery how did you feel worse and for how long if you remember I hope I am not being rude by asking.

YES!! I felt worse before better. Think of it this way....anytime you injure your body.....healing can be painful. You stub your toe and it is more sensitive an sore 2 days later. You cut yourself and it hurts while it is healing. Burns are very painful while healing. Your body is healing. So this isnt a bad sign and try not to let yourself think it is. Give it some time....you will feel better!
ShayFL Enthusiast
ShayFL
Posted

It is the answer that might be rude. :o

I didnt have many GI symptoms before gluten-free. I am mostly neuro. But after I cut it out, I had horrible gas/pains and found myself in the bathroom waaaaaay too much. I was also extremely tired (not normal for me). Moody and irritated for a few weeks. Snappy (also not normal for me) and starving no matter what I ate. It wasnt pretty. But it calmed down after a few weeks and I am still getting better as the days go by.........

samcarter Contributor
samcarter
Posted

Yep---drainage, big time. Your immune system has been working overtime against the gluten, and the drainage is, as my dad so eloquently put it when I was a kid, "the dead soldiers" (white blood cells) left over from the fight. Think of it as a detox. You often feel worse, initially, before you feel better. Without the gluten to fight against, your body can finally work on healing the inflammation.

You will heal fastest if you eat whole, simple foods. Don't jump into gluten-free substitutes for things like bread, crackers, and cereals.

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Yes drainage that is a good way to put it :rolleyes:

I feel like i have mucus coming from everywhere!! mylungs my nose and even saw some in my "poop" yes I said it.... I have been peeing tons and feel just down and sluggish and headachey man I htought i was supose to feel better right away but good to know others felt yucky first too...\

thank you

Hummingbird4 Explorer
Hummingbird4
Posted

I wasn't really having symptoms to start with, and after 8 days of being gluten-free, I feel worse. I have bloating, gas, and just feel very blue. Also, I've gained a few pounds that I did NOT need to gain. I'm hoping it's just a transitionary thing, but right now I'm bummed out. I feel your pain, glutenfreegirl. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Thank you all for your support

Hummingbird4 I know what you mean any time you want to chat I am hear we can either complain about how crapy we feel, cheer eachother up or just be....where in the word are you... litterally :)?

I am in Canada

Hummingbird4 Explorer
Hummingbird4
Posted
Thank you all for your support

Hummingbird4 I know what you mean any time you want to chat I am hear we can either complain about how crapy we feel, cheer eachother up or just be....where in the word are you... litterally :)?

I am in Canada

I am in Oregon. Do you have any support groups near you? There is a support group in my area and I believe they are meeting tomorrow morning. I'm trying to muster up the courage to go.

aprilc Newbie
aprilc
Posted

Yes, It will take a couple weeks to totally notice the difference, its been maybe 5 months since ive cut out gluten and I can now say that I do feel the difference

Good day

I would never post this any where but here and I am only doing this because I am scared and confussed today..

Is it possible to feel worse before you feel better?

yesterday was my first complete gluten-free day as I was just diagnosed after a year long struggle of suddenly feeling awfull however when I look back now it has been years just very subtle that i never put it all together or knew what celiac was for that matter and I have to say energy wise and bloating I felt much better than before however I had a lot of mucus spitting up from my throat and my nose was draining a fair amount. Could it have been stuck there from the inflammation from the Gluten and now just breaking lose now this AM i am spitting more up and my ears and nose feel fluidy I have been drinking lots of water to try to flush it all out.

Also prediagnosis I was suffering C but yesterday and this AM WOW lots of rumbling and moving down there not D thought is that normal or is somehting else wrong now? I gues I htought I would just start to feel better and better not like this has this happened to anyone else.

I guess I just did not think things would feel worse or have weird things like this happen and I am very scared also noticing my moods off a little feel more sad than yesterday and pressure in my ankles alittle fluidy.

thank you for any advice or help i hate this feeling of fear i thought i would be releaved not scared..

Shelly D. Newbie
Shelly D.
Posted

I read this post with hope. I have been gluten-free for about a month and at first I felt energetic and alive, zip--zoom, now I need a nap every day to get through. I had to quit my vitamins because they had de-fatted wheat germ in them (company says they're gluten-free, but I'm afraid to chance it) and I've tried some others but they didn't keep my energy up. My body seems to react with other foods now and I don't like it; bananas are the worst. I'll keep at it though in hopes of getting better.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

I actually felt pretty good the first 2 weeks after going gluten free (although at the time I wasn't totally gluten-free since it was in one of my supplements). Then after about 2 months or so, I'm feeling very tired. I am extremely careful about being gluten-free (changed out the pots and pans, etc). I still get headaches too. But when I look back, I feel better than before I was diagnosed. So I'm sticking with this thing. I don't even think about cheating. Too scared of getting other autoimmune diseases as well as cancer.

So hang in there. The good times are around the corner, I just know it!!! :D

I am also going to get tested for thyroid, vitamin D and hormones.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.