Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Garlic Powder? Say It Ain't So!


MarsupialMama

Recommended Posts

MarsupialMama Apprentice

Baby was on gluten-free for 3 weeks. Saw MAJOR improvement of appetite, better sleeping, MUCH better attitude, and got a very thin layer of fat back onto her body. Constipation improved slightly.

Then she got glutened by a piece of bread snatched off the table from my husbands leftover dinner. 2 bites and we started over again. *sigh*

Lost the layer of fat, got skinny, got cranky, etc.

After 4 weeks I was hoping to see improvement this time again, but it wasn't happening. She was looking WORSE.

Just realized last night that we have a new kind of garlic powder in the house for about 1 1/2 weeks when her "gluten" symptoms appeared (hardly had time to disappear after the first accident). I read somewhere that some spices like garlic/onion have wheat flour added to keep them from caking together.

Baby's belly is HUGE again, ribs turned incredibly skinny, dark circles under eyes, cranky attitude, not sleeping at night anymore, picking about eating, etc. Every single improvement reversed. *sighs*. Back to square one!!!!

Question for anyone out there.........do you just never buy anything (like pasta sauce) with garlic powder, etc in it?

Any references of places to buy uncontaminated spices (garlic, onion, vanilla, basically) or places to buy gluten-free grains in bulk? I'm not into the ridiculous prices of buying these tiny bags in the health food store when we bump through so much with our family.

Sometimes I feel like I'm trying to make miracles in the kitchen instead of food...........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

We use McCormick as they will list any wheat/gluten.

However, I just looked at my MC garlic powder and it is "Made In China".......I dont put anything past Chinese manufacturers. Could be anything in there. But I have not reacted to it.

lovegrov Collaborator

Given your screen name I'm not sure that you're in the U.S., but these days in the U.S., wheat would have to be listed as an ingredient. And manufacturers are unlikely to use wheat flour for this anyway; most likely it would be cellulose.

I say this because your problem might not be the garlic powder, which means you need to keep looking. Have you called the company?

richard

MarsupialMama Apprentice

"I say this because your problem might not be the garlic powder, which means you need to keep looking. Have you called the company?"

We got the garlic powder at a Farmer's Market that deals with international products. All it says is Dekalb Farmer's Market and the price and weight (its a bulk item).

So, as far as allergies go, does wheat HAVE to listed as an ingredient (regardless how small of an amount they use)? Do all labels HAVE to declare if they are made in factories containing wheat? Does this go for products actually manufactured in the U.S., or for anything made FOR the U.S.?

Just wondering. I really don't want to freak out over the cross-contamination issue, but if that is going to make all the difference in my baby's health (which is seems it does for others), I can become a freak-out, no problem ;) . I have been very very careful - at least I thought - with these things, but you never know....

Could be a grain (millet, or something) that she's eating that has been cross-contaminated in a factory, although I researched online about Arrowhead Mills and it seemed to be okay.

The only other thing I can think is some Panda Puffs she has had when I was desperate at the store with 2 hungry children. I have had doubts about those, though their packaging says its gluten free and that the facility deals with soy, etc, but never mentions wheat.... *sighs*

Well, she seems to be doing better today. Maybe its the weather! <_<

April in KC Apprentice

I have been mildly glutened by what I suspected was garlic powder before. I was never sure. But I did switch brands. I currently use "Simply Organic" brand garlic powder...no issues with it.

Is your child dairy free as well? If not, keep in mind that any time she is glutened (i.e. the incident with the bread), then her villi will get damaged on the tips, causing her to be temporarily lactose intolerant while she heals. For a few weeks after after a glutening, you should remove dairy (especially lactose) from her diet. Lactose intolerance (even if temporary) will cause bloating and indigestion.

My husband and I both have Celiac, and we have definitely noticed that even a mild glutening will cause him to temporarily lose the ability to tolerate milk.

April in KC Apprentice

About your spices question, you could investigate whether there is a food buying cooperative in your area. It's when a group of buyers get together and buy directly from a group of food manufacturers rather than using a store as a middle man. Some in the states and Canada are very well organized. I can "shop" online and place an order for bulk items and cases of almost all the gluten-free brands I see in my health food stores, i.e. Amy's, Kinnikinnick, etc..

If you're in the states, check out United Buying Clubs (United Natural Foods). Or perhaps use google maps to search for a food co-op in your area.

babysteps Contributor
"I say this because your problem might not be the garlic powder, which means you need to keep looking. Have you called the company?"

We got the garlic powder at a Farmer's Market that deals with international products. All it says is Dekalb Farmer's Market and the price and weight (its a bulk item).

Bulk can be tricky, as scoops might migrate from one bin to the next, or someone without food sensitivities might be unaware of 'powdering' the aisle with whatever they are scooping. And depending on the store the refill process for the bins could introduce cc as well.

Co-ops, buying groups and buying direct are all ideas to pursue. Or maybe even ask the store if you can get some of the garlic powder directly from their initial packaging (before it hits the bulk containers), or if they can call you when they open a new package? I'm assuming some stores would be happy to accommodate you and others would react like you'd just asked them for a two-headed cow.

Good luck! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

It sounds to me like you bought something that was repackaged locally. So you would need to go to the person you bought it from and ask them to verify if it is gluten free. If they can't provide a written ingredients list or copy from the original packaging then it is probably too risky to use. Personally I am planning to buy whole spices and grind them myself soon. That way I will know what is in it.

MarsupialMama Apprentice

Our whole family is dairy free and always has been (except husband who quit a few years ago for different health reasons). I was always allergic to it growing up (could have just been the gluten factor), so I've always used substitutes like soy milk or rice milk, or made my own oat milk.

Now since we've gone gluten free, the soy and rice milk had to go because of the gluten used in processing and I haven't wanted to try "gluten-free oats" until we have some more major improvements in weight and so forth. I have switched to making nut milks (like almond milk) in my blender. Pretty happy with them. I make my own cheese substitutes out of these nuts milks and have wanted to try a recipe for a coconut butter spread that sounded yummy.....

Just recently I switched to soy-free as well, to try out, because I've heard the connection of soy/thyroid/digestive troubles all linked with celiac, etc.

So, dairy free, gluten-free, soy free.........no wonder I feel like i'm making miracles in the kitchen.

Since I make 95%+ of our food from scratch, not trusting my garlic powder was one more "glitch" to overcome. We love it on popcorn, and you can't put fresh garlic on popcorn.......! :P

lovegrov Collaborator

"So, as far as allergies go, does wheat HAVE to listed as an ingredient (regardless how small of an amount they use)? Do all labels HAVE to declare if they are made in factories containing wheat? Does this go for products actually manufactured in the U.S., or for anything made FOR the U.S.? "

Wheat has to be listed if it's purposely added as an ingredient. The amount doesn't matter and it also doesn't matter what country it's made in.

Labels do NOT, however, have to declare whether or not the item is made in a facility that uses wheat.

richard

Live2BWell Enthusiast

How interesting....

I haven't been feeling well today, had major GI problems and I got the red bumpy rash and I was wondering if I was somehow glutened, and then I came across this post and ironically I had what I thought was gluten free pizza (but... it had garlic powder on it) :blink:

  • 10 years later...
Jeri103 Newbie

I am so sick. Made scalloped potatoes and ham. Only used corn starch for a thickener. Garlic powder is from Walmart....generic with no ingredients listed. I know it was the gp, only questionable food I have had for days.

 

Fine Newbie

Recently looked at my generic garlic powder and it said may contain traces of wheat! Never thought to look!  Bought organic garlic powder at WalMart...now switching to all organic spices one spice at a time.  This might be partly why after almost 3 years gluten free still not recovered....

apprehensiveengineer Community Regular
5 hours ago, Fine said:

Recently looked at my generic garlic powder and it said may contain traces of wheat! Never thought to look!  Bought organic garlic powder at WalMart...now switching to all organic spices one spice at a time.  This might be partly why after almost 3 years gluten free still not recovered....

Organic has nothing to do with gluten-free, and a lack of "may contain" statement does not necessarily mean that a product is safe. In the US and Canada, manufacturers are only required to list ingredients they put in on purpose. If a product was processed on the same line as an allergen, there is no duty to warn consumers of this risk. Some choose to give additional statements such as "may contain x" or "made in a factory that processes x," if they are not sure about the status of their products, but they are not required to.

Best to check statements on specific manufacturer websites to be certain.

ravenwoodglass Mentor
On 10/24/2018 at 5:11 PM, Fine said:

Recently looked at my generic garlic powder and it said may contain traces of wheat! Never thought to look!  Bought organic garlic powder at WalMart...now switching to all organic spices one spice at a time.  This might be partly why after almost 3 years gluten free still not recovered....

McCormicks single ingredient spices are what I use. I also will get Wegman's mixed spices if they have their circle G. I put their Garlic and Herb blend in almost everything from meats and eggs to veggies.  I know it is expensive to replace all your spices but if you have used a lot of generic ones I would to be on the safe side.

  • 2 years later...
LG Newbie

Glutened by Garlic powder Whole Foods 365...It's not listed on an old gluten free food list under spices...but its the only thing different.

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,784
    • Most Online (within 30 mins)
      7,748

    Suzanne R
    Newest Member
    Suzanne R
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
    • Kwinkle
    • trents
      First of all, being able to return to foods that you have developed a sensitivity to in connection with celiac disease is not a given. You may or may not be able to do this with time. But the ability to do so seems to be connected with the healing of the villous lining of the small bowel which often takes 2-3 years in adults after attaining to consistently truly gluten free diet. But you will just have to test the waters. Experimentation with those foods is the only way. Realize also there are thresholds of tolerance. You may be able to consume those foods without issue but not as often and in lesser amounts than in your pre celiac days. So, start small and go slow.
    • trents
      Welcome to the forum, @Waterdance! Constipation and diarrhea are classic celiac symptoms and hemorrhoids is usually the outworking of either or both of those two problems. But I'm curious about your statement, "I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease." Perhaps your understanding of what that encompasses is outdated and deficient, as is also true of many physicians. Actually, now there are over 200 symptoms and medical conditions that have come to be associated with celiac disease and the list keeps growing.  And you use the term "gluten intolerance". What does that mean to you? Actually, gluten intolerance is a catch all term referring to two different gluten disorders: celiac disease and NCGS (Non Celiac Gluten Sensitivity). Celiac Disease is an autoimmune disorder characterized by ingested gluten triggering the immune system to attack the lining of the small bowel. NCGA or just, gluten sensitivity, for short, is a reaction to gluten that is not autoimmune in nature (neither is it an allergic reaction per se) but it's symptoms overlap with that of celiac disease. We actually don't know a lot about NCGS yet but some experts believe it can be a precursor to celiac disease and it is 10x more common that celiac disease.  There are some blood antibody tests that are pretty specific to celiac disease but they require that you have been eating normal amounts of gluten for weeks/months prior the blood draw. Having the blood draw done while being gluten free or even having been on a reduced gluten diet will invalidate the testing. There was a recent article posted in this forum about testing being developed that did not require breaking a gluten fast but it is not available yet. When and if it is, that will be a giant breakthrough because so many people experiment with the gluten free diet before they ever get tested and can't safely utilize the "gluten challenge" because their reactions are too severe. So, they can't distinguish whether they have NCGS or celiac disease and must live with the ambiquity.  There are also some people who react negatively to all cereal grains. You may be one of them. Technically speaking, gluten is found only in wheat, barley rye, and some cultivars of oats. But all cereal grains contain proteins that more or less are similar to gluten and, apparently, similar enough to cause a gluten-like reaction in some people.  Have you experimented with non-cereal alternative grains like buck wheat or sorghum? Can you substitute potatoes for grains to get calories? Have you looked into SIBO (Small Intestine Bacterial Overgrowth)/histamine intolerance? This could also explain the problems you are having. You are not going to want to hear this because you will feel like you are starving but the Auto Immune Protocol Diet will probably make you feel a lot better.  
×
×
  • Create New...