Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New At This And Coping With Doubts, Second Thoughts And Increased Stomach Pain...


Mica

Recommended Posts

Mica Rookie

I tested through Enterolab and was found to have elevated IGA antibodies at 12 with less than 10 being normal, my TTG levels were normal but I also have one of the main celiac genes and a gluten sensitivity gene as well. I immediately went gluten free. But then a few days later my doctor asked me to visit a gastroenterologist with her group for further testing. I, however, had to return to eating gluten to test with him. I refused the appointment and continued eating gluten free, telling myself that the Enterolab results, along with my frequent constipation, heartburn, flatulence, eczema, hives and hypothyroidism were enough.

Two weeks later....I started having doubts and caved! I went back to eating gluten with the intention of scheduling an appointment with the gastroenterologist. I ate normally for 2 weeks and realized how bad I felt!!!

Frequent headaches, flatulence, constipation and stomach pain which I can only describe as feeling like my insides were swollen. It seems like I became much more sensitive to gluten after just 2 weeks of eliminating it from my diet. Is this possible? I am starting to feel like my mind is playing tricks on me.

I am gluten free again for 2 days now...but I worry about more doubts in the future.

Sincerely,

Mica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



firegazing Newbie
It seems like I became much more sensitive to gluten after just 2 weeks of eliminating it from my diet. Is this possible? I am starting to feel like my mind is playing tricks on me.

I'm not diagnosed, but yes--I think this is completely possible!

I spent 2 months gluten-free and when I started to eat gluten again, I got sick like you wouldn't believe! Nausea, diarrhea, hands and feet so swollen I couldn't walk or make a fist, strange rashes, intense brain-fog, and so on.

If you feel that you need a doctor's confirmation in order to believe in yourself, maybe it is a good idea to go ahead and gluten yourself up again so that you can get a diagnosis. That's what I'm trying to do right now. I want objective evidence of my troubles.

ShayFL Enthusiast

It sounds like you have your answer. But if you think you will live in "doubt" forever even though you are feeling better, then gluten up and get tested.

Lockheed Apprentice

Okay I always refer to the frog in boiling water situation. I don't think you actually become more sensitive so to speak but your body has a more noticeable reaction for several reasons: 1) your immune system is no longer suppressed on a daily basis by the offending agent, so it is functioning better and can give a better reaction to attack and remove toxins from the body 2) because you now know what it feels like to feel well, you really notice when you feel bad. Like a frog if you slowly turn the heat up he'll sit in the water and boil to death, but if you throw a frog in hot water he'll fight to stay alive.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,480
    • Most Online (within 30 mins)
      7,748

    Elpho
    Newest Member
    Elpho
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Michelin tire company, since 1900, has published a guide to restaurants that is very well respected: https://guide.michelin.com/us/en/restaurants For info: https://en.wikipedia.org/wiki/Michelin_Guide
    • trents
    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
    • RMJ
      Hopefully @cristiana will see this question, as she also lives in the UK.
    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.