Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New At This And Coping With Doubts, Second Thoughts And Increased Stomach Pain...


Mica

Recommended Posts

Mica Rookie

I tested through Enterolab and was found to have elevated IGA antibodies at 12 with less than 10 being normal, my TTG levels were normal but I also have one of the main celiac genes and a gluten sensitivity gene as well. I immediately went gluten free. But then a few days later my doctor asked me to visit a gastroenterologist with her group for further testing. I, however, had to return to eating gluten to test with him. I refused the appointment and continued eating gluten free, telling myself that the Enterolab results, along with my frequent constipation, heartburn, flatulence, eczema, hives and hypothyroidism were enough.

Two weeks later....I started having doubts and caved! I went back to eating gluten with the intention of scheduling an appointment with the gastroenterologist. I ate normally for 2 weeks and realized how bad I felt!!!

Frequent headaches, flatulence, constipation and stomach pain which I can only describe as feeling like my insides were swollen. It seems like I became much more sensitive to gluten after just 2 weeks of eliminating it from my diet. Is this possible? I am starting to feel like my mind is playing tricks on me.

I am gluten free again for 2 days now...but I worry about more doubts in the future.

Sincerely,

Mica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



firegazing Newbie
It seems like I became much more sensitive to gluten after just 2 weeks of eliminating it from my diet. Is this possible? I am starting to feel like my mind is playing tricks on me.

I'm not diagnosed, but yes--I think this is completely possible!

I spent 2 months gluten-free and when I started to eat gluten again, I got sick like you wouldn't believe! Nausea, diarrhea, hands and feet so swollen I couldn't walk or make a fist, strange rashes, intense brain-fog, and so on.

If you feel that you need a doctor's confirmation in order to believe in yourself, maybe it is a good idea to go ahead and gluten yourself up again so that you can get a diagnosis. That's what I'm trying to do right now. I want objective evidence of my troubles.

ShayFL Enthusiast

It sounds like you have your answer. But if you think you will live in "doubt" forever even though you are feeling better, then gluten up and get tested.

Lockheed Apprentice

Okay I always refer to the frog in boiling water situation. I don't think you actually become more sensitive so to speak but your body has a more noticeable reaction for several reasons: 1) your immune system is no longer suppressed on a daily basis by the offending agent, so it is functioning better and can give a better reaction to attack and remove toxins from the body 2) because you now know what it feels like to feel well, you really notice when you feel bad. Like a frog if you slowly turn the heat up he'll sit in the water and boil to death, but if you throw a frog in hot water he'll fight to stay alive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    4. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    5. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,618
    • Most Online (within 30 mins)
      7,748

    R Johnson
    Newest Member
    R Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
    • Scott Adams
      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.