Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New At This And Coping With Doubts, Second Thoughts And Increased Stomach Pain...


Mica

Recommended Posts

Mica Rookie

I tested through Enterolab and was found to have elevated IGA antibodies at 12 with less than 10 being normal, my TTG levels were normal but I also have one of the main celiac genes and a gluten sensitivity gene as well. I immediately went gluten free. But then a few days later my doctor asked me to visit a gastroenterologist with her group for further testing. I, however, had to return to eating gluten to test with him. I refused the appointment and continued eating gluten free, telling myself that the Enterolab results, along with my frequent constipation, heartburn, flatulence, eczema, hives and hypothyroidism were enough.

Two weeks later....I started having doubts and caved! I went back to eating gluten with the intention of scheduling an appointment with the gastroenterologist. I ate normally for 2 weeks and realized how bad I felt!!!

Frequent headaches, flatulence, constipation and stomach pain which I can only describe as feeling like my insides were swollen. It seems like I became much more sensitive to gluten after just 2 weeks of eliminating it from my diet. Is this possible? I am starting to feel like my mind is playing tricks on me.

I am gluten free again for 2 days now...but I worry about more doubts in the future.

Sincerely,

Mica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



firegazing Newbie
It seems like I became much more sensitive to gluten after just 2 weeks of eliminating it from my diet. Is this possible? I am starting to feel like my mind is playing tricks on me.

I'm not diagnosed, but yes--I think this is completely possible!

I spent 2 months gluten-free and when I started to eat gluten again, I got sick like you wouldn't believe! Nausea, diarrhea, hands and feet so swollen I couldn't walk or make a fist, strange rashes, intense brain-fog, and so on.

If you feel that you need a doctor's confirmation in order to believe in yourself, maybe it is a good idea to go ahead and gluten yourself up again so that you can get a diagnosis. That's what I'm trying to do right now. I want objective evidence of my troubles.

ShayFL Enthusiast

It sounds like you have your answer. But if you think you will live in "doubt" forever even though you are feeling better, then gluten up and get tested.

Lockheed Apprentice

Okay I always refer to the frog in boiling water situation. I don't think you actually become more sensitive so to speak but your body has a more noticeable reaction for several reasons: 1) your immune system is no longer suppressed on a daily basis by the offending agent, so it is functioning better and can give a better reaction to attack and remove toxins from the body 2) because you now know what it feels like to feel well, you really notice when you feel bad. Like a frog if you slowly turn the heat up he'll sit in the water and boil to death, but if you throw a frog in hot water he'll fight to stay alive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      328

      Terrible Neurological Symptoms

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      8

      Second chance

    3. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    4. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    5. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,670
    • Most Online (within 30 mins)
      7,748

    PamelaV
    Newest Member
    PamelaV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
    • knitty kitty
      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues.    As more B12 becomes available, the body will adjust how much folate to absorb from the diet.  Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver.  (Avoid spinach due to high oxalates and risk of kidney stone formation.). Folate level should be checked in future just in case Celiac malabsorption affects it.   Thiamine deficiency can be found with B12 deficiency.  B12, Pyridoxine B6, and Thiamine B1 all are involved with nerve health and nerve transmission.  These three vitamins together to improve nerve health better than just one of them alone.  They relieve neuropathy and pain, and improve brain function.  You're being an amazing mom for advocating for your daughter's health!  Hurrah! Interesting Reading: B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pmc.ncbi.nlm.nih.gov/articles/PMC6930825/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Thiamin metabolism in vitamin B6 or vitamin B12 deficient rats https://pubmed.ncbi.nlm.nih.gov/859042/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/#:~:text=The neurotropic B vitamins -B1,neuropathies [3%2C 4].
    • Scott Adams
      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
    • Heatherisle
      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.