Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Sensitivity Levels Go Down?


dilettantesteph

Recommended Posts

dilettantesteph Collaborator

For those of you who have been gluten free for a long time, do you find that you no longer have as many issues with things like cross contamination because, perhaps, the amount of gluten that you need for a reaction has gone up? I'm hoping. It seems like the symptoms get less severe as I get more healed. Comments?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

From the many posts on the topic, I'd say most people have a greater sensitivity to gluten as time goes by on the gluten-free diet, such that less and less can cause the same or worse symptoms. But, as long as you don't ingest gluten, you can look forward to better health as the body heals.

spunky Contributor

A published, well-known celiac researcher/author once told me in correspondence that after some time, his reactions to accidental ingestion of gluten became less severe and he was only mildy ill from them by that time.

I was only a few months gluten free at the time, and didn't think to ask how much time it took for him to get that way...I was into thinking in terms of weeks or months, but since then, considering all things gluten, I'm more into thinking in terms of YEARS... I've learned a lot through trial and error since that time.

I've been gluten free for 2 1/2 years now... I'm so careful I'm flatout paranoid... never take chances, never eat out, now, or eat anything from anyplace but my own kitchen, because the last time I got it by accident, apparently... was last Christmas-time while eating salad from a buffet for my mom's birthday...I mean, I didn't see any gluten and thought I'd steared clear, but a day or two afterward I was pretty sick, and it lasted the entire month of January...totally miserable and I thought I'd never get well again... like the worst ever (just as I was about two months shy of 2 whole years gluten free)... so... if / when it gets better... I've heard from a reliable source that it does eventually improve, but didn't know enough to ask him exactly how long that takes!!!! Now I think I'm too paranoid to find out through my own trial and error.

I still dream I get glutened... often.

gfp Enthusiast
From the many posts on the topic, I'd say most people have a greater sensitivity to gluten as time goes by on the gluten-free diet, such that less and less can cause the same or worse symptoms. But, as long as you don't ingest gluten, you can look forward to better health as the body heals.

This is true in my experience too.

I react more quickly and it feels more violently though I think a part of this is psychological.

As Rice guy say's your general heath gets better and better so when you do slip up you have further to fall.

It might sound negative but its not really, I think I'm just as ill but it FEELS worse because I'm used to good health.

samcarter Contributor

It gets worse. Sorry to break it to you. I have been gluten-free only a month, and right now am feeling horrid--headache, nausea--from getting glutened with, I suspect, a leftover energy bar my kid handed me while we were in the car on Monday. I was distracted by driving and ate it without thinking. D'OH! It wasn't even wheat-based, but oat-based, and had malt in it. In the past, I wouldn't have felt this bad after a whole bowl of pasta with bread--maybe tired, lethargic, but not with a pounding headache and queasy stomach. My sinuses are getting into play, as well.

I think, as you heal, your body realizes how it's SUPPOSED to feel. We're so used to feeling crummy that when we feel good, and then we get glutened, as a previous poster said, it's that much farther to fall.

Jestgar Rising Star

After two years my reactions are less severe. I think the answer is "it depends on you".

gfp Enthusiast
After two years my reactions are less severe. I think the answer is "it depends on you".

Serious question ...

is that ALL reactions or specifics.

(I should maybe have said, the one reaction I no longer get almost EVER is migranes.... and VERY rarely acid reflux but the poop is proably more so or the same)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Phyllis28 Apprentice

Everyone is different. I know when I have been accidently glutened but the symptoms are mild. If I get accidently glutened several days in a row I get progressivley sicker.

Jestgar Rising Star
Serious question ...

is that ALL reactions or specifics.

(I should maybe have said, the one reaction I no longer get almost EVER is migranes.... and VERY rarely acid reflux but the poop is proably more so or the same)

I don't have clear answer for you. I react to gluten and soy. A little of either and I get brain fog and fatigue. More soy leads to digestive problems, more gluten leads to headaches.

I eat gluten-free foods 'made in a facility...' with no problems, I only have cc issues when I eat out, and I don't know if it's soy or gluten.

gfp Enthusiast
I don't have clear answer for you. I react to gluten and soy. A little of either and I get brain fog and fatigue. More soy leads to digestive problems, more gluten leads to headaches.

I eat gluten-free foods 'made in a facility...' with no problems, I only have cc issues when I eat out, and I don't know if it's soy or gluten.

I also noticed that the delay seems to have become 'longer' for intestinal reactions though the brain fog starts off pretty quickly.

The brain fog is so subtly creeping in its hard to say exactly when it starts.... I just feel a little out of it.. then a bit more then more.

Often its my really good friends spot it first....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.