Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

If He Has Celiac Does He Need An Epi-pen?


Amyleigh0007

Recommended Posts

Amyleigh0007 Enthusiast

I am just venting to people who understand.... In the school I work, the school nurse sends out a list of all students who have medical issues so everyone on staff is aware. It's a pretty detailed list. My son was on the list (he attends the same school) and all it said was Celiac disease. There was no mention of his food allergies or his strict diet. So I go to her and ask her is she could please add his food allergies and that he is on a very strict diet and should not eat anything unless it's brought from home. She says, "Aren't Celiac disease and food allergies the same thing? I thought if I put Celiac disease that covered it all". She also asked me if he has Celiac if he would need an Epi-pen. Is it wrong of me to expect the medical community to have a basic knowledge of Celiac disease? I even gave her a two page letter at the start of school that explained Celiac and his food allergies. I like her and she is a very nice person but come on!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
I am just venting to people who understand.... In the school I work, the school nurse sends out a list of all students who have medical issues so everyone on staff is aware. It's a pretty detailed list. My son was on the list (he attends the same school) and all it said was Celiac disease. There was no mention of his food allergies or his strict diet. So I go to her and ask her is she could please add his food allergies and that he is on a very strict diet and should not eat anything unless it's brought from home. She says, "Aren't Celiac disease and food allergies the same thing? I thought if I put Celiac disease that covered it all". She also asked me if he has Celiac if he would need an Epi-pen. Is it wrong of me to expect the medical community to have a basic knowledge of Celiac disease? I even gave her a two page letter at the start of school that explained Celiac and his food allergies. I like her and she is a very nice person but come on!!!!

No, you are not wrong to expect the medical community to have a basic knowledge of Celiac disease. The two groups of people who should have the best understanding of it - the medical community and the food service industry - are among the least knowledgeable people out there. (Yes, I know there are exceptions.) It's just a shame. Let's hope she gets on the bandwagon soon!

April in KC Apprentice

Yikes. Sorry. Yes, I'd expect a nurse to be familiar...or get familiar really quickly.

(Our kids seem to have some similar issues...my oldest has Celiac, EGE, and allergies to peanut, pork, soy, and oranges.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Stegosaurus replied to HectorConvector's topic in Related Issues & Disorders
      345

      Terrible Neurological Symptoms

    2. - Stegosaurus replied to Kwinkle's topic in Related Issues & Disorders
      9

      A question - eggs & dairy

    3. - knitty kitty replied to Stegosaurus's topic in Super Sensitive People
      1

      trehalose intolerance

    4. - knitty kitty replied to glucel's topic in Super Sensitive People
      12

      iron digestibility

    5. - knitty kitty commented on Scott Adams's article in Latest Research
      3

      Do Body Fat Patterns Influence Celiac Disease Risk? New Study Explores the "Immunological Shield" Theory (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,988
    • Most Online (within 30 mins)
      10,442

    julu
    Newest Member
    julu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Stegosaurus
      I have tons of food sensitivities from a 4 year stint of dysbiosis and resulting leaky gut.  I don't have nerve issues.  But boy do I have painful duodenal inflammation and fatigue.  I've steadily lost weight and got down to 109 lb (I'm 5'10" and in good form at 140 lb).  It's taken 4 months, but I finally have been able to gain a little, up to 119 lb.  I have to get healthier before I can withstand killing off the dysbiosis. I have the MFTHR gene, so I need the methylated B vitamins at high doses.  
    • Stegosaurus
      After years of no dairy, I now can have goat & sheep (both are A2/A2) butter and aged cheese, A2/A2 cow aged cheese, and yogurt after long ferment (36 hr).  Such a pleasure!
    • knitty kitty
      @Stegosaurus, Switching from a Keto diet to a diet high in carbohydrates increases the metabolic demand for thiamine to turn the fats, carbohydrates and proteins into energy.   Insufficient thiamine in the digestive tract can lead to SIBO and systemic yeast infection (autobrewery syndrome, Candida overgrowth).  Thiamine has both antibacterial and antifungal properties.   Trehalose is two molecules of sugar.  Thiamine is needed to metabolize carbohydrates like these.    Thiamine acts as a signal for the increased production of trehalase, the enzyme that breaks down trehalose.  I wonder what the thiamine levels of the test subjects in this study were prior to the experiment.   https://pubmed.ncbi.nlm.nih.gov/18777247/   Fungi (like Saccharomyces boulardii) often pair with bacteria that can make its own thiamine.  In a state of plentiful thiamine, thiamine signals for trehalase production, thus improving tolerance.     Role of fungal trehalose and bacterial thiamine in the improved survival and growth of the ectomycorrhizal fungus Laccaria bicolor S238N and the helper bacterium Pseudomonas fluorescens BBc6R8 https://pubmed.ncbi.nlm.nih.gov/23766226/#:~:text=We investigated the identity of,the fungal growth in vitro. The role of trehalose in the global spread of epidemic Clostridium difficile https://pmc.ncbi.nlm.nih.gov/articles/PMC6546318/   I wonder if taking more Thiamine in the form Benfotiamine would increase your trehalase production and improve your intolerance to trehalose.   Keep us posted on your progress!
    • knitty kitty
      @glucel, Yes, most doctors prefer to prescribe pharmaceuticals than delve into vitamins because they aren't educated about the health impact vitamins and minerals can make in medical school. Thiamine, especially Benfotiamine, has been shown to be protective to the kidneys.  Benfotiamine improves kidney function!  Especially in people on dialysis.   Thiamine and Benfotiamine are safe and nontoxic even in high doses!  PLEASE Read! Prevention of Incipient Diabetic Nephropathy by High-Dose Thiamine and Benfotiamine  https://diabetesjournals.org/diabetes/article-abstract/52/8/2110/13835/ Benfotiamine Protects against Peritoneal and Kidney Damage in Peritoneal Dialysis https://pmc.ncbi.nlm.nih.gov/articles/PMC3083313/ Prevention of incipient diabetic nephropathy by high-dose thiamine and benfotiamine https://pubmed.ncbi.nlm.nih.gov/12882930/ If more than half your plate is carbohydrates, you need more Thiamine!  High carbohydrate diets induce thiamine because as the carbohydrate load us increased, an increased amount of thiamine is needed to process them.  I have been taking high dose thiamine as thiamine hcl and Benfotiamine for over ten years.  I have not had any bad experiences with it.   I no longer have any symptoms that reflect type two diabetes.   Doctors can't profit from prescribing vitamins because they can't be patented.  They profit from pharmaceuticals and medical procedures necessitated by health conditions that could be remedied, or at least improved, with essential vitamins and minerals!   Don't fear thiamine!  Do discuss the benefits with your doctor.  Ask if you can take 300 mg Benfotiamine in his office under medical supervision if you're nervous.  Most people have improved health within a short period of time.  You've already seen improvement with low dose thiamine hcl.  Jump in with both feet!  
    • Known1
      I found credible scientific evidence from The World Heath Organization, pertaining to nutrients in drinking-water. There are several sections within the paper regarding nutrient depleted water (aka RO water)  Below is a small sample from the PDF which is linked further below. The possible adverse consequences of low mineral content water consumption are discussed in the following categories: • Direct effects on the intestinal mucous membrane, metabolism and mineral homeostasis or other body functions. • Little or no intake of calcium and magnesium from low-mineral water. • Low intake of other essential elements and microelements. • Loss of calcium, magnesium and other essential elements in prepared food. • Possible increased dietary intake of toxic metals. I highly recommend downloading the PDF and reviewing it for yourself. https://www.who.int/publications/i/item/9241593989
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.