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If He Has Celiac Does He Need An Epi-pen?

Amyleigh0007

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Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I am just venting to people who understand.... In the school I work, the school nurse sends out a list of all students who have medical issues so everyone on staff is aware. It's a pretty detailed list. My son was on the list (he attends the same school) and all it said was Celiac disease. There was no mention of his food allergies or his strict diet. So I go to her and ask her is she could please add his food allergies and that he is on a very strict diet and should not eat anything unless it's brought from home. She says, "Aren't Celiac disease and food allergies the same thing? I thought if I put Celiac disease that covered it all". She also asked me if he has Celiac if he would need an Epi-pen. Is it wrong of me to expect the medical community to have a basic knowledge of Celiac disease? I even gave her a two page letter at the start of school that explained Celiac and his food allergies. I like her and she is a very nice person but come on!!!!

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home-based-mom Contributor
home-based-mom
Posted
I am just venting to people who understand.... In the school I work, the school nurse sends out a list of all students who have medical issues so everyone on staff is aware. It's a pretty detailed list. My son was on the list (he attends the same school) and all it said was Celiac disease. There was no mention of his food allergies or his strict diet. So I go to her and ask her is she could please add his food allergies and that he is on a very strict diet and should not eat anything unless it's brought from home. She says, "Aren't Celiac disease and food allergies the same thing? I thought if I put Celiac disease that covered it all". She also asked me if he has Celiac if he would need an Epi-pen. Is it wrong of me to expect the medical community to have a basic knowledge of Celiac disease? I even gave her a two page letter at the start of school that explained Celiac and his food allergies. I like her and she is a very nice person but come on!!!!

No, you are not wrong to expect the medical community to have a basic knowledge of Celiac disease. The two groups of people who should have the best understanding of it - the medical community and the food service industry - are among the least knowledgeable people out there. (Yes, I know there are exceptions.) It's just a shame. Let's hope she gets on the bandwagon soon!

April in KC Apprentice
April in KC
Posted

Yikes. Sorry. Yes, I'd expect a nurse to be familiar...or get familiar really quickly.

(Our kids seem to have some similar issues...my oldest has Celiac, EGE, and allergies to peanut, pork, soy, and oranges.)

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    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

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    • Rogol72
      Could this be a new intolerance

      By Rogol72 · Posted

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
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      By Scott Adams · Posted

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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