Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Many Diets!

MollyBeth

Recommended Posts

MollyBeth Contributor
MollyBeth
Posted

I just joined this site yesterday...and I keep reading under posters names about their symptoms and what kind of diets they are on. I'm just feeling so overwhelmed. I'm trying to research all this food stuff... I'm not going to start my diet until after October 10th when I have an endoscopy planned. The doc is going to do a biopsy. My blood tests came back negative, but I identify with so many symptoms I've read online and my GI doctor thinks I may have it despite the blood test results. Now I'm reading that the biopsy results can come back negative too and I can still benefit from the diet. It's hard for me not to just start the diet now... But now I'm reading that there is more than just Gluten free. Does anyone have any suggestions on how to reasearch these diets and what symptoms can go with what diet? When I do start should I just start with the Gluten free and take it from there? Like trial and error? Should i join a group? Are there any upstate New Yorkers on here that can direct me to some sort of support group??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted
I just joined this site yesterday...and I keep reading under posters names about their symptoms and what kind of diets they are on. I'm just feeling so overwhelmed. I'm trying to research all this food stuff... I'm not going to start my diet until after October 10th when I have an endoscopy planned. The doc is going to do a biopsy. My blood tests came back negative, but I identify with so many symptoms I've read online and my GI doctor thinks I may have it despite the blood test results. Now I'm reading that the biopsy results can come back negative too and I can still benefit from the diet. It's hard for me not to just start the diet now... But now I'm reading that there is more than just Gluten free. Does anyone have any suggestions on how to reasearch these diets and what symptoms can go with what diet? When I do start should I just start with the Gluten free and take it from there? Like trial and error? Should i join a group? Are there any upstate New Yorkers on here that can direct me to some sort of support group??

Molly Beth,

Welcome to this site. Yes, it is all quite overwhelming, and we have all been there.

Stay on your regular diet until after the biopsy, for sure. Once you are finished with the biopsy, and even before you get your results, it is fine to start the diet as a trial.

In the beginning, my advice is to just try going gluten free, plus avoid any foods that you know you are sensitive to. There is a nice percentage of people that do very well on just that one restriction, and hopefully you will be one of them!!

It does take awhile to respond to the diet, and you could very well even get worse initially, or have lots of ups and downs that don't make sense. But some people have mostly positive response and right away! Again hope you are one of those.

Then if you really don't improve in a few weeks, usually what is recommended is to drop out dairy. This is due to the inability to digest lactose secondary to intestinal damage. Another problem that often crops up is soy.

If that doesn't do the trick, from there it gets more complicated. It may be more food allergies, intolerances due to intestinal damage and digestion problems, or some other metabolic things in groups of foods, etc. My suggestion is don't try to understand all of these things right up front. Just take it step by step!

One other thing, there is a steep learning curve initially when trying to learn to live gluten-free. Focus on learning the ropes on that for the first step, and reading and collecting lists of safe food alternatives, etc., could keep you very busy until after your endoscopy!!

Keep us posted.

MollyBeth Contributor
MollyBeth
Posted
  • Author
One other thing, there is a steep learning curve initially when trying to learn to live gluten-free. Focus on learning the ropes on that for the first step, and reading and collecting lists of safe food alternatives, etc., could keep you very busy until after your endoscopy!!

Thank you so much! My head feels like it's spinning with all this information. You know how it is when you keep going over things in your head...

People in my family keep telling me..."you don't have celiac" So then I start to second guess myself, but I know I'm not crazy!

Thanks again for the advice. You've really helped set my mind at ease!

mftnchn Explorer
mftnchn
Posted

welcome! ;)

ShayFL Enthusiast
ShayFL
Posted

Great advice from mftnchn. :)

Another idea is to use the KISS method. AVOID common troublemakers: Dairy, Soy, Gluten, Corn, Peanuts

Eat Simple foods: Plain meats, Veggies, Fruits, Nuts, Eggs, Rice, Potatoes, Beans, Oils. Buy them plain and dress them up yourself with pure spices (avoid mixes as they usually contain gluten).

Then after you start feeling BETTER....try adding stuff back in like dairy and then soy.

If ALL your tests come out NEG (like mine did), and you are felling BETTER, you can decide if you want to challenge gluten. That challenge was made for me by CC and I reacted poorly. I will not eat gluten again knowingly.

Best of luck to you!

happygirl Collaborator
happygirl
Posted

Keep in mind that there are many others on here who only have a problem with gluten - having a problem with one food does not necessarily equal problems with other foods.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748
    Naner4
    Newest Member
    Naner4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.