Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Many Diets!

MollyBeth

Recommended Posts

MollyBeth Contributor
MollyBeth
Posted

I just joined this site yesterday...and I keep reading under posters names about their symptoms and what kind of diets they are on. I'm just feeling so overwhelmed. I'm trying to research all this food stuff... I'm not going to start my diet until after October 10th when I have an endoscopy planned. The doc is going to do a biopsy. My blood tests came back negative, but I identify with so many symptoms I've read online and my GI doctor thinks I may have it despite the blood test results. Now I'm reading that the biopsy results can come back negative too and I can still benefit from the diet. It's hard for me not to just start the diet now... But now I'm reading that there is more than just Gluten free. Does anyone have any suggestions on how to reasearch these diets and what symptoms can go with what diet? When I do start should I just start with the Gluten free and take it from there? Like trial and error? Should i join a group? Are there any upstate New Yorkers on here that can direct me to some sort of support group??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted
I just joined this site yesterday...and I keep reading under posters names about their symptoms and what kind of diets they are on. I'm just feeling so overwhelmed. I'm trying to research all this food stuff... I'm not going to start my diet until after October 10th when I have an endoscopy planned. The doc is going to do a biopsy. My blood tests came back negative, but I identify with so many symptoms I've read online and my GI doctor thinks I may have it despite the blood test results. Now I'm reading that the biopsy results can come back negative too and I can still benefit from the diet. It's hard for me not to just start the diet now... But now I'm reading that there is more than just Gluten free. Does anyone have any suggestions on how to reasearch these diets and what symptoms can go with what diet? When I do start should I just start with the Gluten free and take it from there? Like trial and error? Should i join a group? Are there any upstate New Yorkers on here that can direct me to some sort of support group??

Molly Beth,

Welcome to this site. Yes, it is all quite overwhelming, and we have all been there.

Stay on your regular diet until after the biopsy, for sure. Once you are finished with the biopsy, and even before you get your results, it is fine to start the diet as a trial.

In the beginning, my advice is to just try going gluten free, plus avoid any foods that you know you are sensitive to. There is a nice percentage of people that do very well on just that one restriction, and hopefully you will be one of them!!

It does take awhile to respond to the diet, and you could very well even get worse initially, or have lots of ups and downs that don't make sense. But some people have mostly positive response and right away! Again hope you are one of those.

Then if you really don't improve in a few weeks, usually what is recommended is to drop out dairy. This is due to the inability to digest lactose secondary to intestinal damage. Another problem that often crops up is soy.

If that doesn't do the trick, from there it gets more complicated. It may be more food allergies, intolerances due to intestinal damage and digestion problems, or some other metabolic things in groups of foods, etc. My suggestion is don't try to understand all of these things right up front. Just take it step by step!

One other thing, there is a steep learning curve initially when trying to learn to live gluten-free. Focus on learning the ropes on that for the first step, and reading and collecting lists of safe food alternatives, etc., could keep you very busy until after your endoscopy!!

Keep us posted.

MollyBeth Contributor
MollyBeth
Posted
  • Author
One other thing, there is a steep learning curve initially when trying to learn to live gluten-free. Focus on learning the ropes on that for the first step, and reading and collecting lists of safe food alternatives, etc., could keep you very busy until after your endoscopy!!

Thank you so much! My head feels like it's spinning with all this information. You know how it is when you keep going over things in your head...

People in my family keep telling me..."you don't have celiac" So then I start to second guess myself, but I know I'm not crazy!

Thanks again for the advice. You've really helped set my mind at ease!

mftnchn Explorer
mftnchn
Posted

welcome! ;)

ShayFL Enthusiast
ShayFL
Posted

Great advice from mftnchn. :)

Another idea is to use the KISS method. AVOID common troublemakers: Dairy, Soy, Gluten, Corn, Peanuts

Eat Simple foods: Plain meats, Veggies, Fruits, Nuts, Eggs, Rice, Potatoes, Beans, Oils. Buy them plain and dress them up yourself with pure spices (avoid mixes as they usually contain gluten).

Then after you start feeling BETTER....try adding stuff back in like dairy and then soy.

If ALL your tests come out NEG (like mine did), and you are felling BETTER, you can decide if you want to challenge gluten. That challenge was made for me by CC and I reacted poorly. I will not eat gluten again knowingly.

Best of luck to you!

happygirl Collaborator
happygirl
Posted

Keep in mind that there are many others on here who only have a problem with gluten - having a problem with one food does not necessarily equal problems with other foods.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.