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To All The Type One Diabetics Out There

KristaleeJane

By KristaleeJane
in Related Issues & Disorders

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KristaleeJane Contributor
KristaleeJane
Posted

Hello Everyone.....

My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago).

Even though she has absolutly NO symptoms (lucky girl) she went ahead and got her doc to do the blood work, her Iga or ttg not sure which one she had done, came back 86. Mine was 96, so more than likely she has celiac, next will be the biopsy I am assuming to confirm this dx. My question is she has always had issues with her blood sugars being out of wack, and also has polycystic ovary syndrome.

Could the celiac be affecting her sugar levels????

and be contributing to her constant high blood pressure & kidney problems.

Any advice appreciated

thanks

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~alex~ Explorer
~alex~
Posted

Hi,

Celiac disease definitely could have been effecting your sister's blood sugars. I was diagnosed with type I after celiac so I don't have much experience with undiagnosed celiac affecting blood sugars but whenever I am glutened my blood sugar gets pretty erratic. I would bet that once she has been on the gluten-free diet for awhile and her villi heal there will be a good chance her blood sugars will become more manageable and predictable. Also the gluten-free and diabetic diets are pretty complimentary so that should help her too. I'm not sure about the polycystic ovary syndrome or the kidney problems so hopeful someone else can speak to that.

elye Community Regular
elye
Posted

I have been type one diabetic for 35 years, and a diagnosed celiac for three. I have had tight blood sugar control for a number of years now, so I don't think that the celiac disease affected my blood sugars in the past....but NOW, when I am glutened, my blood sugar shoots up. It gives me added incentive to stay gluten-free, for sure!

As Alex has said, the diabetic diet goes very well with the gluten-free way of life...this is likely because there tends to be a limiting of carbohydrate while gluten-free (at least for me), which keeps blood sugars steady.

I'll bet your sister finds a new life of GREAT control once gluten-free..... :)

2kids4me Contributor
2kids4me
Posted

My son was diagnosed Type one at age 9 (2003) and celiac the following year. Erratic blood sugars were occuring for about 4 months prior to diagnosis ... his sister was diagnosed celiac first, then they tested Matt immediately - and confirmed by biopsy. His outward symptoms were not as pronounced as his sisters - yet he had way more damage to his villi on biopsy.

Going gluten free will likely help those erratcic readings.

The damaged villi are inflammed so the body is in a constant state fo trying to repair the damage.

Carbohydrates are absorbed in an "uneven fashion".....sometimes they are not absorbed well or the opposite effect "carb dumping" as they are absorbed too quickly...this is what can cause unexpected highs and lows in a diabetic.

Hope this helps.

RiceGuy Collaborator
RiceGuy
Posted
Hello Everyone.....

My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago).

Even though she has absolutly NO symptoms...

My question is she has always had issues with her blood sugars being out of wack, and also has polycystic ovary syndrome.

Could the celiac be affecting her sugar levels????

and be contributing to her constant high blood pressure & kidney problems.

Any advice appreciated

thanks

Well, I'd say she most definitely DOES have symptoms. Just not the ones we might expect as typical. Diabetes, infertility, kidney disease, and many other things are associated with Celiac Disease. Many don't get the classic weight loss and D.

Just take a look at this list of associated diseases and disorders:

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

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    • NanceK
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      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
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      By trents · Posted

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