Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mussels, Sunchokes, & Coconut Oil

mslee

By mslee
in Food Intolerance & Leaky Gut

Recommended Posts

mslee Apprentice
mslee
Posted

Since cutting so many foods out of my diet I've been trying some new things a couple have caused problems...

Last night I made clams and mussels bouillabaisse (it was mostly mussels they cost less)

Today I feel sick like never before, mostly very very weak and limp. Very weak, has anyone had this experience? Not vomiting or D, just very dizzy.

I bought them from wholefoods, talked to the fish guy he said they were good mussels and fresh, they tasted great. made them with celery/thin sliced carrot/water/white wine

The only allergic type reaction I have ever had was from eating sun-chokes (sunflower tubers) baked in coconut oil. My mouth & throat got swollen & I was itchy everywhere, became hard to breath. I took an antihistamine to calm it down and it helped.

Still not sure if it was the coconut or the sun-chokes that did it ...too afraid to test and find out.

Everything else seems to be more of an intolerance.

(I should probably be less adventurous at the grocery store but I've grown so tired of the same old same old.)

I made an allergist apt for next week to hope to find at least the worse offenders...

any tips on what exactly to request?

The staff did say the Dr is familiar with Celiac.

ok, crash time :(

Thanks!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

I got sick about 6 months ago after eating mussels in white wine/butter/salt only. I have not eaten them since.

Mtndog Collaborator
Mtndog
Posted

You may have developed an allergy to shellfish. A good friend of mine never had a problem and suddenly, ate lobster and had a similar experience to you. She can no longer eat shellfish.

It's good that you're going to see an allergist- I saw one about a year after I had gone gluten-free to rule out any allergies. Mine tested me for 40 allergies- all the major food allergens, environmental allergens. Of course, I was allergic to nothing (but intolerant to tons of stuff)!!!!!!! Go figure.

Hope you get some answers!

mslee Apprentice
mslee
Posted
  • Author

Thanks Shay!

I got some good food down and am feeling a little better.

I noticed some people said sulfates can be a problem, I barely ever drink wine because it usually makes me feel headachey after a few sips. I wonder if the natural sulfates in the wine could have caused problems.

LOL Though I'm in no hurry to consume mussels any time soon.

mslee Apprentice
mslee
Posted
  • Author
You may have developed an allergy to shellfish. A good friend of mine never had a problem and suddenly, ate lobster and had a similar experience to you. She can no longer eat shellfish.

It's good that you're going to see an allergist- I saw one about a year after I had gone gluten-free to rule out any allergies. Mine tested me for 40 allergies- all the major food allergens, environmental allergens. Of course, I was allergic to nothing (but intolerant to tons of stuff)!!!!!!! Go figure.

Hope you get some answers!

oh really tested positive for nothing!

That's what I figure will happen to me. But those last two food scares leave me needing some answers, it's too hard keeping nourished when everything makes you sick. I need to see a dietitian but feel I should know what foods I definitely cannot eat first.

Interesting about the shellfish allergy. My Mom and Sister have a ton of allergies, I was always the lucky one who didn't. haha jokes on me!

Thanks for the info!!!

purple Community Regular
purple
Posted

Shellfish are not healthy to eat. They have contaminants like mercury, chemicals, pesticides, bacteria, viruses parasites, etc... google it. They are designed to clean the waters of the above mentioned list.

Same like pigs and rats clean the earth. Pigs eat all that contaminated food and what not.

My dh and mil get sick when they eat oysters. Our waters are more contaminated today than ever before and now there are pharmaceuticals washed into the waters causing lots of havoc in marine animals.

Salt water and fresh are polluted, the "fish" can't keep up anymore. I would only eat fish like salmon from Alaska or Iceland to be safe. Farm raised fish are bad too. Sorry for this explanation. Could be why so many get sick and are allergic to shellfish or what they eat???

Open Original Shared Link

Open Original Shared Link

mslee Apprentice
mslee
Posted
  • Author
Shellfish are not healthy to eat. They have contaminants like mercury, chemicals, pesticides, bacteria, viruses parasites, etc... google it. They are designed to clean the waters of the above mentioned list.

Same like pigs and rats clean the earth. Pigs eat all that contaminated food and what not.

My dh and mil get sick when they eat oysters. Our waters are more contaminated today than ever before and now there are pharmaceuticals washed into the waters causing lots of havoc in marine animals.

Salt water and fresh are polluted, the "fish" can't keep up anymore. I would only eat fish like salmon from Alaska or Iceland to be safe. Farm raised fish are bad too. Sorry for this explanation. Could be why so many get sick and are allergic to shellfish or what they eat???

Open Original Shared Link

Open Original Shared Link

Thanks!

I know everything is gross now a days!

They were kinda a treat, something I used to eat back home but I'm probably just too sensitive to be eating risky seafood right now. Probably best to save indulging for vacation to Alaska or the Pacific North West. And don't have much desire to eat more now anyways! :lol:

I try to stick to small/ eco friendly fish who live in cold waters for omega 3 fatty acids & a quick snack.

allergy testing tomorrow.

thanks for the links!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elonwy Enthusiast
elonwy
Posted

My ex-boyfriend had a terrible reaction to Mussels once (no allergies, no other health issues). The GI at the ER said that mussels are the most common reaction causing shellfish. A lot of people can't tolerate mussels, whether it be the toxins or the fish themselves. I don't like shellfish because I can't deal with grit. Even the best washed shellfish has a little grit in it and I have the most sensitive teeth ever.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.