Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 4 Gluten Free

wsieving

Recommended Posts

wsieving Contributor
wsieving
Posted

So here we are day 4, DD got glutened today (she found a gerber puff somewhere off in a corner...*ugh*), but it was just proof positive for us that we are doing the right thing b/c later this evening she had diarrhea for the first time since going gluten-free. However, previous to that we have noticed a few changes. Firstly she is eating for the first time like a NORMAL toddler. She cleans her plate, eats snacks in between meals. This is the first time EVER for her. We are so thrilled. She is also drinking significantly less. We never thought her excessive drinking had anything to do with gluten intolerance, but it seems as tho it was. She used to live on a sippy cup, but never wanted to eat. Now it's the opposite. Anyone else experience this? She has been way less cranky too. We never realized how cranky she was before until now and she is so pleasant!

Also, now this is a weird one.... DD is almost 15 months old. In this time, she has NEVER drooled, and NEVER had a runny nose. Not one drip or drop. Suddenly today we caught her drooling AND she had a slight runny nose (this was before she got glutened). This seems like a strange effect. We always thought it was odd that she never drooled or had a runny nose, but never associated it with being gluten intolerant. Anyone else had a similar experience?

Thank all of you so much for your help along this journey. You have been such life savers!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

I wonder if Celiac can affect your mucous membranes? Curious to see what others say. I can say...now that I think of it that my eyes are not "dry" all of the time since going gluten-free. Had not really thought of it.

Tristan's Mama Newbie
Tristan's Mama
Posted

It's funny that you said that about the drooling and runny nose! Tristan never really drooled either, and would only have a runny nose when he had an ear infection, but the second set of tubes has cleared the ear infection problem for the past few months. But, since being gluten free, his nose has been running constantly! He hasn't been drooling though.

Tristan too has always lived on his fluids, he's always eaten somewhat normally, but drank excessively. He has been drinking a lot less since being gluten free.

tan2406 Newbie
tan2406
Posted

My DS was like your DS...not eating anything but living on fluids. He has only been gluten free for 2 weeks but he's already willing to try new foods and he's eating more. He used to live on grapes, crackers, soy milk and apple juice...since going gluten free, he's now trying so many more foods and eating so much more!

Not sure about the runny nose stuff. My DS had major problems with constant stuffy nose/runny nose and breathing problems from birth, so he had to have his adenoids and tonsils out and tubes done twice. I don't think I've noticed 'more' of a runny nose since going gluten free.

sugarsue Enthusiast
sugarsue
Posted

OK, this is really strange. My dd (6) was drooling when she was asleep just this week. I remember thinking how that was strange since I had never noticed her doing that before!

She had a big change with her eating too where she started eating a lot of food where she was not before. I too noticed a change right away. I'm glad you are seeing improvements!

Thank you for your post to me about my dd and her issues. I am going to look for hidden gluten and try to be even more careful!

Mommy2Ellie Rookie
Mommy2Ellie
Posted

Glad to hear everything is going so well!!! We are also on day 4, and already a difference! I definately agree with the mass eating (I've never seen my 16 month old eat this much!!!) and she too had an OBSESSION with her sippy cup. We haven't seen an improvment there yet, shes still drinking about 5-6 sippy cups per day, but hopefully that will ease off soon. She is also way more pleasent.

As for the runny nose and such, I know with our little one, yesterday she got extremely ill. So much so that we brought her into the pedi,. She had MASSIVE poops, but they were firm, not runny. I didn't think so much could come out of someone so little, and she had a runny nose and drooling, plus she was super miserable. The pedi said that its her "detox" perios. Everyone will have some form of it, but everyone is different. Ellie seemed to have it pretty bad, but shes already much better today. As for the poops, apparently it was everything that she normally couldn't digest. Now her belly is flat like a normally toddlers, and not all bloated and yucky looking.

Hope that helps!!!

wsieving Contributor
wsieving
Posted
  • Author

Wow!! A detox period? Thank you so much for that bit of information! I never had thought of that, but it sure makes sense!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


crittermom Enthusiast
crittermom
Posted

Wow, reading this and thinking back my DD used to be attached to a sippy cup too. Now, not so much. She drinks normally. Interesting...

MarsupialMama Apprentice
MarsupialMama
Posted

We also saw a HUGE improvement in eating - went from practically force feeding our daughter to not being able to feed her enough! She wasn't drinking from a sippy yet, but all she wanted to do was whine and nurse, whine and nurse some more. Her attitude changed from being a crank-head to a smiley happy child. I was amazed!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.