Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anemia & Iron Deficiency


debjocc

Recommended Posts

debjocc Newbie

Hi All,

I was diagnosed with Celiac in Sept. 04 through a blood test that my abdominal specialist gave me as a result of chronic diarrhea and malnutrition. After going on a gluten-free diet, my health improved drastically within 2 weeks, so I decided not to do the colonocsopy at that time. BTW, I also have diabetes type 1. When I went to see my internist recently, he was concerned that I am still anemic and iron deficient and suggested that I go back to my abdominal doc for an endoscopy and colonoscopy. OK, I have scheduled those for the end of this month.... Now my question(s): Is anemia an ongoing problem with Celiac? Do we ever recover from it? My bones or muscles seem to ache all the time and I am struggling with my new diet and resultant blood sugars. But overall, I really feel pretty good. I would like to hear what others have to say about their experiences with anemia and any of the above.

Thanks!

Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Most people do recover from the anemia, but others need a bit of extra help. I know that when I first went gluten-free I was feeling low. I don't have an official diagnosis, so I did not have doctors testing my various nutrient levels... but I had never been able to donate blood since my iron was always low. The doctors always said I was borderline anemic. <_<

Well after going gluten-free I started using a cast iron pan to make my scrambled eggs every morning. I would also cook my chicken in it occasionally for dinner. I was able to donate blood about 6 months into the diet! My iron was finally up to normal levels and has stayed up, even though I don't use the cast iron pan all the time anymore! The important thing with a cast iron pan is that it has to be new. It can't be an old one, or else it is most likely seasoned well with far to much gluten over the years! So that is one cheap iron booster. And it certainly can't hurt to try it. Just remember NEW pan.

Certainly have your doctor check all your nutrient levels, since there are supplements you can use, and some people might need shots at regular intervals. The gastro doctor should be able to help you in this area.

God bless,

Mariann

kvogt Rookie

I was anemic so I bought a 180 pill bottle of iron tablets. I took one a day til they were gone and got my blood back up to normal. I also recommend greens as they contain a lot of absorbable iron.

jenvan Collaborator

I was not able to up my iron with pills and had an iron infusion--basically you sit with an iv in your arm, pumping you full of iron for 4 to 6 hours. This is always an option if you are not able to absorb or maintain levels with pills/foods etc. this procedure is done by a hematologist.

shar5 Newbie

I was terribly anemic and took pills for about 6 months, and by then had begun to heal to the point where my iron levels were HIGH :o . So I stopped taking them and haven't needed them since. I still do, however, take a B12 injection and I found some liquid vitamins that are DYNAMITE.

Hope this helps.

Sharon

debjocc Newbie

:D thanks for your input guys! My doctor has finally presribed some iron pills, so after listening to what you had to say, here's to hoping that these pills will do the trick. I am assuming that once I get my bloodwork in good condition that maybe I won't feel as much muscle and bone pain. I am also trying to establish a good exercise routine as I have noticed that once I stretch and work out a bit, I feel less pain in my muscles (for a while anyway). Thanks for your help!

deb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.