Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results...i'm Confused!

Baddfrog

Recommended Posts

Baddfrog Rookie
Baddfrog
Posted

Hello,

My GP Doc doesn't have much experience with Celiac, so he ran a blood test for me, but when I got confusing results he wasn't sure what was up. Can anyone help me with this please?

These were my test results

Gliadin IgG Antibodies <10 U/ml

Gliadin IgG Antibodies <5 U/ml

tTg IgA Auto = 62.5 U/ml

tTg IgG Auto < 6 U/ml

I'm confused...I've heard you can have false positives with tTg-IgA but 62.5 seems a bit high for a false positive...any thoughts?

Also, if it isn't Celiac is this symptomatic of Crohn's or Liver issues or....anything.

Thank you so much for your help,

Thanks,

Scott

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Hi Scott,

We need to see "references ranges" to help you. There is always a possibility of a false POS and a false NEG with ANY test. Why? Individual biochemical makeup and proficiency of the lab technician running your labs.

Depending on the range, that is a high number from the ranges I have seen.

With those results, you should request to see a GI doctor and inquire about a biopsy.

Your doctor seems receptive.....so ask if he will run a Celiac genetic test. It doesnt dx Celiac, but is a piece to the puzzle.

Baddfrog Rookie
Baddfrog
Posted
  • Author

Sorry about that.

the reference ranges are

AGA IgA < 5 U/ml

AGA IgG < 10 U/ml

tTg IgA < 4 U/ml

So my AGA numbers seem Negative...but my tTg IgA seems strongly positive.

What is the Celiac genetic test...I'm not familiar with that.

ShayFL Enthusiast
ShayFL
Posted

They take either blood or a cheek cell swab and then test for DQ2 and DQ8 genes. Those are the two genes associated with Celiac.

You really should see a specialist next (GI Doctor).

I am assuming you have symptoms and that led you to the doctor and a Celiac test to begin with.

Even if EVERYTHING came back NEG (which yours didnt) a trial of a gluten-free diet can give startling results (as it did for me). I am not Celiac, but I AM gluten intolerant. No doubt about it. My bi-monthly migraines that plagued me for years went away within 2 weeks of the diet and have never come back. My trips to the bathroom are fewer and perfectly normal. And other symptoms are improving as well.

mftnchn Explorer
mftnchn
Posted

Scott, this is a positive, so yes, biopsy is next. Dom't go gluten free until after the biopst though. You might do some research on GI's, not all are this best with celiac.

happygirl Collaborator
happygirl
Posted

The tTG is one of the best tests out there for Celiac....if that's positive, there is a very, very high likelihood that you have Celiac. You don't have to be positive on all of them to have Celiac. Having a positive tTG is more diagnostic (Celiac wise) than only a positive AGA IgA or AGA IgG.

Some good, reputable websites, besides this one are:

www.celiacdisease.net

www.celiacdiseasecenter.columbia.edu

www.celiac.org

www.celiaccentral.org

They all have info on testing, as well. Good luck.

Baddfrog Rookie
Baddfrog
Posted
  • Author

Thank you all for your input.

I thankfully got an appt with a GI, based on a cancellation, for tomorrow morning!!...and he is the only one in Akron listed on celiac.com!! I can't help but speculate on some Divine intervention there.

I want to make sure that I ask the right questions.

Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mom4life Newbie
mom4life
Posted

Hi

i am new to Celiacs and blogging! So please be patient with me. I went into doc after a month of being sick for no reason. I tested positive on one of the blood tests(waiting for call back from doc to tell me which one). I was wondering why the advice was to wait to go gluten free until after the biopsy? Won't the damage be done already? My appt with GI specialist is not until nov. 11!! I don't really want to wait that long to feel better! Any advice? I am spending my day surfing these sights for information. Thank goodness for technology!!

leadmeastray88 Contributor
leadmeastray88
Posted
Hi

i am new to Celiacs and blogging! So please be patient with me. I went into doc after a month of being sick for no reason. I tested positive on one of the blood tests(waiting for call back from doc to tell me which one). I was wondering why the advice was to wait to go gluten free until after the biopsy? Won't the damage be done already? My appt with GI specialist is not until nov. 11!! I don't really want to wait that long to feel better! Any advice? I am spending my day surfing these sights for information. Thank goodness for technology!!

Hi mom4life,

Being gluten free for even a few days can make your biopsy turn out to be a false negative. The villi in many people's intestines can heal quickly so I wouldn't take any chances. The biopsy is the 'gold standard' for a Celiac diagnosis so I would urge you to keep eating gluten until the biopsy - trust me, it'll be worth it! That way, you'll never have a doubt in your mind years later that you're doing the right thing.

Hang in there! You're on the right track.

Good luck!

-Kim

cat3883 Explorer
cat3883
Posted

Is that Akron Ohio you are from? If so I am from that area and am newly diagnosed. There is a 4 hour seminar at the Mustard Seed this Saturday from noon-4 in Fairlawn. I am curious to see who you doc is. Mine is Dr Vencat.

Baddfrog Rookie
Baddfrog
Posted
  • Author
Is that Akron Ohio you are from? If so I am from that area and am newly diagnosed. There is a 4 hour seminar at the Mustard Seed this Saturday from noon-4 in Fairlawn. I am curious to see who you doc is. Mine is Dr Vencat.

Hey Cat

Dr. Vencat is my Doc and I just met him today....I'm going in for a biopsy on Wednesday to confirm Celiac. I'm planning on going to the Mustard Seed on Saturday. How fortuitous (pretty sure I've never written that word before) is the timing on that!

I just read an article in the Beacon regarding a restaurant called the Bistro of Green that is serving gluten free dishes. I'm going to check that out once the biopsy is done.

What do you think of Dr. Vencat? Has he done a good job for you?...and how long have you been diagnosed? biopsy?

-Scott

cat3883 Explorer
cat3883
Posted

OMG My biopsy is Wednesday!! I was diagnosed about 3 weeks ago. He could tell by my bloodwork and then did the genetic test and it came back positive. He is a wonderful easy to talk to doctor. My husband and friends have gone to them for their colonoscopy. I am also having one of those done on Wed. since I am 49. I am the "overweight" celiac patient. I gained about 30 pounds over the last few years and it wont come off. I strength train and do cardio 5 days a week and my weight just wont budge. I also have depression, migraines, and fatigue. My family physician ran all kinds of bloodwork on me and that is where this celiac diagnosis began. You are in very good hands. I hope the seminar at the Mustard Seed is very informative because as you know I must start the gluten free diet on Wed!!!

There is also a place on Cleveland Ave in North Canton called the Rasin Rack that has alot of gluten free products. Good luck on Wednesday. And maybe we will meet on Saturday.

Cheryl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.