Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediatric Gastro.


Trust Birth

Recommended Posts

Trust Birth Rookie

We got my son a referral to a Pediatric Gastro. My GP says it's obvious at the very least my son has a gluten intolerance but could quite possibly have celiac. I just want to make sure what the full celiac panel is and how much I have to gluten him for the test. Can anyone give me reliable information or point me in the right direction?

Thanks

Cinthia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Some say that the diet should be pretty glutened everyday for a good three months. 3 or so servings of a gluten food a day. Depending on his age he may get a false negative anyway (common in children under 6).

Here is the panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

You can always try a gluten-free diet to see if you get a POS result.

Trust Birth Rookie

Thanks,

I am certain he has a gluten intolerance as we've had him off gluten for a few months now. I am just concerned he may have something else going on like colitis or chron's. But for sure the gluten is a problem, as is; sugar, dairy, soy, and corn. I didn't know about the false negative in children under 6. WOW 3 or 4 months! I'm not sure if I want to do that! He's a very sick little boy when on gluten. I thought a couple of weeks for the test.....

*sigh* Now I'm not so sure I want to go through this. His IBS is SO very bad when on gluten, as is the DH. He looks so healthy now but every now and again has a problem with IBS. I just get worried there is an underlying cause I'm missing. kwim?

The GP is very supportive. He told me even if everything comes back negative I need to keep him off the things he's been reacting to in his diet, as obviously it's a problem. He sent him for a full blood work up and urinalysis. So we'll see what that yields. I wanted his sugar tested to be sure he doesn't have JD.

Thanks for all the info!

ShayFL Enthusiast
I am certain he has a gluten intolerance as we've had him off gluten for a few months now.

I would be shocked if you could get a POS now. He has been gluten-free too long. If it were me and mine, I wouldnt go through the Celiac tests. Just me. You have to do what feels right for you and yours.

The periodic IBS could be due to CC. It happens. Even when you are so very careful. Manufacturers change formulations, toothpaste, lotions, shampoo, dog food. CC can show up in the least expected places. :(

hallowedb Newbie

Can an infant be tested with a cheek swab to see if he/she even carries the gene for the celiac? I've asked my grandson's Dr. about it, but never really get a good answer. I know that adults and children can be tested this way, but not sure about infants.

Mother of Jibril Enthusiast

Yes... babies can be tested with a cheek swab. Depending on my results from Enterolab, I might do this with my three-year-old and seven-month-old. The instructions tell you how to do it with young children.

ek327 Newbie

If the DH breaks out quickly back on gluten, you could have a derm do a skin biopsy to "prove" the diagnosis without having to be on the gluten long enough for GI to be damaged.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.