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Fatigue & Exhaustion

genuis boy

By genuis boy
in Related Issues & Disorders

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genuis boy Newbie
genuis boy
Posted

I struggle with fatigue and exhaustion a lot. Does anyone have any suggestions or recommendations? I really don't sleep well either.

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ShayFL Enthusiast
ShayFL
Posted

Have you had your Thyroid tested? Iron and Ferritin? B12?

Are you Celiac or Gluten Intolerant? If so are you 100% gluten free?

Please tell us more about yourself so we can help you.

ravenwoodglass Mentor
ravenwoodglass
Posted

A lot of us have had to struggle with this. How long have you been gluten-free? Are you still consuming dairy? What have you already tried to help with this issue?

For some a sublingual B12 can be very helpful for energy. Try to eat as cleanly and as much naturally gluten free food as you can. Try to keep to a routine for sleeping, go to bed and get up at the same time every day. A warm bath or shower with a lavender scented soap can help as can a eye pillow filled with lavender. Try not to have anything with a lot of sugar of caffine after 12pm noon and try to get some excercise on a regular basis. Before bed try to get a routine down so your body and mind knows it is time to sleep. Do something quiet and relaxing whether it is reading a book or listening to some soft music or watching a nonstimulating TV program.

Welcome to the board and I hope you get some relief soon.

genuis boy Newbie
genuis boy
Posted
  • Author

I am celiac for 7 yrs. I probably am casein intolerant rather than lactose, that has gone on for 30 yrs. Yes I do cheat and consume some diary, mostly yogurt and mozzarella cheese. I was thinking of doing the CBC blood test, so I guess I will try to do thyroid and b12 later depending on cost. I am currently on an antidepressant. I am also a full time student so my hours tend to vary. I will try the lavender before bed as I have gotten interested in aromatherapy. I only have begone to consume a bottle of tea at about 1030 in the morning or at noon with lunch. Before that I never consumed caffeine after becoming celiac. I just tried some b-12 before I went to bed last night and I felt like I actually got some sleep when I got up. I have done b12 in the morning along with zinc and calcium 3 times a day. Thanks very much for your help and support.

aikiducky Apprentice
aikiducky
Posted

If you suspect you're casein intolerant, you should try cutting out all dairy products for a while. I know it's a pain, but that might well be keeping you feeling tired, I know if I would have dairy even just now and then I wouldn't be getting out of bed. It can also make you slightly depressed.

Pauliina

happygirl Collaborator
happygirl
Posted

Discuss with your doctor

Open Original Shared Link

Dig Liver Dis. 2007 Oct;39(10):922-8. Epub 2007 Aug 10. Links

L-Carnitine in the treatment of fatigue in adult celiac disease patients: a pilot study.Ciacci C, Peluso G, Iannoni E, Siniscalchi M, Iovino P, Rispo A, Tortora R, Bucci C, Zingone F, Margarucci S, Calvani M.

Gastrointestinal Unit, Department of Clinical and Experimental Medicine, University Federico II, Naples, Italy. ciacci@unina.it

BACKGROUND: Fatigue is common in celiac disease. L-Carnitine blood levels are low in untreated celiac disease. L-Carnitine therapy was shown to improve muscular fatigue in several diseases. AIM: To evaluate the effect of L-carnitine treatment in fatigue in adult celiac patients. METHODS: Randomised double-blind versus placebo parallel study. Thirty celiac disease patients received 2 g daily, 180 days (L-carnitine group) and 30 were assigned to the placebo group (P group). The patients underwent clinical investigation and questionnaires (Scott-Huskisson Visual Analogue Scale for Asthenia, Verbal Scale for Asthenia, Zung Depression Scale, SF-36 Health Status Survey, EuroQoL). OCTN2 levels, the specific carnitine transporter, were detected in intestinal tissue. RESULTS: Fatigue measured by Scott-Huskisson Visual Analogue Scale for Asthenia was significantly reduced in the L-carnitine group compared with the placebo group (p=0.0021). OCTN2 was decreased in celiac patients when compared to normal subjects (-134.67% in jejunum), and increased after diet in both celiac disease treatments. The other scales used did not show any significant difference between the two celiac disease treatment groups. CONCLUSION: L-Carnitine therapy is safe and effective in ameliorating fatigue in celiac disease. Since L-carnitine is involved in muscle energy production its decreased absorption due to OCTN2 reduction might explain muscular symptoms in celiac disease patients. The diet-induced OCTN2 increase, improving carnitine absorption, might explain the L-carnitine treatment efficacy.

ShayFL Enthusiast
ShayFL
Posted

Just get your thyroid checked before trying L-Carnitine. It can worsen a hypothyroid condition. Google it. Learn before you try.

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genuis boy Newbie
genuis boy
Posted
  • Author

Sorry I haven't got back to anyone, I have been studying for 5 tests this week. I was taking b12 3 times a day and that seemed to wind me up, so I am doing two a day now. That does seem to help. I did try L-Carnitine a couple of months ago, but that didn't seem to do anything. I think that the best place to start is with some blood work. They place by me has a fatigue panel, but I think I will try a CBC first. I'll hav eto get brave and eliminate dairy for a while and see what happens. :(

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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