Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Extremely Tired And Dizzy?


leethinker

Recommended Posts

leethinker Rookie

Hi everyone,

I am in the process of being tested for celiac/gluten intolerance. I've been trying to eat a lot of bread (gluten) in preparation for my tests.

For the past week at least I have been feeling unbelievably tired all the time, regardless of how much I sleep. I feel dizzy when I stand up. I have been losing weight without trying at all. I feel horrible.

I've posted before with symptoms, but to avoid repeating myself, let's just say I have almost all the symtpoms.

I just got blood drawn today and the doc will be ttesting for 280 different foods/substances that I am possibly allergic to. She will be testing IgG and IgE first, then after this initial test they will move on to the individual foods/substances.

I'm so depressed. I'm SICK AND TIRED of feeling sick and tired all the time. I just cannot get enough energy up to do much of anything.

This post is more like a rant, but I was actually wondering whether this horrifically extreme tiredness and dizziness is a typical sign of celiac???? I'm starting to become scared that something else is wrong with me.

Thanks for you help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Did they draw blood for a full Celiac panel as well?

leethinker Rookie

No they are still just testing for food allergies. I guess we'll move on to that after the initial tests...?

ShayFL Enthusiast

Consider this: you CAN have both an IgG or IgE mediated allergy to wheat PLUS Celiac. Here is the problem. Let's say you come back "allergic" to wheat, so you cut wheat out of your diet. Now they will tell you after 6 months or so, you can add it back in. You may add it back in and not have a negative reaction. You think: problem solved. The clincher is this, if you cut wheat out of your diet without finding out if you are Celiac first, and can eat wheat later without any obvious issues, if you are Celiac, the damage can be happening without you knowing it. Setting you up for autoimmune diseases and cancers related to untreated Celiac.

If it were me, I would get a full Celiac panel done before I cut wheat, rye, barley or oats out of my diet. Better safe than sorry.

mommida Enthusiast

That tiredness and dizziness can be symptoms of anemia. Low iron is associated with Celiac.

Unfortunately I am having the same symptoms with a viral inner ear infection.

Try and keep your body going with vitamin supplements. I hope your testing goes quickly, so your healing can begin.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.