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I Had My Endoscopy Yesterday

cat3883

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cat3883 Explorer
cat3883
Posted

I started eating gluten free yesterday. Thank God for that. About 6 weeks ago my blood work showed positive for Celiac. My GP sent me to a GI and he did the genetic testing which showed I had both genes for Celiac. Finally I had my endo and colonoscopy yesterday. My GI said he sent biopsies off but he could tell just by looking that my Villi were flat. I am so thankful I have finally been diagnosed and can now feel better. I know this new journey will be difficult at times but at least I know I can feel good in the future.

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ShayFL Enthusiast
ShayFL
Posted

WE are here whenever you need us. I am glad you have an answer now.

happygirl Collaborator
happygirl
Posted

Cat, let us know what you need help with as you transition to eating gluten free. Happy you have found your answer.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome. Feel free to ask any questions you need to. You have found a great place for info and support. The first few weeks may have some ups and downs but you should be feeling better soon. There is a lot to change at first, not just food so read as much as you can here.

lizard00 Enthusiast
lizard00
Posted

Welcome :)

I'm very glad you were able to get a diagnosis and can now begin to get better. The first few months were the hardest for me. I remember crying over pizza... :angry:

But, I cannot even tell you how much better I feel now than I did one year ago. Just stick to basic foods for a while, and feel free to ask any questions. We don't grossed out easily, don't worry. :lol:

LIS-Guy Rookie
LIS-Guy
Posted

Congratulations, cat!

It sounds so odd... congratulating someone for having Celiac... but I think everyone knows what I mean. It must be a HUGE relief to finally have an answer to what's been ailing you. I hope that your road to recovery is swift and that you find ever-improving health with your new diet.

LIS

Mom2Twins Rookie
Mom2Twins
Posted

Hi.. I just had a question because I had a similar endoscopy experience. I still haven't heard the results from the lab analysis yet (see my GP next week for that)... but the GI said he could tell that my villi were flat as well just by looking, and that my stomach was inflamed, and to start gluten free right away.

My question is - does anyone know how they can tell that just by looking? I thought the villi were microscopic. I had no sedation for the procedure, so the doctor talked to me immediately afterwards, but I will kind of in a state of shock from the involuntary vomiting I had just gone through! :blink:

Thanks!

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ang1e0251 Contributor
ang1e0251
Posted

I am so glad you had very clear cut test results. Many people have wishy washy results which leaves them doubting their dx or lack thereof. You'll feel better and better as time goes on. Ask any and all questions here as we have been through it or know someone who has. We will listen and be as helpfull as possible.

Welcome to the gluten free life!

mslee Apprentice
mslee
Posted
I started eating gluten free yesterday. Thank God for that. About 6 weeks ago my blood work showed positive for Celiac. My GP sent me to a GI and he did the genetic testing which showed I had both genes for Celiac. Finally I had my endo and colonoscopy yesterday. My GI said he sent biopsies off but he could tell just by looking that my Villi were flat. I am so thankful I have finally been diagnosed and can now feel better. I know this new journey will be difficult at times but at least I know I can feel good in the future.

Welcome! Believe me this is good news and you will feel better!

Hi.. I just had a question because I had a similar endoscopy experience. I still haven't heard the results from the lab analysis yet (see my GP next week for that)... but the GI said he could tell that my villi were flat as well just by looking, and that my stomach was inflamed, and to start gluten free right away.

My question is - does anyone know how they can tell that just by looking? I thought the villi were microscopic. I had no sedation for the procedure, so the doctor talked to me immediately afterwards, but I will kind of in a state of shock from the involuntary vomiting I had just gone through! :blink:

Thanks!

I saw pics of mine, looked very slick, smooth and shiny no little waves or fingers. From what I have seen by google searching "cross section of intestine" you can see what looks like fingers or a fuzzy wavy layer

MollyBeth Contributor
MollyBeth
Posted

Hey Cat!

I'm new to all this myself and I can tell you that joining this site has been one of the best hings I've done to help cope with the new lifestyle! Everyone here is more than happy to answer any question...No matter how gross or encourage you along the way as you start your new diet!

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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