Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sugar


bear6954

Recommended Posts

bear6954 Apprentice

My 2 1/2 yr old son was diagnosed with celiacs by bioposy in May 08. He has the classic case, projectile vomiting, runny and very smelling stools, failure to thrive, short stature, long eyelashes and abnormal liver function tests.

We started him on gluten free right away and he is doing wonderful in that aspect. The dr warned us that sugar may cause runny poops until his intestines heal. We also saw a specialist for his diet. We were told that he needed 1200 calories a day to begin to grow again. We are to use high fat food and he is to drink caloried drinks.

After about three weeks we began to notice the runny poops again without the smell. I limited his food and determined that the koolaide was bothering him. We live in NC and summers are hot, so he was drinking more. I now mix koolaide and pedialyte and it seems to be working.

I noticed when he was a year old that juices give him runny poops also, but we just dont let him have them.

Does anyone have alternatives as to how to get him caloried drinks without so much sugar?

We are on a limited budget and can not afford EO 28 splash or ther gi drinks right now.

Thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Could be added Vitamin C that gives him D. That is common. Find a juice without vitamin C....might be hard.

Could try powdered Kool Aid without the sugar and use Stevia drops to sweeten them.

veggienft Rookie

We had the same problem with one of our children. It started at 18 months.

Diagnosed celiac disease. We eliminated wheat .......better, but no cure. We eliminated sugar .......better, but no cure. Then we purified the water.......

........Voila Cured! As an adult now our offspring eats wheat and sugar, but can only drink drinks made with purified water ........or milk .......which is naturally purified. Otherwise the problem starts again.

The problem could simply be chlorine. But it could be fluoride additive or any of a hundred other water contaminants. Fluoride upsets the body's handling of fats. Any chemical toxin can upset the liver's choline processing capacity, and "mucousy" stools can be caused by a shortage of digestive cholinesterase.

A good under-counter reverse osmosis (RO) water purifier is the cheapest and easiest purifier to operate. It requires only water and water pressure. The purest is a water distiller, and the easiest way to get started is probably a countertop unit:

Open Original Shared Link

It might not work for you ..........but it might.

..

veggienft Rookie

There's speculation that purified water may simply act as a bandaid, and not a cure. Pure water may merely work to absorb the ingested cause, or the offending body chemical.

But we don't know the chemical cause, do we? A risk-vs-benefit analysis says, until we can find the cause and cure it, pure water could solve the problem .........and make your son healthy again.

Take your pick.

You could just test him on store-bought purified water for a couple weeks. Look for either "distilled" water or "drinking water". Both have standards of purity.

..

AliB Enthusiast

Why give your baby artificially flavored drink at all? Plain filtered water would be the best thing for him to drink. If you don't encourage the sweet tooth, he won't have one.

If you feel that you must give him something then why not try well-diluted unsweetened carton or bottled juices like pure grape or apple cider. I find that an inch of juice topped up with water is refreshing and quite sweet enough. Foods with artificial chemicals in just end up adding to the load of an already beleaguered liver. The body is a precious thing. People continuously throw harsh, high-carb, high-sugar, high-chemical rubbish down their throats then wonder why they get sick. Real food makes us well, counterfeit food makes us sick.

I used to berate my son - he would pour himself, much to my annoyance, a glass of neat juice, then complain a few minutes after drinking it that he was thirsty! The kid didn't get it. The body needs water, not sugar. People will have a glass of neat orange juice at breakfast. That is equivalent to eating about twelve oranges. Who, in their right mind eats 12 oranges in one fell swoop?!

Many who are gluten-intolerant are also very carb and sugar intolerant and much of the stuff out there that passes for food, even gluten-free, is packed with sugar and additives and is not conducive to health.

ShayFL Enthusiast

Sometimes I have to keep in mind that a lot of the people who come in here are not "health nuts" like me. I too Ali do not see giving a child artificial drinks. But many people simply do not have the wherewithall to know how to eat healthy. Secondly, once a child gets a taste for sweets, it is murder getting them off. And many overworked, overstressed parents do not have the energy to tough it out until the withdrawal is over. Not to mention school can throw a loop for any efforts made (with holiday parties, birthdays and tons of candy given as reward for good work). It can be pretty depressing to try to fight it. I know because I fought the good fight for years with my daughter. She would whine and cry for sweets that "all her friends got to eat". And I never let her have any. What I ended up with was a kid that would gobble up any and every sweet she could get her hands on when she wasnt with me which lead to headaches. So over time, on her own she realized that the sweets caused the headaches and she on her own accord scaled back. Now when she goes to parties or dances she only drinks water (if she wants to have a good time). If I had it to do over, I wouldnt have been so military about it.

But you do have to cut some people some slack. They simply are not used to eating whole foods and pure water. This is a entirely new concept and takes some time to digest.

bear6954 Apprentice

Thanks for the advise, but my son needs the calories to grow. How many children at age 2 1/2 need 1200 calories just to begin to grow again. There is no way he will eat that many in a day and my son needs those calories to begin to grow. This diet was recommended by three different specialists and I plan on following it. My son, for the most part, will not eat sweet things.

Right now my concern is giving him drinks that contain calories to help meet the 1200 calorie a day requirement he needs not a lecture on how unhealthy it is. I am aware of how to much sugar can be unhealthy for children. But my child became unheathy eating what the average american believes is a healthy diet.

Does anyone have any ideas on caloried drinks that many not hurt his intestines? I will be sure to try the distilled water idea.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Can he have dairy or soy? If so...it is eggnog season!! In the cold case there will be soy and dairy eggnog. I think it just might be the most caloric drink on the planet. I love it........but cant do regular dairy. I dont think eggnog kefir would be very good. :( You could mix it 1/2 and 1/2 with straight milk or soy milk to dilute the sugar. Or make homemade with stevia and a bit of honey.

Just an idea. Or chocolate milk made with almond milk, soy or dairy (depending on what he tolerates).

covsooze Enthusiast

Hi there!

I'm the same with fruit juices or cordials and tend to drink just water, but I could also do with more calories, so I know a bit about where you're coming from.

Can your son tolerate fruit at all? If so, you could try making a smoothie with rice milk and a bit of fruit.

Alternatively, how is he with veggies? Could you try veggie juices or even stock or soup? Or maybe something like bovril or another yeast extract type drink?

It's really difficult thinking of something that's quick and easy, which is what you need when you're a mum with a young child.

Another thought: my son likes fruit tea (cooled down a lot). That would be unsugary and you could add honey if your son tolerates it to add calories and sweetness.

All the best.

Sx

bear6954 Apprentice
Hi there!

I'm the same with fruit juices or cordials and tend to drink just water, but I could also do with more calories, so I know a bit about where you're coming from.

Can your son tolerate fruit at all? If so, you could try making a smoothie with rice milk and a bit of fruit.

Alternatively, how is he with veggies? Could you try veggie juices or even stock or soup? Or maybe something like bovril or another yeast extract type drink?

It's really difficult thinking of something that's quick and easy, which is what you need when you're a mum with a young child.

Another thought: my son likes fruit tea (cooled down a lot). That would be unsugary and you could add honey if your son tolerates it to add calories and sweetness.

All the best

Sx

Thanks everyone for the advise. Yes my son can drink milk so I will try eggnog. I would have never thought of it! I will also try smoothies again. I tried a couple months ago and he did not like it. I am not sure if it is the cold or the sweet. But nevertheless, my daughter will drink it!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.