2 Yr Old- Neg Blood Test, Gi Dr Wants To Do A Biopsy

[MomJDL]

I am VERY new to all of this. Here is what is going on with my 2 yr old son.

Even though my son's celiac blood test came back negative the GI doctor said it isn

[ravenwoodglass]

When his BM's burn does it make him itchy? Does he have any other rashes? This sounds like possibly a DH reaction that is all to familiar to me. I get the same effect from a glutening and it does hurt a lot. Something that you may want to do is have a derm biopsy the tissue next to where his skin is inflamed, if it is DH it would be a conclusive diagnosis of celiac. A intestinal biopsy would then not be needed. You also could go with just trying the diet for a few months, if his symptoms resolve then that would be conclusive evidence also that he is at least gluten intolerant.

[swalker]

I wouldn't do a biopsy. I'd remove gluten for a month and see if it makes a difference. At that age the damage may not be that extensive and the biopsy could be falsley negative anyway.

[bear6954]

My 2 1/2 yr old son had the classic symptoms of celiacs so we decided to have the bioposy.

You can have your son dna tested (runs about $375.00) if your insurance wont pay for it and it is a cheek swipe. Our gi dr did this to my son before he did the bioposy.

My son had post nasal drip and was just off of a cold so they did his under general. Normally its done under sedation. There are more risks under the sedation that general and I would opt for general again.

My son tested negative in blood - 3 times and had a very positive bioposy.

Sugar also bothers my son by giving him a rash right around his anus - happens as soon as he poops. We have to limit his sugar.

[B'sgirl]

I am pretty sure my two-year-old has it, even with a negative blood test. We opted not to have the biopsy done. It's too risky and it still gives iffy results at this age. I chose to try a gluten-free diet. Even if your child doesn't have Celiac, if the diet helps then the solution is the same no matter what. You can do the biopsy when your child gets older. My son is doing much better on a gluten-free diet. We also had to take him off dairy. The other day at a party he snuck a donut and has been having tons of poopy diapers that give him a rash ever since. Even if he doesn't have Celiac, I know gluten bothers him so I don't need an official diagnosis at this point. We also took him to an allergist to make sure it wasn't just a wheat allergy, because the allergy test is not dangerous or invasive. It came up negative. You might want to try an allergist to narrow it down as well though.

[Rondar2001]

I would consider doing the biopsy. My daughter suffered no ill effects and having a definitive diagnosis was important to us so there may be less of a rebellion against the diet when she is older.

You may also want to check if any of the gluten free food is tax deductible, in which case a formal celiac diagnosis may be needed. Be aware that if you try the gluten free diet and want to biopsy in the future, you will have to put your child back on gluten.

Good luck with your decision.

[bear6954]

My son had the classic signs of celiacs and I was still scared to have the bioposy done. My son also had negative blood results. You can always try to have a dna test done first. Our Ped GI dr had a dna test done while we were waiting to schedule the bioposy. Under general, the procedure is pretty safe. My son does not remember it. The worse part was not being able to give him any food or drink in the morning. If your scared about the bioposy, try the dna first.

I had a bioposy done this year under sedation. I remember it, and it was not that bad. You are way out of it when the tube is put down your throat.