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Recovery And Mental Clarity


mhb

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mhb Apprentice

I was wondering if others noticed increasing mental clarity after going off gluten, and did it keep improving over a certain period of time. It just seems like I'm a better reader and my memory is better and I have much more interest in gaining knowledge and confidence that I can remember it and it's worth paying attention. It's not that I walked around without a thinking brain or a working memory all my life, but compared with some other people I know it just seems like my brain would glaze over about simple things that I should know, like who drafted the Declaration of Independence. Now I will read something like and feel a connection click into place in my brain. Of course other variables like sleep and allergies play a part at times.


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mamaesq Rookie

I've been gluten-free for 4 weeks now, and I have noticed over the last week that I am much more focused at work. It's insane how much more productive I've been over the last week or so. I still completely blank sometimes in the middle of a conversation, but even that's improving greatly.

ang1e0251 Contributor

Increased mental clarity? You Bet!! I am better and better as time goes on. I can really tell if I'm accidentally glutened, I feel so stupid. It's like a bad head cold where you are so stopped up that your reflexes are all slow motion. Before I went gluten-free, I was really hazy, couldn't recall names, words sometimes wouldn't come. Now if I draw a blank, I can usually have recall in a few seconds. Big difference for me...I'm so grateful to finally have the answer. I don't care how inconvenient it is. I'm healthy and clear headed again. It's all worth it for me.

SillyBoo Newbie

Going off of gluten does, indeed, lessen the "brain fog" and increase mental clarity. Before I was diagnosed 2 years ago, I had a job that required very high-level critical thinking skills, and got to a point where I really couldn't do my job very well. Over time, my mental skills have mostly recovered. On good days, I really am back on top of my game. There are still some foggy days, but the fog isn't nearly as thick as it used to be, and I can mostly function. Going off of gluten really was similar to having the sun shine brightly in a clear blue sky after years of cloudy, stormy weather.

roxnhead Rookie

I've only been gluten-free a couple of weeks but I can't believe the difference. Brain "fog" "haze" "goofy-drunk" absolutely unable to think- is how gluten-casein affected me. I still am in a fog, but each day I am getting better. It amazes me how bad it was and how calm-reserved I was in response. I definetly feel that a sort of apathy-is part of the disease. Since my symptoms have been mainly nuero- I'm wondering if I lost more than I will be able to gain back?(specifically brain power).

P.S. I used to be an excellent speller/now I look at words and question? brain sprain!

toadfool Newbie

i have just been diagnosed coeliac (on thursday! at 42 years of age) and have started a gluten free diet. i had NO obvious symptoms. my question is this - for the last year to year and a half my short term memory has worsened noticably. i have a degree and a professional job, and some days i can't remember what day it is. Is there any chance this is related to being coeliac, and that it might improve on the diet?

SillyBoo Newbie

Yes, it is quite likely related to the celiac. I went through something very similar (at age 51!), as the worst of my symptoms were neuro. My memory was horrible, forgetting things like the day of the week, hesitating when I introduced myself to someone (because I had to remember my name), and all sorts of work-related and family-related details. After 2 years gluten-free, my memory is MUCH better. Interestingly, things that happened during the last year or so before my diagnosis are still fuzzy to me. But short-term and long-term memories are clearer than they have been in a very long time.

Hang in there, it does get better over time! And be VERY strict about excluding all gluten.


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Amber M Explorer
I was wondering if others noticed increasing mental clarity after going off gluten, and did it keep improving over a certain period of time. It just seems like I'm a better reader and my memory is better and I have much more interest in gaining knowledge and confidence that I can remember it and it's worth paying attention. It's not that I walked around without a thinking brain or a working memory all my life, but compared with some other people I know it just seems like my brain would glaze over about simple things that I should know, like who drafted the Declaration of Independence. Now I will read something like and feel a connection click into place in my brain. Of course other variables like sleep and allergies play a part at times.

I have been gluten free for about 4 months, and YES, there is a big diff. I had many neuro symptoms, and still some. I have slipped and eaten gluten a few times and I swear I could be a "gluten detector" because it creeps over me like a black cloud in a short period of time. My focus has improved greatly and I don't walk in circles wondering what I am doing anymore. It is so amazing to me. I was sure I was geting senile at 51. Pretty scary!! My memory is much better and I can have a conversation now without becoming dizzy and agitated. You will notice many, many changes.

kschauer Rookie

Yes!

At the height of my symptoms I had just moved from the states to London and I had serious brain fog! I went for months and months thinking how I had jet lag I just couldn't shake. At that time I needed to be able to think clearly to prepare for the work I am doing now. Now I look at what I did then and just kick myself, I missed so many things and my life now is much harder.

Hopefully you will continue to improve even more!

mhb Apprentice

Thanks for all the confirmation. My good days are soooo good, but since I'm in perimenopause, I get a lot of nights with poor sleep, and migraines, and frequent hunger attacks during PMS, all of which really throw me off track. So I'm trying to balance all the gluten-free lifestyle (so much more thinking going into eating and food prep!) with all that. I feel like it's about 1 good day for every 3 bad ones, but I'm clear about what's causing what. May have to give up my 2 cups caffeine a day (tea). I'm rebelling vs. that because I've given up so much else (gluten, dairy, soy). Oh, and the other things are not from gluten sneaking in. Definitely peri-M. Yuk. There should almost be a separate forum for those of us going through both.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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