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Having Some Trouble, Need Advice.

Bucsfan11

By Bucsfan11
in Coping with Celiac Disease

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Bucsfan11 Rookie
Bucsfan11
Posted

Hey all, its been awhile since ive been on here, dang school keeping me busy. Anyway, I was never diagnosed with Celiac, I have been tested and came back normal, but after having diarrhea for years and always being told I have IBS i was no longer willing to take that diagnosis.

Anyway, I have been gluten free for about a year now and all my symptoms went away. I was feeling great! and I actually enjoyed gluten free food. Well for the past two weeks my symptoms have all returned. Diarrhea after I eat, going about 5-8 times a day. Extreme urgency, etc. I have double and tripple checked all the thing is I have been eating and there are all gluten free, bought from a gluten free store.

So I talked with my GI and he wants to put me on cholestyramine (qustran, sp?). I still have my gallbladder!! so I was just wondering if any other people on here have tried this or any advice on in.

Has anyone gone gluten free to find out it stopped working down the road?

Any help would be greatly appreciated.

Thank you all so much, Sean.

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ravenwoodglass Mentor
ravenwoodglass
Posted

Have you checked all nonfood sources for gluten? Your shampoos, toiletries, craft supplies etc? Have you done any remodeling or home improvement projects? Many things used for that are not safe. Have you added any new supplements? Are you on any meds that are generics? Generics can change their binders at will so one that was safe last refill may not be with todays. Look around and try to figure out what is new and changed. Keep in mind also that not everything is gluten so do have your doctor do stool testing to make sure you have not picked up something in the way of a food borne illness like salmonella etc.

ShayFL Enthusiast
ShayFL
Posted

Have you considered dairy? Intolerances can show up at anytime.

New girlfriend or boyfriend whom you kiss that may have eaten gluten prior to your kissing them?

dilettantesteph Collaborator
dilettantesteph
Posted

How about a transglutaminase blood test? It could tell you if you getting gluten by accident. How about hay? Some "gluten free" food isn't actually all that gluten free and will make some people sick. Check if it was made in a facility that also processes wheat. Double check anything new. Try eliminating all processed foods and see if that helps. Good luck, hope it doesn't happen to me.

Bucsfan11 Rookie
Bucsfan11
Posted
  • Author

Thanks for all of the advice and support all!! I really do appreciate it. I have not added anything new to my diet is the thing! I eat basically the same stuff every day, it gets old, but is way worth it because I dont get the Diarrhea anymore, well untill lately.

I will do what Ravenwoodglass has said about checking with the meds. I take a generic version of medicine for seizures, and I take it three times a day so that could be it. Even though, today was a lot better today, so I will see how tomorrow goes. Thank you all for the support it is greatly appreciated and helpfull. Have a good weekend!!

Sean.

Janessa Rookie
Janessa
Posted

If you are eating the same things everyday then it is very likely you would get additional intolerances. I developed more intolerances about a year after going gluten free because I was eating a lot of the same things everyday too.

Talk to your doctor about doing an elimination diet to figure out if other things are bugging you, you eliminate all major allergens plus anything else you eat on a daily basis and then one by one add them back and see if you react.

sbj Rookie
sbj
Posted

Have you considered some likely causes other than glutening?

Viruses? ... Viral diarrhea spreads easily.

Bacteria and parasites? ... Diarrhea caused by bacteria and parasites can be common when traveling

Medications? Many medications can cause diarrhea. The most common are antibiotics.

Lactose, fructose, or artificial sweeteners?

Hope you feel better!

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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    • knitty kitty
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      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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