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Prescription Products/gluten-free

bmh1049

By bmh1049
in Related Issues & Disorders

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bmh1049 Newbie
bmh1049
Posted

I am new to these message boards. Does anyone out there have ay information about how I can find out what prescription products are gluten-free? I am told that many Rx products such as Folic Acid use a form of gluten as a "tablet binder".

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darlindeb25 Collaborator
darlindeb25
Posted

most of these sites have food list and pharmacutical lists---i know www.clanthompson.com has a list--but as always--you should call the company and find out if the product is gluten free--medicines do not fall under the same guidelines as foods do, so you have to be even more careful with them-----deb

KaitiUSA Enthusiast
KaitiUSA
Posted

Here are some gluten free medication lists. There are more in depth ones you can get and alot of sites have ones like the ones below. If you do not see the drug on the list then your best bet is to call the manufacturer.

Open Original Shared Link

Open Original Shared Link

lovegrov Collaborator
lovegrov
Posted

You should always check medications but the fact is almost no medications use wheat as a binder. The VAST majority of medications are gluten-free.

richard

cdford Contributor
cdford
Posted

I had to change several of my meds upon going gluten-free. The doc has had to adjust prescriptions several times since once we contacted the manufacturer. My pharmacist has me listed on his computer as "Donna *Gluten Free* Ford". Who would have thought this disease would change my middle name even?

When I get a new Rx, I ask the doctor to verify it. I contact the pharmacist and he will call the mfr if he is not really busy, otherwise he gives me the number and I call. I actually prefer to call myself because I can get a better feel for whether the person on the other end of the line has a clue what they are talking about or are just reading off some piece of paper. I keep an extra tab in my notebook I carry that lists food and other information. This tab has each medication, its manufacturer, the phone number, and the last date I verified its gluten-free status. I call and verify them all about every six months. For the couple of generics that must be from a specific manufacturer, the pharmacy lists that in their computer and special orders it when I call in to get it refilled. They keep the info in their special instructions section for that med so that any pharmacist who fills it will see it. I also double check the bottle prior to accepting the medication.

This may seem like a lot of trouble, but it isn't after the first time you get a med. It is also much less trouble that ingesting gluten and its consequences.

Guest gillian502
Guest gillian502
Posted

I have so far found one med that does use wheat as a binder, and that med is entocort. I also was told that phenergen, though the company doesn't use wheat, is cross contaminated. So, you do always have to call...also Zofran isn't gluten-free, either. So I've ran into quite a few recently. But there are still plenty of drugs that are gluten-free, and if the name brand of a drug isn't, then the generic usually is, or vise versa.

Gillian

cdford Contributor
cdford
Posted

There are some generic "phenergan"s that are gluten-free. Ask your pharmacist to check on it.

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  • 2 weeks later...
celiac3270 Collaborator
celiac3270
Posted

Here's another link to supposedly gluten-free drugs...though the glutenfreedrugs.com list is better--

Open Original Shared Link

  • 3 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Hi I'm baack with more questions and a baad computer with sticky keys. My other computers were infeected with thee deadly trojan virus while looking up drug ingeridents alast night. Please bear with me.

I'm looking not only for gluten free but corn, an dairy free drugs.

My ssysteem cann NOT tolerate CORN or DAIRY. :( The new thyrroid medication I was given 2 weeks ago I'm taking is giving me diarrhea. I take the pill and eat 30 mins later, aand within 10 minutes I'm in the bathroom with diarrhea. I'm taking LEVOXYL 75 mcg generic for SYNTHROID. My ddocc is NO HELP! I caalleed thee paarmaacist and I was told aanother drug LEVOTHYROXINE does NOT contain dairy or corn, however the other ingreddientss I don't know what theyare...

Does anyonee else have the same problems and if so whaat do you taake???

PLEASE HELP! :wacko:

sorry about the sticky keeys

Guest ajlauer
Guest ajlauer
Posted

If anyone needs to know who is manufacturing their medication, call the pharmacy you get them from. Generic drugs can come from multiple companies - you need to know which one the pharmacy used when they actually filled YOUR bottle. Also with generic drugs, the manufacturer that is being used can change everytime you refill your rx. It is always best to use one pharmacy, all the time, and have a good working relationship with the folks that work there. If at least one of them knows you by name - and understands your medical conditions - that will greatly improve your odds of getting "the royal treatment".

If you're taking a name brand drug, the ingredients aren't likely to change. Again, if you need to know who the manufacturer is, call your pharmacy. Then, you can usually get whatever info you need (or at least some contact information) on the internet. All the pharm companies (that I've had to research, anyways) *do* have websites.

Guest ajlauer
Guest ajlauer
Posted

Brainfart! By "royal treatment", I mean that if say, one generic company DOESN'T use gluten or whatever.... the pharmacy could make an exception for you, and be sure to carry THAT BRAND of the generic drug, at least for you, so you are safe. Even if it is less-profitable to the pharmacy. And the more pharmacy-employees that know you by name, and understand your condition(s), the better the chances are that someone will say "whoa! (s)he needs to use *this* brand of that drug!"

celiac3270 Collaborator
celiac3270
Posted

You get sticky keys from a virus? So you can't turn them off by pressing shift five times?

lovegrov Collaborator
lovegrov
Posted

Don't ask your doctor OR the pharmacy what's in a medication. Get the number of the manufacturer and call them. You can also look for a "compounding" pharmacy. A compounding pharmacy can make medications using the active ingredient but leaving out the stuff that you can't have.

richard

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

lovegrov - Thaank youuuu thankk yuo.

sorrrry I'm still stucck with sticky keys on this junky1. My other 2 computer(S) got the trojaan virus wwhile looking up drug iingrediteents on a evil boguss web site.

Did as you suggestedd. Caalled the companies. I found out some thyroid meds that thee pharmacy said was gluten daairy free has corrn in some forrm, they list in in some long word I had no idea what it ment until I spokee to someeone.

I will try to find a compounding pharmacy. It'll be the solutionn to the problem!!!

God Bless U ~

Many thanx my friend!!!!!!

lovegrov Collaborator
lovegrov
Posted

I'm sure it's be better if you can find a compounding pharmacy locally, but if you can't, here's one you can check out online.

www.stokesrx.com/

richard

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

lovegrov - Thaaanx again! :D

Sorry I'm stillll stucck <_< with sticky keys.

Today I did soome research. I found twoo compounding pharmacissts in Boca Raton, Florida where I aam. I am very disappointed :angry: in my docs theeey didn't suggest a compounding pharmacy!

There iss one in east Boca he said wwould maake up the pillss for me no problem, all he needed was the script from my doc and to kknow what I'm not able to tollerate. He woould make up a 30 day ssupply. He asked if I could tollerate gelatin caps. I told him yes. I eat jello and taake another medication with caapssules aand are ok.

The other compounding pharmacy in Weeest Boca told me he woould give me a paper placibo pill for 3 or 4 days... see howw I do, then he would make up the RX with it void of the ingredieents (corrn, daairy & etc) I am unable to tolerate. I won't put my body under more stress of going without thyroid medication for eeven one day, I'm only 2 weeks into medication ssiince my radioactive iodine treatment 2 1/2 months ago. The ssymtoms were totally unbearable, with my levels off the chart.

The day before you helped with yourr solution, I had spoken to a holistic doc in Texas, he was going to have me stop theee medicaton and start holistic thyroid treatment.... But he told me I would get the heart paalputations, hot and cold flashes, migraines, and :wacko: mosst of thee otherr ssymptons, for 2 wkks to a month. Before I hung the phone up I knew I didn't want to go that route and streess out my body again....

So my friend I say thanx again for your help. I'm sendding you a big cyberspace HUG. And I will let you know how thee compounding pharmacist drugs work. :D

  • 2 weeks later...
mytummyhurts Contributor
mytummyhurts
Posted

Does anybody know about Excedrin Migraine? I didn't see it on any of these lists, I saw Excedrin Extra Strength, but no Migraine. I'm just worried because I just bought a huge bottle today :( I was hoping somebody knew because it is so common. Thanks!

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