Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


cartierclare

Recommended Posts

cartierclare Newbie

help ! i was diagnosed with coeliac 1 1/2 years ago. What a nuisance it is, anyway i have noticed recently that when i drink filter coffee it is giving me real stomach pains and making my stomach bloat. I was told from the dietician that coeliacs cannot drink instant coffee so i went and bought a filter machine but i am now suffering, please can anyone recommend a coffee that i can drink.

Also i have been diagnosed with gum disease which apparently is also a side effect of coeliac, is anyone else encountering this problem. So not only do i have problematic bowels and osteoporosis now my teeth could fall out and i am only 44 ! arent i going to look gorgeous


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ohsotired Enthusiast

When you say filter coffee, are you using a metal mesh filter or paper filters? What type of coffee are you brewing?

I know that many flavored coffees could be a problem, so if you are drinking something that is flavored that may be the culprit.

DarkIvy Explorer

Could it be the caffeine? Do you notice this effect with other caffeinated drinks?

I for one cannot tolerate regular coffee anymore. It wrecks my stomach, too, and I notice similar feelings with other heavily caffeinated beverages. Even more than a cup of decaf or so gives me a lot of issues. I can have black teas once and a while, because the caffeine content is less than a cup of coffee, and I can have decaf black teas more regularly. (Caffeinated) Soda makes me want to vomit, which is unfortunate as I'm rather fond of Dr. Pepper.

I don't see why celiacs couldn't have instant coffee, unless a particular brand was not gluten free. That said, caffeine tends to be very rough on the body and digestive system, and my doctor always says that if I'm (or anyone) is sick with stomach viruses or nausea, caffeine will make the pain worse.

My personal (non professional) opinion is that celiacs already have crappy digestive systems that can't handle much abuse, even after we take steps to correct the problem, and since caffeine is already known to be something of an irritant, we may just notice it more. It could be the CAFFEINE that is hurting you, and not necessarily the coffee. Have you tried a decaf blend?

darlindeb25 Collaborator
I was told from the dietician that coeliacs cannot drink instant coffee

Your dietician is wrong. If you liked your instant coffee, check to make sure it is 100% coffee, and enjoy.

It is also true that some people find they can't tolerate caffeine. I drink decaf for my health, and I do not miss caffeine in any way. Coffee has never bothered me, but for a while, I couldn't drink tea, now I can again.

Also i have been diagnosed with gum disease which apparently is also a side effect of coeliac, is anyone else encountering this problem. So not only do i have problematic bowels and osteoporosis now my teeth could fall out and i am only 44 ! arent i going to look gorgeous

I have problems with my teeth, neuropathy, arthritis, raynauds, and sleep apnea, and YES, you will look gorgeous...just be strong and keep working at healing.

ang1e0251 Contributor

I too am having a problem with coffee and I'm planning to completely give it up this week. I'm OK with caffeine in tea so I guess it's not that. How do like that? I have a gourmet coffee bar in my flower shop and I can't have coffee! By the way I seem to remember that on another thread, someone mentioned they were having a reaction to the coffee filters, one of their problems was DH. I never read what it was in the filter that bothered them.

19scarlett Newbie

The problem could really be the "filter" coffee - if you adore coffee you could try turkish coffee thats the way my mum called it: that means you take a normal can make wather boil in it than you take it off the stove. You put in 3 big spoons of coffee and you press it in the wather. that you make it boil again very slowly 2 or three times - that is the best coffee ever and it is not as harmin for your heart!

spicenator3000 Apprentice
help ! i was diagnosed with coeliac 1 1/2 years ago. What a nuisance it is, anyway i have noticed recently that when i drink filter coffee it is giving me real stomach pains and making my stomach bloat. I was told from the dietician that coeliacs cannot drink instant coffee so i went and bought a filter machine but i am now suffering, please can anyone recommend a coffee that i can drink.

Also i have been diagnosed with gum disease which apparently is also a side effect of coeliac, is anyone else encountering this problem. So not only do i have problematic bowels and osteoporosis now my teeth could fall out and i am only 44 ! arent i going to look gorgeous

Your best solution for this coffee thing from my experience with many kinds of coffee and the symptoms that I encountered...is to buy green un-roasted coffee beans, roast them yourself and grind and brew your own coffee. Green coffee beans last months to years in a sealed container. Roasting takes a super hot frying pay ready to go, green coffee beans and stirring fork, you only need to grind a cup a day or a larger batch in the oven and seal it for the week or next two weeks (length of time it'll still taste like fresh coffee if sealed properly). Get a little grinder, enough for one cup. I have a French press, it's a simple glass cup with a mesh metal screen that is dishwasher friendly, I let the hot water I cook up on the stove top soak into the grounds, press the press and vuwala fresh home made coffee.

heres the web site I've found that has many green coffee beans from all sorts of countries available: Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

I personally can no longer drink coffee period, not because of the caffeine, but because of the acid and oils in the coffee make tummy angry. I know it's not the caffeine because I can have as much tea as I like. Try decaf, if that still bothers you, try regular tea. If that doesn't bother you, you have your answer.

Jenny (AZ via TX) Enthusiast

When I was first dx'd I could not drink coffee, even decaf. I've been gluten-free for about 6 months and have started drinking decaf again. I use Lactaid milk with it and so far so good. For me, I think things just needed to settle down a bit.

CMCM Rising Star

I've kind of concluded that I also have trouble with coffee. I buy freshly roasted beans from a place in Seattle, I grind it myself and have a cappuccino machine. I never have more than one small cappuccino daily, but I think I read that coffee can have a laxative effect and I certainly see that with myself when I drink it. I've cut out my coffee for the last 10 days and I definitely see a positive difference. I can't say I'm happy about this, because I LOVE my cappuccino. I'll probably just have it on an occasional basis rather than daily.

kenlove Rising Star

Many of the small growers here in Kona use hot air poppers for roasting coffee. Used to be $19. at Kmart.

Worked quicker than a frying pan.

Your best solution for this coffee thing from my experience with many kinds of coffee and the symptoms that I encountered...is to buy green un-roasted coffee beans, roast them yourself and grind and brew your own coffee. Green coffee beans last months to years in a sealed container. Roasting takes a super hot frying pay ready to go, green coffee beans and stirring fork, you only need to grind a cup a day or a larger batch in the oven and seal it for the week or next two weeks (length of time it'll still taste like fresh coffee if sealed properly). Get a little grinder, enough for one cup. I have a French press, it's a simple glass cup with a mesh metal screen that is dishwasher friendly, I let the hot water I cook up on the stove top soak into the grounds, press the press and vuwala fresh home made coffee.

heres the web site I've found that has many green coffee beans from all sorts of countries available: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.