Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Liver Enzymes


kimis

Recommended Posts

kimis Collaborator

If your liver enzymes are high for years and years dose that cause damage to your liver? Mine were high for about 6 years and they are not completely normal yet. I have had all kinds of tests, and my doctor says it will go down on the gluten-free diet...I think it will too, but I wonder how my liver is doing...could there be scar tissue from this, or could I possibly get liver disease or liver failure over time of the levels staying high? What if I never found out I have Celiac Disease....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Here is some information for you to brows through:

https://www.celiac.com/categories/Celiac-Di...Celiac-Disease/

ShayFL Enthusiast

Mine were slightly elevated prior to gluten-free and have returned to normal.

jerseyangel Proficient

Mine were also slightly elevated before diagnosis and returned quickly to normal on the gluten-free diet.

Recently, after a prolonged glutening (long, stupid story on my part), they went up again. After exhaustive testing, after which my levels returned to normal, my GI feels the episode was "Sprue-related".

Hopefully yours will normalize after you're on the diet for a while. Your doctor should keep tabs on it, and if it's truly persistant after a reasonable amount of time it might warrent further testing.

kimis Collaborator
Mine were also slightly elevated before diagnosis and returned quickly to normal on the gluten-free diet.

Recently, after a prolonged glutening (long, stupid story on my part), they went up again. After exhaustive testing, after which my levels returned to normal, my GI feels the episode was "Sprue-related".

Hopefully yours will normalize after you're on the diet for a while. Your doctor should keep tabs on it, and if it's truly persistant after a reasonable amount of time it might warrent further testing.

I would love to hear you glutening story!

jerseyangel Proficient
I would love to hear you glutening story!

:ph34r:

I was going along fine and last spring I decided to lose some of this weight I've gained as a result of menopause and too many gluten-free baked goods. I had success years ago with a low-carb diet, so I did it again, only this time gluten-free.

Being a snacker, I found myself eating more nuts and to save time I bought bags of Diamond shelled walnuts. I swear, I had checked them for safety previously......(famous last words!)

So, I'm eating these daily--mixed into my trail mix, out of the bag--you name it. Even after I found myself getting sick much more often, I thought well, gee--maybe it's another intolerance, an ingredient in my shampoo, my nerves, the heat, the chiropracter..... :lol: I considered everything but these stupid nuts! :P You'd have thought I might have followed some of my own advice! :lol:

Well, during this whole time, I had my regular visit with my GP--and that's how the elevated liver enzymes came up. Two of them were slightly elevated, and after retesting a week later, they were all elevated.

I get referred to the GI, and cut to the testing story above. Somewhere along the line at this point, I get the bright idea to have a look at the bag of nuts--and there it was...."made on the same equipment as wheat....." :huh: does not cover how I felt at that moment.....

When I called the company to confirm this (still in shock at my own stupidity), I was told that "yes, the shelled walnuts are now make along the same lines as the newer flavored walnuts".

B)

trents Grand Master

I had mildly elevated liver enzymes for about 12 years before Celiac dx. After going gluten free for 3 months they were in the normal range. My albumin and total protein remained supressed for about four years after going gluten free, however and are just now back into the low end of normal. I attribute it to live damage 'cause albumen is manufactured by the liver. So I think the answer to your question is yes, it can cause liver damage. The good news is the liver is the most resilliant organ in the body.

Steve


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



photobabe42 Newbie

I had elevated liver enzymes (about 10x too high) during a CMV overload combined with a sinus infection over the summer. At the time, we thought it was due to the amount of Tylenol that I was taking for the headache and fever. The enzymes eventually subsided, but not before I started experiencing some Celiac symptoms like unexplained nausea and D that were attributed at the time to my Crohn's disease. I tested negative for Celiac after asking for the Enterolab test but have started gluten-free anyway (and trying to do casein free too). I wonder if there was any connection to my liver enzymes and the Celiac symptoms. I'm having mixed results on the diet so far and am wondering if I need to cut out other foods for awhile. I would be interested to hear about others who have experienced elevated liver enzymes.

kimis Collaborator
:ph34r:

I was going along fine and last spring I decided to lose some of this weight I've gained as a result of menopause and too many gluten-free baked goods. I had success years ago with a low-carb diet, so I did it again, only this time gluten-free.

Being a snacker, I found myself eating more nuts and to save time I bought bags of Diamond shelled walnuts. I swear, I had checked them for safety previously......(famous last words!)

So, I'm eating these daily--mixed into my trail mix, out of the bag--you name it. Even after I found myself getting sick much more often, I thought well, gee--maybe it's another intolerance, an ingredient in my shampoo, my nerves, the heat, the chiropracter..... :lol: I considered everything but these stupid nuts! :P You'd have thought I might have followed some of my own advice! :lol:

Well, during this whole time, I had my regular visit with my GP--and that's how the elevated liver enzymes came up. Two of them were slightly elevated, and after retesting a week later, they were all elevated.

I get referred to the GI, and cut to the testing story above. Somewhere along the line at this point, I get the bright idea to have a look at the bag of nuts--and there it was...."made on the same equipment as wheat....." :huh: does not cover how I felt at that moment.....

When I called the company to confirm this (still in shock at my own stupidity), I was told that "yes, the shelled walnuts are now make along the same lines as the newer flavored walnuts".

B)

I can't belive your story....Maybe that is why mine are still high! I eat Nature's Path cereal everyday....on the bag it states something about being prossesedin the same facility as wheat. It is the puffed corn cereal, there is no forms of gluten in the cereal.......that CC sucks

jerseyangel Proficient
I can't belive your story....Maybe that is why mine are still high! I eat Nature's Path cereal everyday....on the bag it states something about being prossesedin the same facility as wheat. It is the puffed corn cereal, there is no forms of gluten in the cereal.......that CC sucks

Well, like I said, my GI said that Celiac can affect our liver. Like all the other lovely symptoms, it doesn't happen to everyone and that's why they like to rule out other causes.

Maybe go through your foods and topical products and get out the suspicious stuff and see if that makes a difference :) .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.