Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing Now..but Why Do Non-gluten Foods Make Me React?!

utahlaura

By utahlaura
in Coping with Celiac Disease

Recommended Posts

utahlaura Apprentice
utahlaura
Posted

I'm in the in the initial healing process, and I know it's supposed to be hard. Been diagnosed by endoscopy biopsy. Eating non- gluten of course, bit still have WAY too much trouble reacting to many non-gluten foods. Such as fruit or anything sour...any starchy veggies...milk products. And can I please ever make a non-gluten baked good that I don't react to??? Seems like anything too complicated or diverse sets me off even if the individual ingrediants usualy don't. What up with all this?? I'm so confused!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

I would first suggest doing away with dairy. When I eat gluten or dairy, I react to any and everything. Obviously I don't eat gluten, but for a while I was still feeling pretty gross. I'm either allergic to dairy or intolerant to casein, not sure which... anyway, if I eat dairy products, it's enough to cause a mild "burn" (that's what I call it- "the burn") in my GI tract and everything bothers me for a few days.

Have you been food allergy tested? If you repeatedly ingest a food that you're allergic to, even mildly, you are creating a reaction. If the reaction never stops, you will find that most things bother you.

curlyfries Contributor
curlyfries
Posted

I am 10 months gluten-free, and I still can not tolerate dairy or sugar. Some people also have issues with soy.

dilettantesteph Collaborator
dilettantesteph
Posted

Gluten gives my son GERD. He went on an acid free diet as well as the gluten free one initially. Basically no fat, citrus, chocolate, soda, berries, or tomatoes. Also until healed it is common to be lactose intolerant an not able to handle dairy. Lactase is produced in the intestine, and when damaged not much is produced. My son was able to eat dairy and acid foods after about 2 months gluten free. I am only now able to eat some milk products after almost a year. There is also the possibility that some of those non gluten foods might have some gluten contamination. I got glutened by gluten free baking soda, cocoa etc. that I had used before going gluten free. I must have done some double dipping after having the spoon in flour. That took awhile to figure out. Collanders, cutting boards, etc. can also be a source. It takes awhile to get used to this new diet.

ang1e0251 Contributor
ang1e0251
Posted

You know, quite a lot of celiacs cannot tolerate dairy, some are able to return to it in time. But you must heal first. Probably a good idea to lay off dairy for now at least. I could not tolerate fruits until recently, gluten-free for a year. Better with them now. Be gentle with yourself. After all, it took a long time for you to get this sick, you are not going to heal overnight.

You'll figure out what bothers you over time. If you have a problem, leave for a time then try it again. If you react again then you know. It's all about feeling good, right?

CMCM Rising Star
CMCM
Posted

When I did my testing for gluten, I also found out I was casein sensitive as well. I've been very resistant to eliminating dairy and in fact, I actually find it harder to avoid than gluten. When I first went gluten free, I was also dairy free for maybe 9 months. Then I added it back it in small amounts, and it didn't seem to bother me. I've found that if I don't have it every day, and if I keep it to small amounts, I can manage it. However, I've also realized I have to really limit sugar in all its forms, including fruit, also few to no starches, limited to no nightshades. Sad, but true. My system just does best without these things, unfortunately. :(

ShayFL Enthusiast
ShayFL
Posted

You might consider looking into the SCD diet for healing. It is naturally gluten-free and helps the gut heal and rebalance itself. Dairy is added in after healing has happened.

www.pecanbread.com

Many on this forum have benefited from it when gluten-free was not enough.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Finding gluten free ingredients

      By Kara S · Posted

      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.