Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Gi Says I Am Borderline...

teacherwheart

Recommended Posts

teacherwheart Apprentice
teacherwheart
Posted

Some background 3 months ago my 2 year old was diagnosed with celiac. I tested positive with initial blood worrk, just got my biopsy results and I tested negative, my more indepth blood tests came back borderline - TTG IgG 2f, TTG IgG 7f IgG 14.4. The GI says I dont have it. I do however have 2 minor symptoms (lactose insensitive, some gas issues) besides that I feel fine. Do I go gluten free, wheat free, eat whatever. Not sure what or where to go from here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Most in here will tell you there is no such thing as "borderline". You either do or you dont. It is like you cant be borderline pregnant.

If it were me and I had a POS bloodwork and my child has been Dx with Celiac, then I would go gluten-free for life myself. First, it will be so much easier to have a gluten-free home. Both of you eating gluten-free. Hopefully if you are married your DH will get on board too. It is just so much better and easier to have a gluten-free household.

Also, you and your partner should get genetic testing.

oceangirl Collaborator
oceangirl
Posted

I'd go gluten-free for a few weeks and see if you feel better. If you don't I suppose you could put wheat and it's friends back. But, I agree with Shayfl, if you were positive, it seems you're positive.

And with someone with celiac in the house, being all gluten-free is much easier and less stressful.

Good luck!

lisa

teacherwheart Apprentice
teacherwheart
Posted
  • Author

Thank you, I am going to go gluten free. If my son can do it so can I :D:D

lovegrov Collaborator
lovegrov
Posted

You are or you aren't. Although I'm not a doctor and don't play one online, from what you've said, I'd say you have celiac.

richard

Amber M Explorer
Amber M
Posted
Some background 3 months ago my 2 year old was diagnosed with celiac. I tested positive with initial blood worrk, just got my biopsy results and I tested negative, my more indepth blood tests came back borderline - TTG IgG 2f, TTG IgG 7f IgG 14.4. The GI says I dont have it. I do however have 2 minor symptoms (lactose insensitive, some gas issues) besides that I feel fine. Do I go gluten free, wheat free, eat whatever. Not sure what or where to go from here.

My 1 biopsy said I was negative for Celiac and then my gene test says I am gluten sensitive with genes from both parents making it worse. And, if I contiued to eat gluten, I could develop Celiac disease. I have other severe symptoms and it has been diagnosed as Gluten Ataxia (affecting the cerabelum (base of the brain) causing damage to the motor and nervous system. My point is gluten sensative is equally as bad. I also have lower colon problems. By what you said, I say it is positive, even if mild. It can only get worse if you were to continue. It might be worth geting the gene tests for both you and your childs father.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,817
    • Most Online (within 30 mins)
      7,748
    GFDF23
    Newest Member
    GFDF23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      hmm, I only had a colonoscopy. Would be interesting to have an endoscopy done then I guess.
    • Beverage
      Still unsure.....

      By Beverage · Posted

      You said the colonoscopy showed no damage. Did you also have an endoscopy? The upper colon is where celiac damage would be detected via endoscopy, not the colon.
    • trents
      4 Years and very little progress

      By trents · Posted

      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      4 Years and very little progress

      By Scott Adams · Posted

      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
×
×
  • Create New...