Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Go Out To Eat?


clnewberry1

Recommended Posts

clnewberry1 Contributor

I was just wondering if I will be able to enjoy going out to dinner again? Every sauce seems to have hidden wheat.

It seems that dinner at friends home would be hard too.

Thanks,

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
I was just wondering if I will be able to enjoy going out to dinner again? Every sauce seems to have hidden wheat.

It seems that dinner at friends home would be hard too.

Thanks,

Crystal

Both situations can be landmines, but of the two, friends is probably worse. :( They may very well never "get it."

More and more restaurants have gluten free menus and the employees get at least some training. You have to judge each one individually. I have had good experiences at Outback, but not everyone has. Most restaurants with gluten free menus will tell you that you can order this or that item but without the sauce.

Juliebove Rising Star

We don't eat sauce, unless it's Marinara or meat sauce on gluten free pasta at the Old Spaghetti Factory.

Actually when we do go out, we only go to specific places. There are some Mexican places around here that are good with food allergies. We are limited as to what we can order though.

P.F. Chang's, Chili's and Outback have a gluten-free menu but with our additional food allergies, we haven't tried them.

Mostly we eat at places that cook from scratch and can make special meals for us. But usually we find that a hamburger patty and a plain baked potato and sometimes French fries are a safe bet.

curlyfries Contributor

I rarely even bother going out to eat, but you can try these sites

Open Original Shared Link

Open Original Shared Link

You must keep in mind that there is always a risk. It is a good idea to contact the restaurant ahead of time, and talk to the manager or chef when you get there. Many servers don't have a clue. Make sure they know to cook your food on a clean grill or a separate, clean pan.

ang1e0251 Contributor

I went to Applebee's Friday night and had a good experience. I ate the house steak and added grilled mushrooms. Came with a baked potato and vegetables. It was all good and no reaction.

Lisa16 Collaborator

Last time i went to Aplebees I got well and truly sick, so there you go. it just depends on what you order and how careful they are.

I do not eat out at all if i can avoid it. Every time i have eaten out I have gotten sick.

And I got sick from T-day dinner at mom and dad's from cc. That one really hurts. Next year I will bring my own food.

Lisa

clnewberry1 Contributor
Last time i went to Aplebees I got well and truly sick, so there you go. it just depends on what you order and how careful they are.

I do not eat out at all if i can avoid it. Every time i have eaten out I have gotten sick.

And I got sick from T-day dinner at mom and dad's from cc. That one really hurts. Next year I will bring my own food.

Lisa

I am just wondering if family and friends just don't read the lables and hidden wheat sneaks in? I would have thought Mom/Dad would make sure it was all wheat free but I don't know. I am still so new to this. When you get sick - if you don't mind - what are your symptoms? I tested negative for Celiac Antibodies, but positive for wheat sensativity. I did an elmination diet and added wheat back in but I didn't feel anything digestive anyway. I get terrible panic attacks and anxiety which causes digestive upset. I am wondering if the anxiety is the symptom but I don't know. I have terrible PMS. Anway thanks for the replys.

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

Oh, it is the big D withing about 35-40 minutes of eating the gluten. It is fast. And then I am sick 8-10 times within the first hour or so. It tapers off from there and last 4 days minimum. If I am super lucky (ironic) I will develop DH blisters too. It is painful.

With mom and dad, it was more things like cookie sheets and toast crumbs on the table cloth and prep surfaces. Also there may have been hidden gluten in the basting sauce from the butterball turkey (we called, but they only disclose wheat.)

My mom is what you call "gluten light," but my dad and brother still eat it. I made the pies and lots of the dishes, but you can't control everything when it is not your own house. I worry about utensils and dishes and even pots and pans. And how can you ask them to get all new everything just for me? Nope-- it is just too hard. So next year I will go with tupperware up the wazoo. That's okay. This was the first time out of the blocks for T-day.

You will figure it out too. It just takes a bit and there are lots of mistakes along the way.

MyMississippi Enthusiast

I RARELY eat out--- and when I do, I don't enjoy it---- I'm not a big fan of plain meat and vegetables.

ang1e0251 Contributor

Many posters report panic attacks and anxiety with gluten. I feel sad (depressed), moody and anger on a short fuse as well as mind fog. Some folks do not have the digestive upset but do get the emotional upset. Keep track of your food and reactions for awhile and see if you can't see a pattern between your food and emotional well being. That will tell you your answers, don't rely on a dr or test to answer your questions.

Hope you are feeling in control soon.

lovegrov Collaborator

I eat out on occasion with full knowledge that it's risky, although I also don't have the extreme reactions some here have. Am I doing damage anyway? All I know is my tests are normal.

That said, your best bet is to find local restaurant with a REAL chef that gets it. Somebody mentioned Applebee's. No offense to Applebee's employees, but very few have any idea what's in the food. As for sauces, there are many delicious sauces made from reductions that do not and should not contain gluten. Once again, a real chef will know.

As for a friend cooking for you, it depends on the friend and how much she or he are willing to learn. We have friends who both good cooks. We've been having Christmas Eve dinner with them for many years now and we have continued it with success after my diagnosis. In fact, I think they're more careful now than my wife and son, who have gotten somewhat complacent. They have yet to ruin my Christmas day.

richard

lovegrov Collaborator

"Both situations can be landmines, but of the two, friends is probably worse. They may very well never "get it."

But then again they might. I have several friends who have gotten it.

richard

pickle Newbie
I was just wondering if I will be able to enjoy going out to dinner again? Every sauce seems to have hidden wheat.

It seems that dinner at friends home would be hard too.

Thanks,

Crystal

I hope this is ok to mention, but I'm an admin of a site that has the goal of aiding the gluten free traveler find places/products to eat. We are gathering international and national locations, and have places for reviews so even if Joe Blow had a great time, if you got sick you could mention for other diners to beware. We're trying to figure out some sort of rating system to distinguish the places that say order without bun (duh) which might not cut it, from those that say order without sauce (bland, but better informed at least), to those that provide good subs or even a separate menu with decent choices.

As far as family and friends, I have my own set of cutlery, dishes, utensils, etc set aside for the reasons mentioned above. People who don't have allergies just don't understand how serious it is. Just a little bit couldn't hurt? What does it matter what touched the knife? But how else can you eat/make xyz? Yes, it matters, I don't eat it or I eat it this other way. gah! When I go out to friends/family I always bring something we can eat, and i bring enough to share, but if I see that there aren't too many other options for us I am assertive in "hogging" what we brought to make sure we get to eat something.

Good luck, it gets easier as you learn what to expect and what to ask!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.