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gluten-free/celiac Gi Specialist In Santa Fe


luciddream928

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luciddream928 Explorer

Anyone know of any? I have one but might look for a 2nd opinion in the future...

  • 1 month later...

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Tequila Newbie
Anyone know of any? I have one but might look for a 2nd opinion in the future...

I don't know of any specialists. They know about it at the GI place, but I had a lot of questions they couldn't answer. I was diagnosed by blood test by my dr, but I wanted to get an endoscopy, I just waited too long and it was negative. What kind of help are you looking for?

luciddream928 Explorer
I don't know of any specialists. They know about it at the GI place, but I had a lot of questions they couldn't answer. I was diagnosed by blood test by my dr, but I wanted to get an endoscopy, I just waited too long and it was negative. What kind of help are you looking for?

Wow, thanks so much for the reply - I posted this months ago. Since that post, I've had a colonoscopy/endoscopy/2 biopsies, all normal (but that was on a gluten-free diet for 6 months, which I asked about, and they said "Diet doesn't matter.").

I'm not sure if gluten is my problem anymore, they're saying it's IBS, but I've read in the research that gluten is related to IBS, IBD, etc. I've cut out all dairy as well, and that has helped a lot. I feel like the gluten diet helped to mitigate the symptoms (especially irritability and depression, sleeplessness and constant fatigue), and stopping dairy practically eliminated them. But I'm still not 100%.

I'm looking for a specialist who can close the gap between the conflicting information I've been told. Everyone on this forum who has responded insists that diet does matter, and so did my acupuncturist, but then I went to a reputable GI in Los Alamos and he says it doesn't matter with Prometheus blood tests because they test for an enzyme in your blood.

I wouldn't be so conflicted if I could just trust that the enterolab results were correct (see my signature).

Thank you for the response. Are you celiac or gluten intolerant?

Tequila Newbie
Wow, thanks so much for the reply - I posted this months ago. Since that post, I've had a colonoscopy/endoscopy/2 biopsies, all normal (but that was on a gluten-free diet for 6 months, which I asked about, and they said "Diet doesn't matter.").

I'm not sure if gluten is my problem anymore, they're saying it's IBS, but I've read in the research that gluten is related to IBS, IBD, etc. I've cut out all dairy as well, and that has helped a lot. I feel like the gluten diet helped to mitigate the symptoms (especially irritability and depression, sleeplessness and constant fatigue), and stopping dairy practically eliminated them. But I'm still not 100%.

I'm looking for a specialist who can close the gap between the conflicting information I've been told. Everyone on this forum who has responded insists that diet does matter, and so did my acupuncturist, but then I went to a reputable GI in Los Alamos and he says it doesn't matter with Prometheus blood tests because they test for an enzyme in your blood.

I wouldn't be so conflicted if I could just trust that the enterolab results were correct (see my signature).

Thank you for the response. Are you celiac or gluten intolerant?

I'm Celiac, runs in the family so it wasn't really a surprise when it started, and since I knew about it I was diagnosed in about a week and therefore hopefully hadn't suffered too much damage like my mother and grandmother had. I don't at all look like I'm malnourished :) It would have been nice to lose atleast a few pounds. I am also lactose intolerant. It took a while to figure that out exactly, but for me I can have dairy as long as its lactose free. I'm not sure why the drs said diet didn't matter. 6 months should be enough time to heal for the biopsy. The drs I talked to said if you want the biopsy you should go back on gluten for a few weeks, no thanks. The blood tests are even more sensitive. If you are actively sick the antibodies will have built up but over time they may go below detectable levels. If you get sick again, you should ask for the blood test for the transglutaminase within a week of getting sick. I think it would be hard to be negative in that situation. I think it's hard to diagnose if you have been on the diet for a long time, did your drs sound like they knew what they were talking about?

  • 8 months later...
mrsbks2008 Newbie
Anyone know of any? I have one but might look for a 2nd opinion in the future...

Did you ever find a specialist in the Santa Fe/Los Alamos area? I was told by a nutritionist that I am gluten intolerant. I've been on a GFCFSF diet for a year now and it seems like I'm getting the "glutened" feeling again from other foods. My nutritionist said I'm not celiac, but now I'm not so sure.

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    • DebJ14
      Migraines ran in my family, on my father's side.  All of my female first cousins on that side, and our grandmother suffered from Migraines.  Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007.  The dermatitis herpetiformis rash is a blistery, super itchy rash.  When they do the biopsy they take it from non-involved skin that is next to the rash.  If done wrong, the results may not be accurate.  Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy.  But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.  
    • trents
      Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
    • NCalvo822
      Definitely useful info. Thank you!
    • Scott Adams
      It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • NCalvo822
      Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist and an allergist for many years. The allergist has run many tests for my skin issues, but concluded I am not allergic to anything. I do occasionally get hives and am on daily medication to control the hives and other rashes or similar issues. At my last appt with allergist recently, I informed them of my new diagnosis of celiac disease. They said that it has nothing to do with my skin issues. They didn’t even put it in my chart. I know because I read the notes from the visit on the patient portal. However, your post has me second guessing my skin issues and possible connection to celiac disease.
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