Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Picky Eater Who Has Celiac Age 11 Just Found Out


Charron

Recommended Posts

Charron Newbie

Hi my son age 11 yrs was dignosed the day before Thanksgiving. he has always been a picky eater. I have tried diffent gluten free food and he has not like them. I see how hard it is for him and how hard it is for him to deal with. I am also on a fix incom and find the food out ragesly priced. I have idenical twin girls who are going to be tested to make sur they don't have celiac. At night I search the web to educat myself, but its hard. I would love any Idea's how to get him to eat better. and try more food that tast a litte better. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Gluten free food is expensive, and a lot of it is horrible. I don't know how many dollars worth I threw away after one bite. If you eat fruits, vegetables, meats and rice it isn't expensive, but you do have to cook a lot. Some potato chips are O.K. as are some corn chips, pudding, cheese, ice cream. A lot of that gluten free food is cross contaminated with gluten anyway. Good luck.

shayesmom Rookie
Hi my son age 11 yrs was dignosed the day before Thanksgiving. he has always been a picky eater. I have tried diffent gluten free food and he has not like them. I see how hard it is for him and how hard it is for him to deal with. I am also on a fix incom and find the food out ragesly priced. I have idenical twin girls who are going to be tested to make sur they don't have celiac. At night I search the web to educat myself, but its hard. I would love any Idea's how to get him to eat better. and try more food that tast a litte better. :(

Looking back, I think that one of the most difficult things to deal with was the shift in attitude that needed to occur once we went gluten-free. In our case, at first, I tried changing out our "normal" foods for gluten-free ones. And some of the substitutes were just nasty! We relied too heavily on using bread or "breaded" products because that was how we ate at the time.

I found that the more we focused on all that we couldn't have, the harder the diet was. What had to change was our focus on all that we COULD have.....and how to promote those items to our advantage. We try to stick with as many foods as we can that are naturally gluten-free for all meals. The expensive, specialty items are kept for treats, special occasions, and sometimes snacks. I've learned to shop the internet for the specialty items. Many can be found at nearly 1/2 the cost on-line. This has really expanded our options as we also are on a more "fixed" income. And my dd also has to avoid dairy, soy and eggs. :o

If it would help, please post more information as to what types of food ideas you're looking for and we can all try to help....or at least give some reviews as to what's tasty and what's not.

missy'smom Collaborator

It may be that he is picky because things make him feel not so good. He may change. It takes time for our systems to heal and even then we often feel better with certain routines. Introduce new things from time to time and in small quantity. Start with the things that he already likes that are naturally/already gluten-free. We like fruit so I make/buy alot of fruit based snacks and we try a new one every once in a while-we tried a fresh pomegranate over the holidays. If I find one thing we like-be it a product, recipe or ingredient then I brainstorm how I can use it in other ways. I have 3 ways to season a roasted chicken, 4 ways to dress up a pancake mix etc. that builds easy variety. My son doesn't like any of the gluten-free bread and is happy with rice and potatoes, so I send rice most of the time for school lunch. He will occasionally eat a grilled cheese on the gluten-free bread though. You can easily make homemade chicken nuggets and there are some fries from Ore-Ida that are gluten-free. Open Original Shared Link

For snacks we make/buy alot of air popped popcorn, natural fruit leathers, fruit juice gelatin made with juice and unflavored gelatin(plain or with added fruit), fruit juice popsicles-juice poured into dollar store popsicle molds, apple crisp

Jaimepsalm63 Rookie

I've decided to do plain/lightly salted rice cakes instead of the gluten free bread for "sandwiches" or using them instead of popcorn. (One of my sons can't have corn, soy, or oats while another son can't have dairy...I'm the one who has to be gluten free and can't digest corn at all.) They come in a variety of flavors too if you're looking for that. They are crunchy (which most people love once in a while) and more stable than bread (can use them like a tostada). Big benefit is spending half the price for the same "amount".

Also, Wal-Mart is great for labeling their generic products gluten free!! Kudos to Wally world!!

I also get Pamela's choc brownie mix for special occasions only. Talk about something that is rich and very tasty...yum! I use a lot of Pamela's products if I want pancakes, bread, cakes.

At King Sooper's (If you have one near you and they work with this group), at least here in Colorado...they carry UDI bakery goods. They are also expensive and an occasional treat (I love their blueberry muffins and cinnamon rolls).

In the Colorado Springs area is a dedicated bakery called Out of the Breadbox, they have breads, cookies, pies, crackers. Very expensive, but worth it for an occasional treat too.

What stinks is that gluten free food like breads and pastas and such are very expensive, but the alternative is much worse. I usually stick to rice, potatoes, fruits, vegetables, and meats (or at least I did before my gastroparesis got really bad). I saved the specialty items for special occasions.

Good luck and I hope your little one starts feeling better.

Jaime

ang1e0251 Contributor

A year ago when I started the gluten-free diet, my husband had been laid off and his unemployment had just run out. Not only couldn't I afford to be tested, there was no way I could afford any specialty foods. I just ate very simply and, you know, now that my situation is better I still buy few of those items. They're expensive, a lot taste like cardboard, and they just don't digest that well for me.

I don't eat gluten-free bread. I did eventually find a recipe that wasn't too bad, but it kind of sits like a stone inside me. When I started out, I used toasted corn tortillas in place of anything I used to eat bread for. I still do that. I eat with butter with my eggs, use them as a base for pizza and for PB & J. They are delicious and cheap, less than $4 for a pack of 100 at Walmart. That lasts me more than a month and they have never gone bad in my fridge.

We eat rice at nearly every meal. My husband is Colombian and that was normal for him. He's very happy to eat that much rice and my system loves it.

I bake the no flour peanut butter cookies and everyone likes those. I make Death by Chocolate cake. It only calls for 4 tablespoons of flour so I sub cornstarch for that...yum!

I like corn or rice pasta that I buy at Walmart. It's not expensive, DeBoles is the brand.

You don't have to eat expensive foods on this diet. You do need to cook but that's healthier for all of us anyway.

Hang in there, he will soon find foods that work and you'll learn all that you need to. Just take it slowly.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Going for upper endoscopy today

    2. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    4. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,265
    • Most Online (within 30 mins)
      7,748

    Midwesteaglesfan
    Newest Member
    Midwesteaglesfan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.