Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question For The Ladies


mmmSmores

Recommended Posts

mmmSmores Apprentice

I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal pre-menstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal premenstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

I don't know your age, but I started experiencing peri-menopause symptoms, including tender breast, at age 35, several years prior to my diagnosis. It lasted a good ten years.

JNBunnie1 Community Regular
I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal pre-menstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

It could easily be your body is detoxing and will cause inflammation, and breasts are naturally more reactive to that. But breasts are not something to toy with (pun intended) so I would at least mention it to a doctor, including your newly gluten-free status.

ShayFL Enthusiast

I agree. I have had tender breasts for years. But the doc. knows about it and I get checked out every year. Better safe.

MELINE Enthusiast

going gluten free causes changes in your hormones. It is a whole revolution for your body. Talk to your doctor, I agree. The only problem I had when I went gluten free was irregular period (which was regular for 14 years in a row). This irregularity lasted about 8 months.

....there is always a chance that this has nothing to do with going gluten free!!

Meline

Bell Apprentice

I've been gluten free for a few months now, and I definitely noticed some tenderness in my breasts. How are your hormone levels? I had hoped that the tenderness was a sign that my system was waking itself up, and hopefully that my periods would return to normal, after vanishing for the last year.

any other pre/post-diagnosis symptoms? I'm really curious, as I've never heard anyone else mention the breast pain!

bell

mmmSmores Apprentice
I've been gluten free for a few months now, and I definitely noticed some tenderness in my breasts. How are your hormone levels? I had hoped that the tenderness was a sign that my system was waking itself up, and hopefully that my periods would return to normal, after vanishing for the last year.

any other pre/post-diagnosis symptoms? I'm really curious, as I've never heard anyone else mention the breast pain!

bell

Bell is my last name! Weird...anyway, I just noticed it in the past few weeks. before they would be sore about the week befor my period. But now, it seems that a few days after it is over, they are sore (like it hurts to run up/down the stairs!) I can't really pinpoint any other symptoms...i can def. tell when i get glutened. its weird to feel bad for so long, that once you feel good, if you get hit with it, its bad! I can say that my menstrual cramp have decreased.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



purple Community Regular

My 19 yr old (now 20), didn't have tenderness ...but...she grew a whole cup size in a couple of months and had to get rid of her new bras and buy bigger ones...ha! ;)

kbtoyssni Contributor

I was also going to suggest maybe they're getting bigger and the tenderness if from that. Some people won't go through puberty completely when eating gluten so going gluten free will cause puberty to finish up. Probably not a bad idea to mention it to your doctor though.

DarkIvy Explorer

When I went gluten-free, I grew a couple of sizes. Even then I wasn't completely gluten-free (in college, in a sorority house, couldn't cook for myself) and now that I'm totally gluten-free things have gotten a bit bigger again.

The first time around, I noticed a lot of soreness/tenderness. I never mentioned it to my doc, but I have a friend who says that breasts are like one big stress absorber and can start to hurt when you are stressed. I was pretty stressed at the time, but I'm not entirely sure I believe it.

minton Contributor

I never had breast pain before diagnosis but now it happens alot. Before, after, and during my period. They have also grown and I spoke to two doctors about it. One knows little of celiac but confirmed I'm not pregnant so I talked to the other. He's like a gluten free guru to me and he said it's somewhat common from what he's seen. It's like a second time around for starting puberty!

Jenny (AZ via TX) Enthusiast

I had breast tenderness too. I'm 48 and according to the doctor, perimenopausal. I am also estrogen dominant so I am on a sublingual progesterone to help even out the estrogen. It has helped me a lot.

nutrifoodie Apprentice

This is so interesting.. When I went gluten free in February.. all my periods after that were weird. I had a few heavy ones and light ones.. and then puttery ones, and then they just went away. I haven't had a normal period since March/April. I had breast tenderness/swelling before (after going gluten-free) and then it stopped, and then my periods stopped...

I also have subclinical hypothyroid that seemingly got worse quickly, and we are still figuring out the correct dosage. But I am starting to feel better. I need to get my periods back though, even though it's been glorious not having any ;)

Bell Apprentice

The stress of celiac disease definitely unbalances your body, hormones included. All I can think is that as long as we are eating the right diet, the hormones should be (gradually) returning to their correct levels, as far as they are able to. But then again, it is possible too that there has been some actual damage in the body's regulating system, and it will take more time and work before things settle back.

it seems strange that for you, nutrifoodie, they seem to have got worse initially. I hope this is only a part of the healing process, and not a longer term problem. It's odd, because I remember reading that absent periods were more likely to be related to hyperthyroidism than hypo.

nutrifoodie Apprentice
The stress of celiac disease definitely unbalances your body, hormones included. All I can think is that as long as we are eating the right diet, the hormones should be (gradually) returning to their correct levels, as far as they are able to. But then again, it is possible too that there has been some actual damage in the body's regulating system, and it will take more time and work before things settle back.

it seems strange that for you, nutrifoodie, they seem to have got worse initially. I hope this is only a part of the healing process, and not a longer term problem. It's odd, because I remember reading that absent periods were more likely to be related to hyperthyroidism than hypo.

I have to say no about the hyperthyroid.

I definitely have HYPOthyroid, that wasn't what I was hinting at.

My point was that after going gluten free my hormones started changing. Amenorhea is connected to hypothyroidism, as well, so that's why I mentioned that.

Sorry if that was confusing, you can message me if you wish to clarify.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.