Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question For The Ladies


mmmSmores

Recommended Posts

mmmSmores Apprentice

I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal pre-menstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal premenstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

I don't know your age, but I started experiencing peri-menopause symptoms, including tender breast, at age 35, several years prior to my diagnosis. It lasted a good ten years.

JNBunnie1 Community Regular
I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal pre-menstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

It could easily be your body is detoxing and will cause inflammation, and breasts are naturally more reactive to that. But breasts are not something to toy with (pun intended) so I would at least mention it to a doctor, including your newly gluten-free status.

ShayFL Enthusiast

I agree. I have had tender breasts for years. But the doc. knows about it and I get checked out every year. Better safe.

MELINE Enthusiast

going gluten free causes changes in your hormones. It is a whole revolution for your body. Talk to your doctor, I agree. The only problem I had when I went gluten free was irregular period (which was regular for 14 years in a row). This irregularity lasted about 8 months.

....there is always a chance that this has nothing to do with going gluten free!!

Meline

Bell Apprentice

I've been gluten free for a few months now, and I definitely noticed some tenderness in my breasts. How are your hormone levels? I had hoped that the tenderness was a sign that my system was waking itself up, and hopefully that my periods would return to normal, after vanishing for the last year.

any other pre/post-diagnosis symptoms? I'm really curious, as I've never heard anyone else mention the breast pain!

bell

mmmSmores Apprentice
I've been gluten free for a few months now, and I definitely noticed some tenderness in my breasts. How are your hormone levels? I had hoped that the tenderness was a sign that my system was waking itself up, and hopefully that my periods would return to normal, after vanishing for the last year.

any other pre/post-diagnosis symptoms? I'm really curious, as I've never heard anyone else mention the breast pain!

bell

Bell is my last name! Weird...anyway, I just noticed it in the past few weeks. before they would be sore about the week befor my period. But now, it seems that a few days after it is over, they are sore (like it hurts to run up/down the stairs!) I can't really pinpoint any other symptoms...i can def. tell when i get glutened. its weird to feel bad for so long, that once you feel good, if you get hit with it, its bad! I can say that my menstrual cramp have decreased.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



purple Community Regular

My 19 yr old (now 20), didn't have tenderness ...but...she grew a whole cup size in a couple of months and had to get rid of her new bras and buy bigger ones...ha! ;)

kbtoyssni Contributor

I was also going to suggest maybe they're getting bigger and the tenderness if from that. Some people won't go through puberty completely when eating gluten so going gluten free will cause puberty to finish up. Probably not a bad idea to mention it to your doctor though.

DarkIvy Explorer

When I went gluten-free, I grew a couple of sizes. Even then I wasn't completely gluten-free (in college, in a sorority house, couldn't cook for myself) and now that I'm totally gluten-free things have gotten a bit bigger again.

The first time around, I noticed a lot of soreness/tenderness. I never mentioned it to my doc, but I have a friend who says that breasts are like one big stress absorber and can start to hurt when you are stressed. I was pretty stressed at the time, but I'm not entirely sure I believe it.

minton Contributor

I never had breast pain before diagnosis but now it happens alot. Before, after, and during my period. They have also grown and I spoke to two doctors about it. One knows little of celiac but confirmed I'm not pregnant so I talked to the other. He's like a gluten free guru to me and he said it's somewhat common from what he's seen. It's like a second time around for starting puberty!

Jenny (AZ via TX) Enthusiast

I had breast tenderness too. I'm 48 and according to the doctor, perimenopausal. I am also estrogen dominant so I am on a sublingual progesterone to help even out the estrogen. It has helped me a lot.

nutrifoodie Apprentice

This is so interesting.. When I went gluten free in February.. all my periods after that were weird. I had a few heavy ones and light ones.. and then puttery ones, and then they just went away. I haven't had a normal period since March/April. I had breast tenderness/swelling before (after going gluten-free) and then it stopped, and then my periods stopped...

I also have subclinical hypothyroid that seemingly got worse quickly, and we are still figuring out the correct dosage. But I am starting to feel better. I need to get my periods back though, even though it's been glorious not having any ;)

Bell Apprentice

The stress of celiac disease definitely unbalances your body, hormones included. All I can think is that as long as we are eating the right diet, the hormones should be (gradually) returning to their correct levels, as far as they are able to. But then again, it is possible too that there has been some actual damage in the body's regulating system, and it will take more time and work before things settle back.

it seems strange that for you, nutrifoodie, they seem to have got worse initially. I hope this is only a part of the healing process, and not a longer term problem. It's odd, because I remember reading that absent periods were more likely to be related to hyperthyroidism than hypo.

nutrifoodie Apprentice
The stress of celiac disease definitely unbalances your body, hormones included. All I can think is that as long as we are eating the right diet, the hormones should be (gradually) returning to their correct levels, as far as they are able to. But then again, it is possible too that there has been some actual damage in the body's regulating system, and it will take more time and work before things settle back.

it seems strange that for you, nutrifoodie, they seem to have got worse initially. I hope this is only a part of the healing process, and not a longer term problem. It's odd, because I remember reading that absent periods were more likely to be related to hyperthyroidism than hypo.

I have to say no about the hyperthyroid.

I definitely have HYPOthyroid, that wasn't what I was hinting at.

My point was that after going gluten free my hormones started changing. Amenorhea is connected to hypothyroidism, as well, so that's why I mentioned that.

Sorry if that was confusing, you can message me if you wish to clarify.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.