Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question For The Ladies


mmmSmores

Recommended Posts

mmmSmores Apprentice

I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal pre-menstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal premenstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

I don't know your age, but I started experiencing peri-menopause symptoms, including tender breast, at age 35, several years prior to my diagnosis. It lasted a good ten years.

JNBunnie1 Community Regular
I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal pre-menstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

It could easily be your body is detoxing and will cause inflammation, and breasts are naturally more reactive to that. But breasts are not something to toy with (pun intended) so I would at least mention it to a doctor, including your newly gluten-free status.

ShayFL Enthusiast

I agree. I have had tender breasts for years. But the doc. knows about it and I get checked out every year. Better safe.

MELINE Enthusiast

going gluten free causes changes in your hormones. It is a whole revolution for your body. Talk to your doctor, I agree. The only problem I had when I went gluten free was irregular period (which was regular for 14 years in a row). This irregularity lasted about 8 months.

....there is always a chance that this has nothing to do with going gluten free!!

Meline

Bell Apprentice

I've been gluten free for a few months now, and I definitely noticed some tenderness in my breasts. How are your hormone levels? I had hoped that the tenderness was a sign that my system was waking itself up, and hopefully that my periods would return to normal, after vanishing for the last year.

any other pre/post-diagnosis symptoms? I'm really curious, as I've never heard anyone else mention the breast pain!

bell

mmmSmores Apprentice
I've been gluten free for a few months now, and I definitely noticed some tenderness in my breasts. How are your hormone levels? I had hoped that the tenderness was a sign that my system was waking itself up, and hopefully that my periods would return to normal, after vanishing for the last year.

any other pre/post-diagnosis symptoms? I'm really curious, as I've never heard anyone else mention the breast pain!

bell

Bell is my last name! Weird...anyway, I just noticed it in the past few weeks. before they would be sore about the week befor my period. But now, it seems that a few days after it is over, they are sore (like it hurts to run up/down the stairs!) I can't really pinpoint any other symptoms...i can def. tell when i get glutened. its weird to feel bad for so long, that once you feel good, if you get hit with it, its bad! I can say that my menstrual cramp have decreased.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



purple Community Regular

My 19 yr old (now 20), didn't have tenderness ...but...she grew a whole cup size in a couple of months and had to get rid of her new bras and buy bigger ones...ha! ;)

kbtoyssni Contributor

I was also going to suggest maybe they're getting bigger and the tenderness if from that. Some people won't go through puberty completely when eating gluten so going gluten free will cause puberty to finish up. Probably not a bad idea to mention it to your doctor though.

DarkIvy Explorer

When I went gluten-free, I grew a couple of sizes. Even then I wasn't completely gluten-free (in college, in a sorority house, couldn't cook for myself) and now that I'm totally gluten-free things have gotten a bit bigger again.

The first time around, I noticed a lot of soreness/tenderness. I never mentioned it to my doc, but I have a friend who says that breasts are like one big stress absorber and can start to hurt when you are stressed. I was pretty stressed at the time, but I'm not entirely sure I believe it.

minton Contributor

I never had breast pain before diagnosis but now it happens alot. Before, after, and during my period. They have also grown and I spoke to two doctors about it. One knows little of celiac but confirmed I'm not pregnant so I talked to the other. He's like a gluten free guru to me and he said it's somewhat common from what he's seen. It's like a second time around for starting puberty!

Jenny (AZ via TX) Enthusiast

I had breast tenderness too. I'm 48 and according to the doctor, perimenopausal. I am also estrogen dominant so I am on a sublingual progesterone to help even out the estrogen. It has helped me a lot.

nutrifoodie Apprentice

This is so interesting.. When I went gluten free in February.. all my periods after that were weird. I had a few heavy ones and light ones.. and then puttery ones, and then they just went away. I haven't had a normal period since March/April. I had breast tenderness/swelling before (after going gluten-free) and then it stopped, and then my periods stopped...

I also have subclinical hypothyroid that seemingly got worse quickly, and we are still figuring out the correct dosage. But I am starting to feel better. I need to get my periods back though, even though it's been glorious not having any ;)

Bell Apprentice

The stress of celiac disease definitely unbalances your body, hormones included. All I can think is that as long as we are eating the right diet, the hormones should be (gradually) returning to their correct levels, as far as they are able to. But then again, it is possible too that there has been some actual damage in the body's regulating system, and it will take more time and work before things settle back.

it seems strange that for you, nutrifoodie, they seem to have got worse initially. I hope this is only a part of the healing process, and not a longer term problem. It's odd, because I remember reading that absent periods were more likely to be related to hyperthyroidism than hypo.

nutrifoodie Apprentice
The stress of celiac disease definitely unbalances your body, hormones included. All I can think is that as long as we are eating the right diet, the hormones should be (gradually) returning to their correct levels, as far as they are able to. But then again, it is possible too that there has been some actual damage in the body's regulating system, and it will take more time and work before things settle back.

it seems strange that for you, nutrifoodie, they seem to have got worse initially. I hope this is only a part of the healing process, and not a longer term problem. It's odd, because I remember reading that absent periods were more likely to be related to hyperthyroidism than hypo.

I have to say no about the hyperthyroid.

I definitely have HYPOthyroid, that wasn't what I was hinting at.

My point was that after going gluten free my hormones started changing. Amenorhea is connected to hypothyroidism, as well, so that's why I mentioned that.

Sorry if that was confusing, you can message me if you wish to clarify.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.