Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened?

fran641

By fran641
in Coping with Celiac Disease

Recommended Posts

fran641 Contributor
fran641
Posted

Still new, only 6 days. I hear the phrase "got glutened" often and I understand that it would mean you accidentally ingested gluten but my question is what happens to your body? Do you experience the same symptoms as before you became gluten free? Like a week ago I had pain, cramps, bloating, the Big D and nasty gas (don't I sound like the ideal date? if I were single) panic attacks for fear of accidents in public. This was with almost every meal. Is that what I have to look forward to if I ingest gluten once I'm cleared out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ladywinger Newbie
ladywinger
Posted

Still new, only 6 days. I hear the phrase "got glutened" often and I understand that it would mean you accidentally ingested gluten but my question is what happens to your body? "got glutened" for me is accidentally ingesting gluten. If you continue to "get glutened" you will eventually damage so many of your organs....immune system and you could get Lymphoma....I was misdiagnosed for many many years, since birth until diagnosis...(59 years)...when I finally got the diagnosis of Lymphoma is when they discovered celiac disease.

Do you experience the same symptoms as before you became gluten free? For me Yes!!

Like a week ago I had pain, cramps, bloating, the Big D and nasty gas (don't I sound like the ideal date? if I were single) panic attacks for fear of accidents in public. Yes, I have to know where every bathroom is when I am away from home.

This was with almost every meal. Is that what I have to look forward to if I ingest gluten once I'm cleared out. For me yes. I have been able to get out and do more lately....Some of my running to the bathroom so often now is also contributed by the chemo that I am on.

Like I said, I can do more now....just a lot of pre-planning.

spinsterwitch Rookie
spinsterwitch
Posted

Yes, almost the exact same symptoms...and you start to see how sensitive you really are when it happens.

The internet is your friend. Whole Foods and Trader Joe's have gluten-free shopping lists. You can download them, or ask the nice store manager. Walgreens has a gluten-free list of the medications they sell. Seriously, consult this before taking anything.

If in doubt, call the manufacturer or the restaurant.

1morething Explorer
1morething
Posted

I actually just got glutened this past Saturday at a restaurant. I was so careful about ordering my steak without spices, my desert chocolate moose without cookie, but I didn't ask about the salad dressing. Well 1 hours after having the salad, the cramps and bloating came back. I was so in pain. Yesterday I was so tired and today the diarrhea. So yes, those are the same symptoms I had before starting the diet which was 2 months ago. I was feeling so good since going gluten free. Now I know if I accidentally eat something, I'll feel it.

Good luck

Rachel

cat3883 Explorer
cat3883
Posted

My symptoms are acutally worse than before I was diagnosed. I get an instant migraine and it goes downhill from there. I hope I never have that poison in my body again.

fran641 Contributor
fran641
Posted
  • Author

Ladywinger, I am sorry to hear about your diagnosis of lymphoma. I pray you will have a good recovery. That was actually my next test when they found the Celiac. If I'm not improved by my Dec. 30 visit the doc will consider a lymph gland biopsy. But right now it looks like the gluten-free seems to be helping. Today I have been sorting and cleaning out the spice cupboard and now I have nausea. I guess it's the spice dust that gets on the shelves. But I am relieved it's done.

Thanks to everyone who responded, I so appreciate the help.

  • 2 weeks later...
lokinetworks Newbie
lokinetworks
Posted

My first sign that I was glutened was depression. I woke up and laid in bed praying to god that he just take me. The whole day I experienced stomach cramps and nausea. I couldn't figure it out until I read the label on the spaghetti sauce

I ate the night before. For the next 48 to 72 hours I felt like I was hit by a bus. I could hardly walk.Everything ached, even my jaw!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bremac Apprentice
bremac
Posted

I was diagnosed 7 and a hal years ago and rarely get accidentally "glutenated" but I make mistakes especially with cross contamination. I would say I am more sensitive now and have worse reactions. I tend to vomit and then have diarrhea...NICE :P But the more you heal and your villi start to come back, you will feel better and only get sick when accidents happen.

fran641 Contributor
fran641
Posted
  • Author
I was diagnosed 7 and a hal years ago and rarely get accidentally "glutenated" but I make mistakes especially with cross contamination. I would say I am more sensitive now and have worse reactions. I tend to vomit and then have diarrhea...NICE :P But the more you heal and your villi start to come back, you will feel better and only get sick when accidents happen.

It's funny that you should mention vomiting, well not funny you know what I mean. The one symptom I had tonight was a lot of nausea. :( I didn't get that very often before this gluten-free diet. I can't track any gluten I had but I think it may be some super sweet brownies I made that are gluten-free. Or I just overate. Anyway I'm crawling in bed to get over the sick stomach and hope to wake up good as new.

IMWalt Contributor
IMWalt
Posted

I usually can tell by an excess of gas and cramps. Then the next day I'll have D a few times, and then loose stools for anywhere from 3 to 5 days. Lately I also seem to get dizzy for a while. Luckily I have not yet vomited, and I don't get the extreme fatigue many experience.

Walt

TES Newbie
TES
Posted

I am newly self diagnosed. Since going gluten free, My symptoms which include gut, brain, and skin, all are improving, except when I get gluten back in my system, not quite as bad, but still miserable. I am having trouble with labels stating they are gluten free, but have either white vinegar, vanilla or food coloring, which all give me gluten symptoms. I decided I could make my own candy for Christmas and the Karo syrup with real vanilla gave me symptoms. Contacted Karo syrup, they said vanilla was lab produced, no grain alcohol was and gluten free. Made me sick????

ang1e0251 Contributor
ang1e0251
Posted

Did they add coloring to their vanilla? I found I am sensitive to some food products with caramel coloring even though it shouldn't be a problem in the US. My reactions vary but always have D and gas but other symptoms can crop up. It is more severe than before the gluten-free diet. But that was true when I went off fresh dairy too. Hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.