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Please Help With Results

socalmomto2

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socalmomto2 Newbie
socalmomto2
Posted

Can someone help me with these results... my sons Ped. Is an IDIOT!!! first he tells me I am crazy to even want any test run, then when it comes back he says his IGG is slightly elevated and everything els is fine... UM... IGA is VERY elevated, IGG is neg. and everything else is not fine... his ANA is positive.

My son had chronic diareaha from 9 weeks onld until he was a year old and we took him off formula. he only gained 4 pounds in the 4 1/2 months following birth (born at 8lbs 15 oz) he was put on Isomil DF (it is loaded with fiber) to help him pass a normal stool, but all the fiber took all the nutrients along with it. Now he is 7 and has chronic constipation, horrible bowel movements, and is becoming more and more out of control behavioral wise. To the point where he is seeing a counselor who was looking at Ashbergers (a form of Autism Spectrum Disorder) and Bipolar... (it isn't bipolar) I just don't know what to do... what do these results mean, as the ped won't give me any info on it...

his results are the bold... with the range for each test he had done...

Endomysial Antibody Screen (IGA) with reflex to titer

Negative

TNP-screening test negative. Titer not performed

Tissue Transglutaminase

Antibody, IGA

TTG Antibody, IGA

<3

negative <5

equivocal 5-8

positive >8

Gliadin Antibody

(IGG, IGA)

Gliadin Antibody (IGA)

84

negative <11

equivocal 11-17

positive >17

Gliadin Antibody (IGG)

3

negative <11

equivocal 11-17

positive >17

ANACHOICE Screen

W/ REFL to TITER, IFA

ANACHOICE SCREEN

POSITIVE

AntiNuclear Antibodies

Titer and Pattern

Speckled

AntiNuclear Antibodies

1:80

Reference range

<1:40 Negative

1:40 - 1:79 Low antibody level

>1:80 Elevated antibody level

Immunoglobulin G

798

673 - 1734 mg/dL reference range

So... his Gliadin Antibody IGA is very high, he is ANA positive, and his Immunoglobulin is on the lower end of the range...

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ShayFL Enthusiast
ShayFL
Posted

You dont need a doctor's permission to put him on a gluten-free diet. It is very difficult to get a POS result on children under age 6 when they have ACTIVE Celiac. So getting any POS result is very TELLING. His little body is reacting to gliadin and likely gluten as well. When he is 7 you might very well get a POS for Celiac, but the damage could be horrendous by then. His ANA is elevated which shows inflammation. By age 7 he could have full blown autoimmune disease (Type 1 diabetes being most common in children with Celiac).

You have nothing to lose by trying him on a gluten-free diet and everything to gain at this point. I would nix dairy too until he is all healed. Then try reintroducing dairy to see how he reacts. A lot of people/children have to cut dairy till the tips of their villi heal.

You might also opt for a genetic test to see if you have Celiac genes. It does not dx Celiac, but is another piece to the puzzle. If your doctor says no, you can use Enterolab for genetic testing without a doctor's Rx.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

It's possible that your son does not have celiac disease (at least not yet), but he's definitely having an autoimmune reaction to wheat. You should absolutely get him on a gluten-free diet! Having a positive ANA at such a young age is NOT good. Sometimes people have a positive ANA without any obvious signs of illness, but that's usually in late middle age or older. A "speckled" pattern could indicate lupus (SLE), scleroderma, Sjogren's syndrome, or some other "mixed connective tissue disorder." You really need to find a new pediatrician! Even better, get a referral to a specialist like a rheumatologist... somebody who will be able to order and understand more specific antibody tests.

Kids can heal really fast, but IMO you need to figure out what's going on.

Good for you for asking to have your son tested!!!! And for finding this forum :)

socalmomto2 Newbie
socalmomto2
Posted
  • Author

My son turned 7 in September... I am fighting the peds office for a referal out... I did manage to get a referal to a GI today... should I ask to see a different specialist than a GI???

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Unfortunately, there's no such thing as an "autoimmunologist," so you have to deal with different doctors for different parts of your son's problem.

You could ask a GI about doing an endoscopy to look for damage in your son's intestines... he or she might be able to help resolve the constipation and gluten intolerance issues.

A rheumatologist is the person you want to see about the positive ANA.

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