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Please Help With Results

socalmomto2

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socalmomto2 Newbie
socalmomto2
Posted

Can someone help me with these results... my sons Ped. Is an IDIOT!!! first he tells me I am crazy to even want any test run, then when it comes back he says his IGG is slightly elevated and everything els is fine... UM... IGA is VERY elevated, IGG is neg. and everything else is not fine... his ANA is positive.

My son had chronic diareaha from 9 weeks onld until he was a year old and we took him off formula. he only gained 4 pounds in the 4 1/2 months following birth (born at 8lbs 15 oz) he was put on Isomil DF (it is loaded with fiber) to help him pass a normal stool, but all the fiber took all the nutrients along with it. Now he is 7 and has chronic constipation, horrible bowel movements, and is becoming more and more out of control behavioral wise. To the point where he is seeing a counselor who was looking at Ashbergers (a form of Autism Spectrum Disorder) and Bipolar... (it isn't bipolar) I just don't know what to do... what do these results mean, as the ped won't give me any info on it...

his results are the bold... with the range for each test he had done...

Endomysial Antibody Screen (IGA) with reflex to titer

Negative

TNP-screening test negative. Titer not performed

Tissue Transglutaminase

Antibody, IGA

TTG Antibody, IGA

<3

negative <5

equivocal 5-8

positive >8

Gliadin Antibody

(IGG, IGA)

Gliadin Antibody (IGA)

84

negative <11

equivocal 11-17

positive >17

Gliadin Antibody (IGG)

3

negative <11

equivocal 11-17

positive >17

ANACHOICE Screen

W/ REFL to TITER, IFA

ANACHOICE SCREEN

POSITIVE

AntiNuclear Antibodies

Titer and Pattern

Speckled

AntiNuclear Antibodies

1:80

Reference range

<1:40 Negative

1:40 - 1:79 Low antibody level

>1:80 Elevated antibody level

Immunoglobulin G

798

673 - 1734 mg/dL reference range

So... his Gliadin Antibody IGA is very high, he is ANA positive, and his Immunoglobulin is on the lower end of the range...

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ShayFL Enthusiast
ShayFL
Posted

You dont need a doctor's permission to put him on a gluten-free diet. It is very difficult to get a POS result on children under age 6 when they have ACTIVE Celiac. So getting any POS result is very TELLING. His little body is reacting to gliadin and likely gluten as well. When he is 7 you might very well get a POS for Celiac, but the damage could be horrendous by then. His ANA is elevated which shows inflammation. By age 7 he could have full blown autoimmune disease (Type 1 diabetes being most common in children with Celiac).

You have nothing to lose by trying him on a gluten-free diet and everything to gain at this point. I would nix dairy too until he is all healed. Then try reintroducing dairy to see how he reacts. A lot of people/children have to cut dairy till the tips of their villi heal.

You might also opt for a genetic test to see if you have Celiac genes. It does not dx Celiac, but is another piece to the puzzle. If your doctor says no, you can use Enterolab for genetic testing without a doctor's Rx.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

It's possible that your son does not have celiac disease (at least not yet), but he's definitely having an autoimmune reaction to wheat. You should absolutely get him on a gluten-free diet! Having a positive ANA at such a young age is NOT good. Sometimes people have a positive ANA without any obvious signs of illness, but that's usually in late middle age or older. A "speckled" pattern could indicate lupus (SLE), scleroderma, Sjogren's syndrome, or some other "mixed connective tissue disorder." You really need to find a new pediatrician! Even better, get a referral to a specialist like a rheumatologist... somebody who will be able to order and understand more specific antibody tests.

Kids can heal really fast, but IMO you need to figure out what's going on.

Good for you for asking to have your son tested!!!! And for finding this forum :)

socalmomto2 Newbie
socalmomto2
Posted
  • Author

My son turned 7 in September... I am fighting the peds office for a referal out... I did manage to get a referal to a GI today... should I ask to see a different specialist than a GI???

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Unfortunately, there's no such thing as an "autoimmunologist," so you have to deal with different doctors for different parts of your son's problem.

You could ask a GI about doing an endoscopy to look for damage in your son's intestines... he or she might be able to help resolve the constipation and gluten intolerance issues.

A rheumatologist is the person you want to see about the positive ANA.

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    • trents
      Concerning GP advice

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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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