Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help With Results

socalmomto2

Recommended Posts

socalmomto2 Newbie
socalmomto2
Posted

Can someone help me with these results... my sons Ped. Is an IDIOT!!! first he tells me I am crazy to even want any test run, then when it comes back he says his IGG is slightly elevated and everything els is fine... UM... IGA is VERY elevated, IGG is neg. and everything else is not fine... his ANA is positive.

My son had chronic diareaha from 9 weeks onld until he was a year old and we took him off formula. he only gained 4 pounds in the 4 1/2 months following birth (born at 8lbs 15 oz) he was put on Isomil DF (it is loaded with fiber) to help him pass a normal stool, but all the fiber took all the nutrients along with it. Now he is 7 and has chronic constipation, horrible bowel movements, and is becoming more and more out of control behavioral wise. To the point where he is seeing a counselor who was looking at Ashbergers (a form of Autism Spectrum Disorder) and Bipolar... (it isn't bipolar) I just don't know what to do... what do these results mean, as the ped won't give me any info on it...

his results are the bold... with the range for each test he had done...

Endomysial Antibody Screen (IGA) with reflex to titer

Negative

TNP-screening test negative. Titer not performed

Tissue Transglutaminase

Antibody, IGA

TTG Antibody, IGA

<3

negative <5

equivocal 5-8

positive >8

Gliadin Antibody

(IGG, IGA)

Gliadin Antibody (IGA)

84

negative <11

equivocal 11-17

positive >17

Gliadin Antibody (IGG)

3

negative <11

equivocal 11-17

positive >17

ANACHOICE Screen

W/ REFL to TITER, IFA

ANACHOICE SCREEN

POSITIVE

AntiNuclear Antibodies

Titer and Pattern

Speckled

AntiNuclear Antibodies

1:80

Reference range

<1:40 Negative

1:40 - 1:79 Low antibody level

>1:80 Elevated antibody level

Immunoglobulin G

798

673 - 1734 mg/dL reference range

So... his Gliadin Antibody IGA is very high, he is ANA positive, and his Immunoglobulin is on the lower end of the range...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

You dont need a doctor's permission to put him on a gluten-free diet. It is very difficult to get a POS result on children under age 6 when they have ACTIVE Celiac. So getting any POS result is very TELLING. His little body is reacting to gliadin and likely gluten as well. When he is 7 you might very well get a POS for Celiac, but the damage could be horrendous by then. His ANA is elevated which shows inflammation. By age 7 he could have full blown autoimmune disease (Type 1 diabetes being most common in children with Celiac).

You have nothing to lose by trying him on a gluten-free diet and everything to gain at this point. I would nix dairy too until he is all healed. Then try reintroducing dairy to see how he reacts. A lot of people/children have to cut dairy till the tips of their villi heal.

You might also opt for a genetic test to see if you have Celiac genes. It does not dx Celiac, but is another piece to the puzzle. If your doctor says no, you can use Enterolab for genetic testing without a doctor's Rx.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

It's possible that your son does not have celiac disease (at least not yet), but he's definitely having an autoimmune reaction to wheat. You should absolutely get him on a gluten-free diet! Having a positive ANA at such a young age is NOT good. Sometimes people have a positive ANA without any obvious signs of illness, but that's usually in late middle age or older. A "speckled" pattern could indicate lupus (SLE), scleroderma, Sjogren's syndrome, or some other "mixed connective tissue disorder." You really need to find a new pediatrician! Even better, get a referral to a specialist like a rheumatologist... somebody who will be able to order and understand more specific antibody tests.

Kids can heal really fast, but IMO you need to figure out what's going on.

Good for you for asking to have your son tested!!!! And for finding this forum :)

socalmomto2 Newbie
socalmomto2
Posted
  • Author

My son turned 7 in September... I am fighting the peds office for a referal out... I did manage to get a referal to a GI today... should I ask to see a different specialist than a GI???

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Unfortunately, there's no such thing as an "autoimmunologist," so you have to deal with different doctors for different parts of your son's problem.

You could ask a GI about doing an endoscopy to look for damage in your son's intestines... he or she might be able to help resolve the constipation and gluten intolerance issues.

A rheumatologist is the person you want to see about the positive ANA.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    5. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.