Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Sick. It's Been 7 Days.


mr. moore

Recommended Posts

mr. moore Explorer

i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

mr. moore Explorer
Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

holy cow that was fast! haha. i don't know if there's any way you can get me on that stuff after i accidently ingested some, but i will prolly slip up come xmas, though i'll try my aunts are cooking and they're just pro, so ill tell them about my special needs. hopefully they'll understand. im gonna keep going gluten free, because im sure my intestines or villi or whatever are still messed up. im sure of that.

mr. moore Explorer

ok i feel like i have the flu and have no energy. is this a good sign?

Anna and Marie Newbie
ok i feel like i have the flu and have no energy. is this a good sign?

It is when your detoxing, I've been like this for six months but it'll get better. I had to stop running for awhile because I was so drained. it hurt to walk up three steps, let alone run a couple miles. I'd advise you to keep going or you'll just have to go through it all again. That would be incredibly painful :D

~Anna

ang1e0251 Contributor

This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

mr. moore Explorer
This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

well ive been a good week in it. so if i screw up once it's like im screwed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

You know, you actually might have the flu or some sickness.... 'tis the season... :)

CeliacAlli Apprentice
You know, you actually might have the flu or some sickness.... 'tis the season... :)

Uh..yeah. It may not be the detoxing at all =(.

It is normal to feel that way though........

mr. moore Explorer
You know, you actually might have the flu or some sickness.... 'tis the season... :)

yeah i guess. this is also the season where i've gone full blown hypochondriac! im not even gonna mention the things i thought i had before i got to this website! im gonna try not having anything with aspartame, the stuff in sugar free stuff, and see ho it goes. because from what i've observed on this site, people with bad probles usually are addicted to what's ailing them. and i get cravings for certain chewing gums, in fact i've always chewed sugar free since i got my fillings (6 in all, gotta catch em all!) but i guess nothing is safe! especially after reading the wikipedia on it.

ang1e0251 Contributor

All those sugar subs make me sick and give me tremors.

MNBeth Explorer
well ive been a good week in it. so if i screw up once it's like im screwed?

Hate to say it, but, yeah, pretty much. You really need to do this all the way and very carefully to get an accurate read on whether it makes a difference.

princessnoel Newbie
i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

My advice is to get this test done: Open Original Shared Link

order the Gluten-sensitivity test for $99. the test comes to you in the mail and you send it back in the mail. the results are emailed to you and you never have to leave your house. the best part is you DON'T have to be on a gluten diet to do it. I did it after 2 months of being off gluten and it came back 99 points positive. Then, after you get this test done (which is more accurate than blood test) you can still go to a GI if you want to. But I've had no need to. I just don't eat gluten and i'm fine. This way i know it's not just in my head.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.