Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Positives With Gluten Intolerance?


Spruey Stuey

Recommended Posts

Spruey Stuey Newbie

I have been off gluten about 6 months and am feeling better. Mind is clearer, balance is better, and my stomach is improving.

I am trying to see the silver lining in the cloud that is gluten intolerance/celiac.

Is there one???

Any positives here? :huh:

I have always looked younger than my stated age...is it possible that the years of malnutrition could slow aging???

Stuey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

My silver lining is that I know the trigger to what makes me sick. For most other AI diseases, the cause is unknown. And since we know the cause, our treatment doesn't require drugs! HOORAY!

It sucks having this, but honestly, I eat waaaaayyy better than I used to, so I'm a lot healthier in many ways. I've cut back on eating out, way back, which is good for both pocket and health. I've found a huge variety of foods that I'm sure I otherwise wouldn't have found, as well as explored different methods of cooking.

No one wants to have a disease, but this one is a lot easier to manage. A lot of people are sick, and don't know why. At least we know. B)

I feel like, if I have to have something wrong, it could be something far worse.

Mother of Jibril Enthusiast

For me, the silver lining is that my diet is a LOT better without gluten, dairy, and corn. I think about everything that goes into my body before I eat it... how many people can say that? I always liked fruits and vegetables, but these days a lot more of my food dollars are going to local and organic farmers intead of the corporate factories that make processed food. It's good for the planet and GREAT for my cardio-vascular system :D

It's also a huge relief to have explanations for SO MANY physical and mental health problems I've had over the last 32 years. And... my skin hasn't looked this good since before I hit puberty :lol:

Jenny (AZ via TX) Enthusiast

The positive for me is that I feel so much better! My headaches/migraines have improved to where I've only had a few since gluten-free. My depression has improved too. I want to go out and do things again. I'm happier than I have been in a while. Also, I'm not as puffy. I used to get horrible sinus infections and had chronic post nasal drip. Now I don't.

There are definitely times when I want gluten, but I don't do it because I don't want to feel like crap again. As Lizard00 mentioned, we don't have to take any drugs.

I think you are lucky on the aging thing. I think malnutrition ages most people. I look better than I did before gluten-free. My skin is healthy looking, etc.

Amyleigh0007 Enthusiast

My positive is my son has his health back. Getting rid of the gluten saved his life. Another positive is I got my health back too. I feel better than I have since I was a preteen. Now that I have the answer to my health problems my skin is glowing, my belly bloat is gone, I lost 10 pounds, no headaches, no naps, no leg cramps, no crabby mommy, no stomach aches, no running to the bathroom. I think gluten free is the best thing that happened to my family. The positives of the gluten free lifestyle far outweigh any of the negatives.

Eric-C Enthusiast

Sure there is.

I would bet that the number of Celiac's, who follow a gluten free diet, have a much much lower rate of diabetes, heart disease, and non-Celiac related cancers.

White flour is the devil :)

We skip the flours all together except on rare occasions. Anything highly ground causes huge spikes in blood sugar, be it rice flour or any other kind of flour.

Not eating highly milled or ground foods gives your pancreas a huge break.

I make these statements for people who have caught it early on enough....diabetes and its related heart problems are a issue because of the havoc blood sugar levels run your pancreas through.

By default a Celiac's diet should be void of those things.

I eat way better because I'm forced to and I have no other issues except with gluten itself. Since we've switched to a mostly sugar added free diet and no flour both of our blood pressures have equaled out and our cholesterol levels have dropped even though we eat a high fat diet.

We do eat sugar, just not much with sugar added....except for a single drink 3-4 nights per week...

So yes there are 'advantages' if you can stay away from problem items and see my post about that.

cat3883 Explorer

My silver lining is feeling human again. I will never intentionally have that poison in my body again. I am thankful everyday that my doctor ran the tests to get my diagnosis. For 12 long years I felt terrible. Within 2 weeks of going gluten free I started getting my life back. I am thankful this can be controlled by diet. Studies show that 1 in 133 people have Celiac but 97% don't know they have it. We are so fortunate to know we have it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Someone in my local support group sent around some study that indicated that the reason for celiac is a super strong immune system, and that if we don't eat gluten we live longer and get sick less. I do seem to hardly ever get sick now that I am gluten free. That would be a big bonus. I used to get everything. Sorry I deleted the link.

dilettantesteph Collaborator

O.K. I found it:

Open Original Shared Link

Old News but worth reading again

Study Finds Celiacs Who Don't Cheat Live Longer

Enjoy a longer, heathier life! A recent study* has found that people with celiac disease who follow a strict gluten-free diet might live longer than non-celiacs, and almost certainly live longer than celiacs who cheat. The study by Dr. Giovanni Corraro and his colleagues followed up on 1,072 Italian adults who were diagnosed with celiac disease between 1962 and 1994 and compared their mortality rates with the general Italian population. The findings were published in the respected British medical journal, The Lancet.

Celiacs in the study were divided into two groups: likely and not likely to be following a strict gluten-free diet. There was good news for celiacs who follow the diet consistently: their mortality rate was below the national average! (Only 5 died, compared with the 10.5 that would have been expected for people in the same age groups). Celiacs who did not consistently follow the gluten-free diet paid a heavy price: their mortality rate was six times the national average. (The most common cause of death was Non-Hodgkin Lymphoma).

When combined with other recent discoveries, the study's findings provide important insights into the nature of the celiac condition. The genes associated with celiac condition give individuals an especially Study Finds Celiacs Who Don't Cheat Live Longer strong immune system. This is an advantage when fighting off illnesses caused by viruses and bacteria. It probably helped our ancestors survive for many thousands of years before the invention of things we now take for granted

Eric-C Enthusiast

I wonder what the term is where it makes a difference.

I used to never get sick either, I'd get a light cold once in the spring and once in the fall.

I figure I 'got' Celiacs about 6-7 years ago. I had moved in the building I worked at and got sick all the time. Made no sense because the building we worked in was 130 years old and the area I moved into was completely and utterly renovated.

I always thought it was the move to the new area.

Now that I've been 70-90 percent gluten free for just over a year and a half and totally gluten free for a year I have gone back to not getting sick.

When everyone else gets incredibly sick during the winter I get a light cold and it never really stops me.

I really wonder if there are triggers for Celiac's. I was very sick when this first happened and then for a year and a half period I was totally fine no matter what I did or what I ate.

Then it slowly got worse.

So I had about 5 years of strong reaction and I'm 36, gave up gluten totally at 35 and before that I had really cut it down but as I reduced my intake dramatically I became more sensitive.

Now here is the kicker, longevity runs in my family.

My grandmother died at age 94 and she was born in the 1800's. My mother is in her upper 70's and my dad is 81. You'd never guess she's over 65 and up until about 5 years ago you'd be hard pressed to tell she was into her 60's.

My fathers doctors are always commenting too about his health. He had his first heart attack when he was 43! Had another 10 years later and another one just a few years ago.

Through all the heart problems his overall health never really went down. I can't tell you how many times he has had 'life threatening' problems. He had skin cancer 20 years ago and it just went away and never came back. At his age I've gotten the call plenty of times that he was in the hospital for this or that. Then POOF he gets over it.

His conditions were so unusual that the University of Michigan was tracking my brothers and my blood work for a while, that ended all before the Celiac's popped up but there was a lot of interest in why he has had so many heart problems but continues to survive.

My gastro told me people of Irish decent are most likely to have Celiac's. I'm Irish/Austrian/German. My sister is 57 and again you'd never know. Hell my brother is 56 and I can absolutely bet no one would peg him over 35. ET runs in my family, Essential Tremor. I thought I had it but it was all related to gluten. My sister has it terribly but it went away when she cut down on her gluten intake and started taking flax seed. My brother and other sister do not have it at all.

My 23 year old nephew we think might have Celiac's and my niece has ET.

But now that I read all that no one in my family has gotten cancer except for my Dad and skin cancer, which went away. Heart problems run but no one dies from it so long as they make it through the heart attack. If they make it to the hospital they are usually OK. I read all the statistics about heart problems and compare that to my family and as strange as it sounds for our family it was always looked as a manageable problem. Other than that nothing chronic runs in my entire family so far as I can think.

Now me...well a bit more hair and I'd look more my 36 years old :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.