Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lack Of Sweating

kaplan1975

By kaplan1975
in Coping with Celiac Disease

Recommended Posts

kaplan1975 Newbie
kaplan1975
Posted

Anyone have this symptom? There is very little information out there regarding this symptom (not just as it is associated with celiac), unless you are a horse (I'm serious). When exercising I do not sweat and get additional symptoms consistent with heat stroke, etc. I make sure to drink plenty of fluids and am sure it is not related to being dehydrated...I have been on a strict gluten-free diet for over a year so intestines should be healed enough to absorb water, right???

I plan to change to a doctor in the area that is Celiac herself and finally be able to ask these questions and not feel like I am a hypochondriac. The official word for this is Anhidrosis...anyone else notice this

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


marciab Enthusiast
marciab
Posted

I had this problem for years and so I know how uncomfortable it is. I can't remember exactly when it went away ... my myoclonus started to go away after 7 months on the diet but most of my symptoms were with me for at least the first year or two. I'm still working on a couple ..

Good to know it has a name .. have you googled Anhidrosis gluten ?

dogle Apprentice
dogle
Posted
Anyone have this symptom? There is very little information out there regarding this symptom (not just as it is associated with celiac), unless you are a horse (I'm serious). When exercising I do not sweat and get additional symptoms consistent with heat stroke, etc. I make sure to drink plenty of fluids and am sure it is not related to being dehydrated...I have been on a strict gluten-free diet for over a year so intestines should be healed enough to absorb water, right???

I plan to change to a doctor in the area that is Celiac herself and finally be able to ask these questions and not feel like I am a hypochondriac. The official word for this is Anhidrosis...anyone else notice this

Hi, I don't know how old you are but anhidrosis happened to me during my teenage years, I also worried about that and I remember having digestive symptoms also. In fact, some of my family memebers say they have experienced the same. I remember going to the gym and also I had symtoms of heat stroke, I remember one day I almost faint in the restroom, I was shaking till they cool me down. I haven't had the intestinal biopsy but I have antiendomysial antibodies present in my blood.

JNBunnie1 Community Regular
JNBunnie1
Posted

That used to be a problem for me, until I was 20 or so. I would get really hot, but never sweat, and I'd be beet red and feel like passing out. Wierd what that darn gluten stuff can do to you, huh?

kaplan1975 Newbie
kaplan1975
Posted
  • Author

I am glad to hear I am not the only person that has had this symptom...I am even happier to hear that it can get better. I used to play basketball for 4-6 hours in hot weather with no problems (teenage years, now 33) and now I cannot play for 15 minutes without feeling terribly sick.

The majority of information out there is in reference to how horses get this and there is a supplement that contains L-Tyrosine. I just ordered (waiting for delivery) a complete amino acid supplement that contains tyrosine so I am hoping to see some improvement. I see Tyrosine is also a supplement sometimes used to increase mood as well which is something I could use at times.

Thanks for all your stories as I am now realized the therapeutic benefits of sharing your experiences with others in similar situations.

ptkds Community Regular
ptkds
Posted

My youngest dd's have this problem. But I don't think it is related to Celiac. They have both been gluten-free for about 2 years and they have had this problem all their lives. But they are only 2 and 3 yrs old. their pedi won't run any tests because she says there is nothing that can be done about it anyway.

TestyTommy Rookie
TestyTommy
Posted

This used to by a HUGE problem for me. I have no idea why it happened, but it was definitely related to celiac. Before I went gluten-free, I would try to do any cardio exercise, and I could go for an hour and not have a drop of sweat on me. Of course, I'd have to drink like a gallon of water because I was so over-heated.

I've been gluten-free for 3 years (next week!) and I'm sweating normally. It took about 2 years for me, and I (nor my doctors) have any idea as to why it happened. best guess is it's thyroid related.

I found the same info as you (there's a patent for treating horses for anhydrosis using tyrosine). I used lots of tyrosine, but I don't recommend it. Basically, all it does is make your thyroid rev up and go hyper. So you will sweat -- but you'll also get shaky, stressed out and your hair will get dry but greasy.

It took me about 2 years gluten-free before I was sweating normally, so I'd suggest you give it some more time. How long were you undiagnosed?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kaplan1975 Newbie
kaplan1975
Posted
  • Author
This used to by a HUGE problem for me. I have no idea why it happened, but it was definitely related to celiac. Before I went gluten-free, I would try to do any cardio exercise, and I could go for an hour and not have a drop of sweat on me. Of course, I'd have to drink like a gallon of water because I was so over-heated.

I've been gluten-free for 3 years (next week!) and I'm sweating normally. It took about 2 years for me, and I (nor my doctors) have any idea as to why it happened. best guess is it's thyroid related.

I found the same info as you (there's a patent for treating horses for anhydrosis using tyrosine). I used lots of tyrosine, but I don't recommend it. Basically, all it does is make your thyroid rev up and go hyper. So you will sweat -- but you'll also get shaky, stressed out and your hair will get dry but greasy.

It took me about 2 years gluten-free before I was sweating normally, so I'd suggest you give it some more time. How long were you undiagnosed?

Thanks for your input as it is comforting to hear another story where this symptom was reversed with a gluten free diet.

I have been gluten-free for 18 months, but dont think I did I good job for the 1st 6 months...so 12 months with much better care...maybe sometime over the next year I will be able to exercise without risking heat stroke...I would like to start playing sports again to get a cardio workout.

I have been taking tyrosine right before bed and seems to really help me get deep, quality sleep with dreams (I have not been able to remember dreams for as long as I can remember). I took tyrosine during the day and it seemed to make me feel tired.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,695
    • Most Online (within 30 mins)
      7,748
    Jades Journey
    Newest Member
    Jades Journey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.