Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Wheat Free Life


SantaDude

Recommended Posts

SantaDude Newbie

One of my friends suggested I go wheat free for 2 weeks last spring. I did and many things went away. After one week, all of my joints and especially my fingers hurt less. I slept better. I had more energy and less brain fog. So, with out much research, I was gluten lite. I thought things that started with Rice were gluten free, like rice cakes! So, really, I cut out bread and bakery goods completely.

I mentioned my ailments to my doctor and he said I'd have to go back on wheat for a proper test. So, he suggested I just stay off wheat and be healthier. (wise man) I agreed.

Now, I read all labels. I am glad to find this site! Now I am having some returns of the aches and pains, especially the abdominal cramps. Could there be some wheat lurking somewhere else? Is this a phase of going gluten free? My fingers are a bit swollen and I have had a sinus headache for 3 weeks . I don't know what is related to what, meaning, could it be food causing this?

I am also Canola Oil free. (gives me flu symptoms and a whopping headache)

As for eating out, or for lunch, I usually eat a homemade sandwich, but for breaks I try to take protein bars with me and drink lots of water. I avoid all soft drinks becasue of the added sugar. I do drink coffee and enjoy dairy products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

There are a couple of possibilities...

1. You're intolerant to gluten and not just wheat. That would mean you also need to cut out barley, rye, and oats (which are almost always contaminated with wheat). Wheat is considered a major allergen, so manufacturers are required to list it on their products. Not true for barley... it's used in all kinds of "natural flavors" and ingredients you might not expect like brown rice syrup and malt.

2. You're intolerant to another food. The most common culprits are dairy (sorry), corn, soy, and grains in general, but you can be intolerant to just about anything. As long as I don't eat gluten, dairy, or corn I feel GREAT. Unfortunately, that eliminates about 90% of processed foods.

It could really help to keep a food diary... keep track of what you're eating and what symptoms you're having. Unlike allergies, intolerances can be tricky to figure out because the reaction is delayed by several hours or even days.

  • 1 month later...
SantaDude Newbie

Thank you for your reply. I probably overdo the dairy, since it is easy to buy, store and eat. I will reduce and finally cut out the dairy. My sister, who does not have celiac is bothered a lot by dairy.

Is there a diary intolerance test?

Corn too?? Now that would make life harder yet. I buy corn tortillas at the health food store because they have flavor and don't seem so overly processed as the ones in major grocery stores.

Mother of Jibril Enthusiast

I used to eat a LOT of dairy too (I'm from Wisconsin). I miss the cheese ;)

Enterolab does a stool test for casein sensitivity. The cheapest thing (and most reliable) is to try an elimination diet. Cut it out of your diet completely for two weeks and then "challenge" it by eating a reasonable amount for a few days (don't go crazy... 2-3 servings a day is probably enough). If you challenge with foods that don't have a lot of lactose... like cheese and yogurt... and you still have a reaction, then you can be pretty sure you're casein intolerant and not just lactose intolerant. If that doesn't bother you, try milk (which has a lot of lactose).

The DQ7 gene is associated with sensitivity to both gluten and cow's milk. There's a lot of research that needs to be done about genes, allergies, intolerances, and autoimmune disorders. At this point it's hard to predict what food(s) will affect you! I never would have suspected corn :huh: I tried it to help my breastfed son (who's also intolerant to casein)... turns out we're both intolerant.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,043
    • Most Online (within 30 mins)
      7,748

    Sandykc
    Newest Member
    Sandykc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.