Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Cheating A Possibility At All On This Diet?


Jamie

Recommended Posts

Jamie Contributor

Hi, I was just diagnosed last Tuesday with bloodwork. I have been gluten free since Wed. I don't feel much different. I was wondering.. what would happen to me if every once and a while I cheated on purpose(special occasions.. things like that)... or if I accidentally ate something with a trace of wheat in it...

Before being diagnosed my symptoms were only gas, bloating and constipation. Does this mean I can handle cheating every now and then because my symptoms aren't severe... or can handle it if accidentally gluten gets into my food (cross contamination.. ect)... I know some people react badly and get really sick.

I am new to this, am researching everything, but still don't understand it all yet. Anything you could help me with would be great.

-Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Hello! Well, I am sorry to say that this is a no cheating game. I was shocked when I found that out, but to be healthy and not damage our bodies we have to be 100% gluten-free 100% of the time. Also, after you are gluten-free for awhile, it will hurt sooooooooooooo much worse when you eat gluten. It is a scary thing and not worth it at all.

Gluten to us is poison. That is hard to imagine at first, but it is true. It damages our insides. This doesn't mean you have to miss out on things. There are gluten-free substitutes for pretty much everything, even beer. There are places we can eat out in but it takes awhile to get this lifestyle figured out. Start off slow and learn what you can and in a few months you'll feel more comfortable and a lot better.

Good luck!

tom Contributor

I spent a few years in the 90s thinking a little was ok if I had no symptoms or easily manageable ones.

It ended up costing me 7-8yrs of my life.

Some CC may be unavoidable, but it'd be a (potentially huge) mistake to do what I did.

curlyfries Contributor

Welcome Jamie! :)

Sorry......no cheating whatsoever! A celiac is a celiac......whether the symptoms are extreme or mild or none. The damage done by gluten will be the same. Accidents will happen, especially at first, but you don't want to do it intentionally. You may find that once you are gluten free, your symptoms when glutened will be more severe. Your body will have realized what it feels like to be gluten-free, and will have none of that! <_<

You haven't been gluten-free long. It may take awhile for you to feel a difference. You may also find that other health issues you didn't think were related begin to improve. Keep reading. You will learn a lot here. :D

Here is a good site to start with

Open Original Shared Link

Let us know if you have any other questions!

pele Rookie

I heard it explained by a NP recently that by the time symptoms occur, your body has been struggling to cope with gluten damage for a long time. Symptoms just mean that your immune system can't take it anymore. Cheating is not worth it.

rinne Apprentice
...

Before being diagnosed my symptoms were only gas, bloating and constipation. Does this mean I can handle cheating every now and then because my symptoms aren't severe... or can handle it if accidentally gluten gets into my food (cross contamination.. ect)... I know some people react badly and get really sick.

.... -Thanks

Hi and welcome. :)

I knew for many years that wheat did not agree with me, my symptoms were your symtoms, gas, bloating and constipation and so for the most part I did avoid wheat BUT for special occasions I would still eat it knowing that for a day or two I would feel bad. One day that changed and now the slightest bit of gluten causes me agony.

You are extremely fortunate to have a diagnosis at this point , believe me you don't want to go where I went. :)

I am wondering how you got your diagnosis?

MELINE Enthusiast

Before diagnosis I would eat huge amounts of gluten. Now the slightest trace makes me sick for at least 24 hours.

When something is making us sick, the problem is not that we can't go out for a drink (for example..) . The problem is that the whole body is struggling at the time to cope with an invisible enemy. Your whole immune system is shuting down in order to deal only with the enemy. So that means that you are left in the war without a weapon. ....

Nature is wise. When our bodies ache, it is because we HAVE to know that something is not going well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

Nope... there's no cheating on the gluten-free diet... simple as that.

I used to hope I might be able cheat occasionally, but the longer I've been gluten-free, the more sensitive I've become. I would NEVER, EVER intentionally cheat now... EVER!!!

gfwb Newbie

One of the hardest social situations is trying to get non celiacs to understand that celiac isn't like diabetes or a weight-loss diet. You can just cheat and take more insulin or work out a little harder. I almost think it is harder for celiacs like yourself--who didn't suffer complete systemic symptoms. After having anemia, hair loss, rickets, migraines, etc., cheating doesn't even look like fun. Hopefully, you'll start to see a big improvement in the quality of your life on a gluten-free diet, so that cheating won't be an attractive option.

Jamie Contributor

I am wondering how you got your diagnosis?

happygirl Collaborator

If you feel that a definite confirmation of the diagnosis (via biopsy) would help you adhere to the diet, then it may certainly be worthwhile.

Which blood tests were positive?

Jamie Contributor
If you feel that a definite confirmation of the diagnosis (via biopsy) would help you adhere to the diet, then it may certainly be worthwhile.

Which blood tests were positive?

My doctor called me and all he said was .. you have Celiac disease ... your blood work came out great.. but your anti bodies are abnormally hight toward gluten... everything else is perfectly in range

happygirl Collaborator

It may be helpful to have a follow up appointment to talk with your doctor about the next steps, and get a copy of your bloodwork as well.

Jamie Contributor
It may be helpful to have a follow up appointment to talk with your doctor about the next steps, and get a copy of your bloodwork as well.

Do you think there is a possibility that I have gluten intolerance... and not celiac?

happygirl Collaborator
Do you think there is a possibility that I have gluten intolerance... and not celiac?

Unfortunately, there is no way to know that without knowing what blood tests were run and what the results are, and discussing that with your doctor.

UnhappyCoeliac Enthusiast

I dont have much to add, been to a special dietitian specializing in coelicas asked if birthday xmas etc i could cheat, she answered like most here.... never

its all about alternatives I think

rinne Apprentice
....

I had blood work done and my antibodies were high toward gluten. Is that def celiac right there? Or should I get an endoscopy just for a second opinion before making this life change?

I would take it as a diagnosis but then I don't like tests. :) As Laura said you could ask for an endoscopy but since your doctor was conclusive in his/her diagnosis perhaps just discussing it would be a good start. On the other hand, an endoscopy may provide a picture of the damage that is done, but for you to have one you would have to continue to eat gluten until then as once we stop consuming gluten we start to heal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.