Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Gluten= Fatigue And Oversleep For Most Coeliacs?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

I slept a rocking 13 hours last night admittedly I was up 18hrs the day before but still this is not normal. I accidentally got gluten from lollies I wasn't aware of yesterday and Im positive it is what made sleep longer.

The day before I was gluten free and slept 6hrs and felt a lil groggy but then refreshed. I notice i naturally simply wake up earlier and feel more refreshed when I am totally gluten free is this a usual occurrence for coeliacs out there?

Oversleeping causes me massive problems, parents b%$@#ing at me (dont understand coeliacs) and I have uni and work and commitments and if I miss something fun like going out with friends because I was sleeping I feel very depressed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer

For me, getting "glutened" definitely causes extreme fatigue. I rarely have the option of actually sleeping any longer than normal, but I drag through my days feeling desperate for sleep until I recover.

maile Newbie

Fatigue yes, but I get a type of "buzzed fatigue" so I don't sleep well at all when glutened and end up dragging through the day :(

Treen Bean Apprentice

YES!!! It's like night of the living dead for me. All I want to do when I get glutened is curl up in bed in a pitch black room and sleep forever. I also feel lethargic for the next day or two.

dilettantesteph Collaborator

Definitely, and even when I am up it takes me forever to accomplish anything. Hope you get better soon.

ang1e0251 Contributor

I can get up but it's like the Zombie for me. The brain fog with the fatigue along with mood swings can be like a horror movie for those around me. I generally start with a fair warning and also a request, "please look out for me today. If I'm doing stupid things, stop me. If I'm falling all over myself, tell me to slow down,...uh..thanks."

julirama723 Contributor

I'm a sleepy/fatigued gluten zombie, too. I've not been gluten-free for long, but man oh man, on the occasion that I accidentally ingest gluten, not only do I get the GI symptoms, I am EXHAUSTED. I can barely make it through work, I am incredibly lethargic, I have NO ENERGY to do anything remotely taxing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UnhappyCoeliac Enthusiast

I pretty much fall asleep and dont wake up.

before I was diagnosed I had had a big night on the beer went to bed at 4am and woke up at my friends at 6pm...

my friends literally thought i was dead and were nice enough to draw funny faces of me too lol

  • 2 weeks later...
Kitt1027 Rookie

Yes, yes, yes it is very normal to get like that. Before I found out I had a gluten-intolerance (not officially diagnosed Celiac...) I just thought that I would get extremely lethargic and have brain fog only after heavy meals. But, then it was happening almost everyday and now I know it's because even though I was eating very light meals, I was making wraps with wheat tortillas!! Everyday!! Geez...makes so much sense now. I would be sitting on my computer at work and literally feel like my head was a million pounds, my eyes wouldn't stay open and I felt like if I put my head down on my desk I would just pass out immediately. I would just go get some caffeine, but it never fully helped and the fogginess lasted all day.

I got glutened twice in the past 2 weeks and both times I was ready to pass out 30 minutes after eating. My boyfriend knows about my gluten problem and now he can tell exactly when I've been glutened because I become lethargic, unmotivated, snippy and don't feel well. Sometimes it feels like I'm drunk or something. It's so weird. And now I know that when I'm completely off of gluten, I am free to be the real me! I'm so much more energetic and want to go out and do things and I'm always peppy.

So, that's a very long-winded way of saying you are not alone my dear!! :-)

  • 2 weeks later...
teemaree Apprentice

Gosh yes,,,,,

last night I got glutened.... I would normaly wake up at 7-30am when gluten-free, feel bright and sparky..

This morning was a whole other story... I awoke at 11am, with a headache, didn't want to move and get up, and could have gone back to bed. But I didn't, but for the rest of the day, I was wiped out..

feeling sick , couldn't eat, and ohh so lathargic and tired, and I just got home from work and I'm ready for bed. eyes are aching, and wanting to close.

Before finding out I was celiac and gluten-free, I had the opposite effect, I couldn't sleep , I would live on three hours sleep, I'd have headaches and feel yuck...but I just figured that was due to the lack of sleep, and being over active without sleep...

But since going gluten-free... my sleep is so much deeper and enjoyable, I awaken fresh and ready to take on the world, things don't stress me out like they use too...I awaken early!...

But accidental glutening, does knock me around badly,and I need to sleep, because I walk around around like a zombie,feeling sick and tired, and just want to curl up and sleep....

I honestly nearly fainted when I saw the time I had slept too, this morning. Thank goodness I had a late shift, because there is no way I could have functioned at work, the way I was feeling. And even with having the late shift it was very difficult to make it through.

  • 2 months later...
Leper Messiah Apprentice

Yeah I totally need more sleep, I figure it's my gut trying to repair. I'm a full time worker who needs to study after work so can understand this is a major problem for some folk but even if you have the time off it's not ideal spending half the day in bed! Sometimes I find it hard to sleep, if say I get glutened in my evening meal for example, anyone else get that? I'll put my head down and my heart beat will be going mad even if I'm uber-relaxed.

@ Kitt1027 - this pretty much exactly what I experience, it's so hard to explain to other people that you feel drunk after eating a meal! I'm just starting a gluten-free diet, a month or so but I've def been glutened a few times unintentionally in this time. How long did it take you to start feeling you again after going gluten-free? Also, if you don't mind me asking, how long til you feel you again after getting an accidental glutening?

  • 2 weeks later...
Voss Newbie

Yep, if I get glutened I stumble to a place to rest my head and not wake up for an hour of 12.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.