Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results


dmcbrain

Recommended Posts

dmcbrain Newbie

I was told that I definitely have celiac according to the blood test result #'s below:

ttg iga: >100

iga: 625

endomysial IGA antibody: 1:2280

My doc told me that the last one was EXTREMELY high, and due to this, she saw no reason to pursue an endoscopy.

So...I guess I go gluten free now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Once you're diagnosed with celiac disease it's forever... even if you stop making antibodies, your body will always remember how.

I know it's a shock and a huge lifestyle change, but your life depends on it! The good news is that you've found an excellent place to get some support.

Welcome to the group :)

happygirl Collaborator

That is pretty high! All doctors have different perspectives on the biopsy, but the tTG and EMA are pretty sensitive/specific for Celiac.

Do you need some info for getting started?

Welcome to the board.

dmcbrain Newbie

I was just wondering if this was truly a high number.

The doc said that it was the highest she had ever seen.

Any idea what kind of #'s most people diagnosed get?

curiousgeorge Rookie

My TTG was 74. I also had the gliadin Iga and IgG done. They were 17 and 56 respectively.

dmcbrain Newbie

I guess mine is quite high then.

Is the gliadin IGA the same as the endomysial IGA antibody? If so, then yours is 1:17?

happygirl Collaborator

DMC -

These are the four main, separate Celiac tests: AGA IgA, AGA IgG, tTG IgA, and EMA IgA.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dmcbrain Newbie

According to the gastro specialist I went to, the endomysial IGA antibody titer is the main one they look at for a definitive celiac diagnosis.

A normal is <1:5

happygirl Collaborator

He's right - the tTG and EMA, esp both being positive, are highly specific/sensitive for Celiac.

dmcbrain Newbie

So...I'm figuring my 1:2280 is very, very high compared to the other post here.

curiousgeorge Rookie

No I did not have the EMA. My antigliadin IgA at 17 is a completely different test.

the EMA and the TTG are both the autoimmune component, the measure of your body attacking itself. The antigliadin IgA and IgG are antibodies your body makes toward wheat. From what you posted, you didn't have either of these tests.

The IgA test you have at 625 is your total IgA count which has nothing specific at all to do with celiac. It just tells them that the EMA and the TTG tests are valid.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.