Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lymph Nodes & Gluten Intolerance

Christina98

By Christina98
in Coping with Celiac Disease

Recommended Posts

Christina98 Explorer
Christina98
Posted

I just found out I have a gluten intolerance.I have a had tons of strange symptoms throughout life and I still ddont know for sure if all of them were because of a gluten problem.However, one of the main symptoms repeatedly throughout life was swollen lymph nodes all over my neck and sometimes in my chest.When I would get this I would have a headache a feel chills sometimes.I would sometimes have a slight stuffy nose ( or should I say it just felt like something in there) but nothing was.This would occur sometimes 2 times a month.Anyone else have symptoms like that?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Welcome to the group!

I had LOTS of swollen lymph nodes (especially in my neck) as a child. (I also had my tonsils taken out when I was three years old because they were severely inflamed.) It still happens sometimes when I get a cold. This kind of swelling is not uncommon. As long as the lymph nodes are "reactive," meaning that the swelling goes away on its own or with antibiotics, it's not considered dangerous.

Right now I have a lump in one of the lymph nodes in my neck that isn't going away. I had a biopsy that found no evidence of cancer (which is a possibility... and more common in people with gluten intolerance who are undiagnosed or don't follow the diet), but I'm still not exactly sure what it is. Unless the biopsy was wrong, it looks like it's going to be something weird... Castleman's disease, lupus, mastocytosis... I've been reading all kinds of crazy stuff. <_<

Gluten intolerance can affect sooooo many parts of your body. You'll be amazed what you learn if you hang around this place :rolleyes:

teemaree Apprentice
teemaree
Posted

I find the lympth glands swell in my neck , just below the jaw line, and the area becomes real tender, then I end up with abcess in my back teeth, I also noticed the glands in my groin protrude, but they do go down, it normaly happens when I feel weak and worn out and stressed.

Christina98 Explorer
Christina98
Posted
  • Author
Welcome to the group!

I had LOTS of swollen lymph nodes (especially in my neck) as a child. (I also had my tonsils taken out when I was three years old because they were severely inflamed.) It still happens sometimes when I get a cold. This kind of swelling is not uncommon. As long as the lymph nodes are "reactive," meaning that the swelling goes away on its own or with antibiotics, it's not considered dangerous.

Right now I have a lump in one of the lymph nodes in my neck that isn't going away. I had a biopsy that found no evidence of cancer (which is a possibility... and more common in people with gluten intolerance who are undiagnosed or don't follow the diet), but I'm still not exactly sure what it is. Unless the biopsy was wrong, it looks like it's going to be something weird... Castleman's disease, lupus, mastocytosis... I've been reading all kinds of crazy stuff. <_<

Gluten intolerance can affect sooooo many parts of your body. You'll be amazed what you learn if you hang around this place :rolleyes:

Thanks for the response back....yes I am sure I will be reading even more crazy symptoms of Gluten intolerance...in fact I already have!

Mysh Rookie
Mysh
Posted

I have suffered from swollen lymph nodes on and off for about 12 months. I was looking at having a lymphatic drainage massage.....got put on the backburner because I simply have been well enough to go for one.

This forum is definitely a learning curve!

taweavmo3 Enthusiast
taweavmo3
Posted

Yes! I spent most of my childhood with an enlarged lymph node on my neck. I had biopsies and everything, scared my parents half to death I'm sure thinking I had cancer. I've also had migraines since I was 5, and anemia. I've been on the diet almost 3 years now, and I just had a slew of blood tests that showed everything was within normal limits...which hasn't happened ever, lol. It's really nice to hear "normal" for a change!

Live2BWell Enthusiast
Live2BWell
Posted
I just found out I have a gluten intolerance.I have a had tons of strange symptoms throughout life and I still ddont know for sure if all of them were because of a gluten problem.However, one of the main symptoms repeatedly throughout life was swollen lymph nodes all over my neck and sometimes in my chest.When I would get this I would have a headache a feel chills sometimes.I would sometimes have a slight stuffy nose ( or should I say it just felt like something in there) but nothing was.This would occur sometimes 2 times a month.Anyone else have symptoms like that?

I have perpetually swollen lymph nodes, mostly the ones in my neck and under my arms. I too get really bad headaches, sinus drainage, drippy nose, coldness, and sometimes a fever. Although this happens intermittently, I have noticed that my lymph nodes get especially swollen and sensitive when I am grinding my teeth (I have TMJ.) I get a very dry scratchy throat, stiff neck, etc. I am not sure why this happens though. I would be interested in learning!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
Switch2GF Rookie
Switch2GF
Posted

My lymph nodes do occasionally swell up, but will go away in less than a week. It really scares me when it does that. I am comforted to know that it isn't anything serious if they keep going a way. It only happens once every few months.

  • 3 weeks later...
latteda Apprentice
latteda
Posted

Mine swelled up a couple of years ago, and so did my spleen. My spleen had ruptured before but not been removed so it is a somewhat weak area of my body. They tested me twice for mono and both times it came back negative.

  • 1 month later...
MamaJo Rookie
MamaJo
Posted

Wow! My 3yo daughter has had her lymph nodes swell off and on for the last year or so! They are swollen again now, along with this fever, 'allergy eyes', tummy aches, etc. I see that Live2BWell mentioned that she had fevers.....maybe this does all have to do with foods! I am SO anxious to get this figured out so I don't have to see my family suffering through these things!!

  • 1 month later...
MDRB Explorer
MDRB
Posted

In people with celiac disease, the immune system is compromised when you ingest gluten, so its not unusual to get enlarged lymph nodes until the immune system is back to normal. I found that it took about a year for me not to be susceptible to every little virus/infection going around. I think this also has something to do with the villi healing because being able to absorb vitamins etc is important to the immune system.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir.
    2. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    3. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    5. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748
    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.