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This Is So Sad


jasonD2

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jasonD2 Experienced

Im connecting with old friends and looking at a lot of old pictures from way back before I developed all my digestive ailments and its depressing me because I used to be so healthy and could eat anything. Now I feel like damaged goods and just dont enjoy things the way I used to and never will again. I still to this day believe everything couldve been prevented if i took appropriate steps to reduce my stress and circumvented the events that destroyed my insides. how can i get past this and get on with my life? why do i always look back?


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CeliacMom2008 Enthusiast

Jason, I don't know your circumstances, so I don't know about your health, but you can have a good life. Life is what we make it. Seeing how my son has adapted over the last year has been such an inspiration to me on so many aspects of life. Your life may never be exactly the same as it was, but that doesn't mean it has to be worse. By eating healthy you can regain some if not all of your body's strength and health. It's just food after all.

We all have "something" that keeps us from being what we perceive as "normal". I truly believe in accepting what ever "something" you have, learning to live with it, and then learning to love the life you have.

What is your favorite thing in the world to do?? What is your second? How about your third? Can you do at least one of them still? What is your favorite thing about yourself? Try to focus on these and be thankful for them. Try every day to be thankful for at least one thing. Try to find one "good" thing in every day. Some days it may be bigger than others, but at least if you're thinking about it you'll be thinking more positive thoughts. And if you think you don't have any "good news" for today or don't have anything to be thankful for, you're not looking hard enough!

And keep coming here. Find out what bothers you most about being a Celiac and see what others do to get around that. You're not alone!!

cattriona Newbie

The thing that has helped me to cope with celiacs is this fact that I keep telling myself: even though you may not feel well, eating a gluten-free diet forces you to be healthy. Yeh, boring I know, but think of all the other health problems that you may be avoiding in the future. and eating gluten-free is all about substitution. the diet i have now is hardly different to the one i used to eat except for different ingredients. also, like Celiac Mom says, I don't know what your situation is but sometimes there are stresses in life that we can't avoid too much and if we could have now you've learnt. Be happy with the fact that you now know what is wrong with you and that you have a solution to your problem. many people will never know what's wrong with their health and the good thing about being celiac is that there's no nasty medications or treatments that we have to undergo in order to get better and survive.

YoloGx Rookie

In time you will more than likely feel better and better. If not, you may have other food sensitivities as well that you need to track down.

Meanwhile things like marshmallow root and slippery elm should help heal your digestive tract. And enzymes like bromelain/papain and pancreatin will help you digest your food more easily. Taking enterically coated acidophilus seems to be de riguer (sp?).

I know that for myself I overall feel better and actually am healthier than I ever have been. My only real limitation is socially dealing say with a new boyfriend. But I can get past that if its the right guy. Plus some family issues where some of my family is in deep denial. This condition helps eliminate the superficial people as well as those who really don't care. Travel is a little challenging, however do-able generally speaking by planning ahead. Otherwise its no problem usually since I just bring my own food.

Mainly have faith and patience. You will get better!

Bea

gabby Enthusiast

Hi,

Sorry that you are going through this. I personally was helped with a similar situation via a book that was recommended to me a few years ago. You should be able to find it in the library...or order it online somewhere. It isn't about celiac disease, instead it is about dealing with regrets from the past. I urge you to get your hands on this book, and read it through a few times. It helped me a lot, and I hope you'll find it helpful too!

The book is called:

"Woulda, Coulda, Shoulda: Overcoming Regrets, Mistakes, and Missed Opportunities", by Arthur Freeman

Hope that helps!

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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