Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Am I Supposed To Get Better?


jasonD2

Recommended Posts

jasonD2 Experienced

Ok the gluten has been addressed and eliminated from my diet, as well as dairy soy and eggs. Now I am supposed to focus on healing my gut and getting my system back on track. the problem is that all of the supplements I am supposed to take for my recovery exacerbate my IBS.

I have IBS with constipation and a lazy bowel and have been struggling for years to find something to get me regular again. Im working closely with an integrative medical specialist and he really wants to get my thyroid numbers up as well as correct my flora and other GI imbalances. every single supplement he has given me only makes my constipation worse. he tried 2 different thyroid meds and they gave me severe constipation, various GI support formulas and probiotics...all made my constipation worse.

SO...how the hell am I supposed to recover if all these things make me feel lousy? I just dont know what to do. I can load up on laxatives so that i can at least take the supplements, but thats not good either.

any of u have similar issues? I hear about people with constipation all the time...family members, friends, etc...and they are all able to manage it with conventional treatments...however I am the freak and seem to have the worst kind of all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Jason,

Maybe this link to info about gastroparesis will help. Seems there is a link between gastroparesis and thyroid levels. I saw in one of your other threads that your doc thinks your thyroid levels are low The link talks about the vagus nerve and stomach emptying and gut motility.

Open Original Shared Link

rinne Apprentice

Hi. :)

I sympathize. I have had issues with C for my entire life, unfortunately because it was the norm for me it really never occurred to me that I had a problem until I was thirty or so when taking laxatives occasionally became part of my life because it was becoming problematic.

When I became ill my digestion collapsed, I recall one week where nothing moved, it felt like a dead zone between my sternum and hips and this was when I was taking 4 or 5 laxatives a night.

Because of my symptoms and a history of Celiac in my family I went on a gluten and dairy free diet and that seemed to help some but I was still suffering from C. I had reached the point where I was beginning to accept that I was just going to have this problem for the rest of my life and then I discovered a diet that my body is happy with and suddenly I no longer have C.

Our digestive system is not just some food/fuel tube that we fill up at one end and if it doesn't come out the other then the answer is to put something else in to push it through. Constipation is not normal so how come so many people are?

Perhaps the answer is not adding something to your diet but taking away something that you are having difficulty digesting, what is your diet like?

Gfresh404 Enthusiast
Ok the gluten has been addressed and eliminated from my diet, as well as dairy soy and eggs. Now I am supposed to focus on healing my gut and getting my system back on track. the problem is that all of the supplements I am supposed to take for my recovery exacerbate my IBS.

I have IBS with constipation and a lazy bowel and have been struggling for years to find something to get me regular again. Im working closely with an integrative medical specialist and he really wants to get my thyroid numbers up as well as correct my flora and other GI imbalances. every single supplement he has given me only makes my constipation worse. he tried 2 different thyroid meds and they gave me severe constipation, various GI support formulas and probiotics...all made my constipation worse.

SO...how the hell am I supposed to recover if all these things make me feel lousy? I just dont know what to do. I can load up on laxatives so that i can at least take the supplements, but thats not good either.

any of u have similar issues? I hear about people with constipation all the time...family members, friends, etc...and they are all able to manage it with conventional treatments...however I am the freak and seem to have the worst kind of all.

There must be some other food that is causing your constipation. I was constipated my entire life (only 19 years) but like other people did not realize since I always thought it was just the way I am. But ever since removing dairy and gluten from my diet I have not had a single problem.

Too many probiotics can also cause constipation and excess bloating.

I'm also curious as to what your diet is like. Fats and sugar help to stimulate the bowels. So I'd recommend some fruit and nuts. Nuts especially. Also, try some low fiber vegetables like lettuce. Avoid grains as much as possible as I have found these to be the most constipating. Also try to drink more fluids if you aren't already.

Good luck

Fiddle-Faddle Community Regular

And don't forget exercise!! Yeah, I know it's hard to exercise when you feel lousy, but if YOU don't move, neither do your bowels.

Walk, swim, or (if you're up to it) run for 30 minutes a day. If you're walking, outside is best--being out in the sunlight (even if it's cloudy) will help you to synthesize vitamin D.

jasonD2 Experienced

Ive been taking herbal supplements (to help me go) on and off for a while and am concerned that I may have damaged my colon. I actually took whole leaf aloe for a year but discontinued after i found out it contained stimulants. i take CleanseMore on occasion as well but just found out that it contains stimulants. can lazy bowel syndrome be reversed?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.