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My Diet


Rachel Keating

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Rachel Keating Rookie

Thanks for welcoming me to the forum :) My diet right now is whatever I can see haha sad but true. I eat a lot of Noodles & Company (not with rice noodles, i mean the 100% NOT gluten free noodles). I also work at a nursing home and we eat the same food the residents do, which is obviously not gluten free either. It's hard to not be lazy and actually make myself a dinner before I go to work because I'm so busy with work and school. But hey, my health should be first on the priority list right? AH!


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ang1e0251 Contributor

For once in your life make yourself your first priority. Make your food on your day off and prepackage it so you can grab it and go the rest of the week. No more noodles. You get rice noodles and cook them yourself. What good is school and work if your health is bad? None of that can pay off if you are not healthy. Keep posting here what you are eating and we will try to help as much as we can. You need to committ to eating within the gluten-free diet and becoming the gluten-free Goddess I know you are!!

  • 4 weeks later...
hannahp57 Contributor

there are so many things you can buy at health stores or order online. frozen dinners, "granola" bars. you can eat on the go or whatever. but do you realize how serious celiac disease is? your lower intestine gets damaged. there is no guarantee that it will heal fully when you "feel" like changing your diet. Eat healthy and ask questions on here. i have only been on this site two days and i have already learned a lot! take the time, because your health is important!

  • 4 weeks later...
ohsroac Apprentice
Thanks for welcoming me to the forum :) My diet right now is whatever I can see haha sad but true. I eat a lot of Noodles & Company (not with rice noodles, i mean the 100% NOT gluten free noodles). I also work at a nursing home and we eat the same food the residents do, which is obviously not gluten free either. It's hard to not be lazy and actually make myself a dinner before I go to work because I'm so busy with work and school. But hey, my health should be first on the priority list right? AH!

Use one of your free days and pre-cook your meals and put them in containters that way you can grab it and go..:)

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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