Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease In The News


celiac3270

Recommended Posts

celiac3270 Collaborator

I get a couple articles every day from a news alert I have for celiac. I think instead of starting a new topic for each article, I'll just post a few articles under here every day. I'll only start new topics for those of great importance/interest:

March 24-25

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 112
  • Created
  • Last Reply
Roo Explorer

Thanks celiac3270, those were great!

Keep posting!

Roo

mommida Enthusiast

Thanks celiac3270!

I haven't been to that store in a while and that is big news to me about the new pasta products.

I visited that doctor in Troy and was more than a little disappointed. He explained to me how too many people think they have Celiac when they don't. Very different from the interviews I had read. Well I left the office getting another useless blood test ( gluten free diet ), and a written diagnoses of IBS (no diagnoses and the insurance company won't pay the bill).

Laura

celiac3270 Collaborator

Here is a combination of articles/recipes. I've already posted some of the articles, but I just realized that they came with group of gluten-free recipes :)

Open Original Shared Link

Sorry, nothing else new today <_<

celiac3270 Collaborator

Ooh...I just found another article :)...it didn't come through on my news alert, but it was on Delphi. The woman in the photo, Bobby Coughlin, is the...head?...of the Delphi board. The article is about the low-gluten communion.

Open Original Shared Link

Guest BellyTimber

That was very interesting indeed.

Only:

She was forced to give up her bread-making hobby.

That's a pity as we know there are a number of ways of making gluten-free bread as we know (just got a bit out of practice, myself).

Michael

celiac3270 Collaborator

More news :)

...about the girl whose First Communion was...denied because she wanted to sub. rice wafer for wheat:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

celiac3270, how do you get these alerts? Is there a setting on your browser? Something that I can set mine to get?

celiac3270 Collaborator

Another article...lol: Open Original Shared Link

Dessa, I get the news alerts from google. You can set them up so that if the word..."celiac" is used anywhere in the article, they will send it to you...I know there are others, but Google works well, so I'm satisfied with it.

plantime Contributor

Thanks celiac3270! I'm going now to try and set it up!

celiac3270 Collaborator

Open Original Shared Link

Open Original Shared Link

These articles aren't anything...new...but I just post them in case there's anything interesting in them for someone. Also, if someone won't believe you about...the celiac disease and osteoporosis link, you can show them 15 articles on it and ask if all the newspapers are lying :lol: just kidding.

Dessa, did the alert work?

plantime Contributor

Yes, celiac3270, it did! It was very easy to set up, now I am just waiting for new articles to come out so I can read them! Thank you for the info!

VegasCeliacBuckeye Collaborator

"Dark chocolate ringed Isaiah Labay

KaitiUSA Enthusiast

Death?

Since when does celiac cause an immediate death?

Could he be allergic to gluten and a celiac maybe?

plantime Contributor

I saw that in that article, and decided the writer was trying for some drama!

celiac3270 Collaborator

More articles:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

celiac3270 Collaborator

Open Original Shared Link -- very, very, very short

Open Original Shared Link

celiac3270 Collaborator

A small bit in this article on the celiac disease article from last week and about how it should've mentioned some more about the symptoms:

Open Original Shared Link

celiac3270 Collaborator
Open Original Shared Link
celiac3270 Collaborator

A couple more:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

celiac3270 Collaborator

I'm happy to keep doing this if you'd like me to, but just want to know if people want to see the articles or not.....I don't want to keep posting here and bumping it to the front if nobody wants to read it. ;) I don't mind either way...just want to know if this is getting in the way or not. :)

mommida Enthusiast

celiac3270,

Thank you so much for your dedication for providing this forum with more education. I am looking for more information on the gluten test sticks. I read an article on these small portable instant tests to check food for gluten.

Laura

Canadian Karen Community Regular

Hi celiac3270,

I for one check in here all the time for new articles...... Thanks for posting them!

Karen

KaitiUSA Enthusiast

I like to see them too celiac3270 :D Thanks for posting them B)

plantime Contributor

Keep posting the links, celiac3270. I keep checking in and reading them, too!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - JoJo0611 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,800
    • Most Online (within 30 mins)
      7,748

    CPeck
    Newest Member
    CPeck
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.