Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding A Good Doctor....scary Stuff

GlutenGuy36

Recommended Posts

GlutenGuy36 Contributor
GlutenGuy36
Posted

Just saw a program on TV where they were investigating doctors that were purposely not perfoming tests on patients so that they would get big bonuses from the insurance companies. This made me so mad because my first doctor was like this. For as long as I complained about horrible abdominal pains he did nothing except tell me it was anxiety. 9-10 months later it was so bad I demanded to see a different doctor and he actually ran the tests that diagnosed me with celiac disease.

It's so frustrating that this goes on. I'm not saying all doctors but I know its alot of them. That is a horrible thing to do to people just for a buck. I'm sure there are many who have a conscience, just have to find them!!!

So if you aren't getting the treatment you want.....don't wait like I did. Get a new doctor. The funny thing is, after I was diagnosed by the gastro, I had to go back to my PCP and he wouldn't come in and talk to me because he knew he was wrong. All along I told him there was something wrong and he said no I'm fine.

You can say that I'm a worry or whatever but I will never fully trust a doctor ever. You don't really know if they have your best interest at heart or if they are just concerned with the dough thats going in their pocket.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

I don't know how prevalent this kind of thing is, but I've had a similar experience. The upside is that I now double-check EVERYTHING on the Internet... side effects of medications, typical procedures, normal and optimal ranges, etc... Two weeks ago I had surgery to remove a lymph node (turned out to be benign, thank God), and I used the Internet to figure out why my steri strips were causing so much pain and not falling off like the doctor said they would (allergic reaction to the adhesive). The downside is that I find it REALLY hard to trust anybody, so I know I sometimes suffer from needless anxiety. Oh well. I'll guess I'll take that over being a victim again :)

YoloGx Rookie
YoloGx
Posted

I really agree with you. Though I think with some its not so much the money as a belief system that thinks celiac is really rare and the recent improved awareness of it is a fad. It kind of seems that the fact celiac exists so prevalently is almost an assault against the AMA's belief system about disease especially since it can affect one in so many different ways and be the root of so many different other degenerative diseases. So weird and really unscientific of them but unfortunately it seems to be true! Celiac represents a paradigm shift that many of them are unwilling to make in their Cartesian, discreet cause and effect universe...

Bea

sbj Rookie
sbj
Posted

And isn't it funny that there are two sides to this issue?

  1. Some folks feel that doctors order too many tests - just because they are out to make a buck (or fear malpractice lawsuits).
  2. Other folks feel that doctors refuse to order tests because they think their patients are hypochondriacs (or because they receive bonuses from the HMOs when they save them money by NOT running tests).

Jestgar Rising Star
Jestgar
Posted
And isn't it funny that there are two sides to this issue?

  1. Some folks feel that doctors order too many tests - just because they are out to make a buck (or fear malpractice lawsuits).
  2. Other folks feel that doctors refuse to order tests because they think their patients are hypochondriacs (or because they receive bonuses from the HMOs when they save them money by NOT running tests).

Doctors are just people. They all run their practices according to their own beliefs and ethics. We tend to lump them together on this forum (and probably in general), but, it's just a job.....

mushroom Proficient
mushroom
Posted
Doctors are just people. They all run their practices according to their own beliefs and ethics.

True. I just wish they would run them from a greater knowledge base! :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,688
    • Most Online (within 30 mins)
      7,748
    sandyebel
    Newest Member
    sandyebel
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.